aPSGA (Australia)
@apsga_org
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The aHUS Patient Support Group Australia represents Australians living with, or caring for those with the ultra-rare, life-threatening blood disease, aHUS.
Joined June 2013
Adelaide father-of-two calling for a fair shot at life https://t.co/H6jf3ylsO3
#risingaboveaHUS #saveaHUSlives
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2day is aHUS awareness day! Throughout the day we will be sharing messages from some of our @apsga_org members. @aHUSUKvoice @aHUSCanada
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“Life tied to a machine is not really a life"- Sarah Grant. https://t.co/kdlL9MOlEs
@sussanley @Change
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Bubbly 9 year old Chelsea was a picture of health until falling ill during a family holiday in 2015. https://t.co/SKZut1Ipp1
#saveaHUSlives
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Sign the petition 2 support Sarah Grant and others 2 plead w/ gov 2 make Soliris avail 4 aHUS patients on dialysis.
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Australia aHUS patient, Sarah Grant, 29, continues to plead for access to Soliris in order to save her life
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3 vocal choirs will become ‘500 voices’ in a community fundraising event set for Aug 28 at the QPAC concert hall.
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I’m still extremely passionate about securing Soliris for every Australian who requires access to it.
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:People's lives should always come before money" - May Ali https://t.co/1ZpTqiMANF
#saveaHUSlives
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A legal case in the UK is working to save aHUS patient Abi's access to Soliris https://t.co/TSmd6daLCs
#saveaHUSlives @aHUSAlliance
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Have you ever wondered how eculizumab actually works? https://t.co/SwnMEUHC7K
#saveaHUSlives
sciencedaily.com
Scientists have used X-rays to understand how the therapeutic antibody eculizumab prevents our immune system from destroying red blood cells and damaging kidney tissue.
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Watch as the Global aHUS Survey results are discussed https://t.co/Jkr1IpPn7G
#saveaHUSlives
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Amgen is trialling a biosiimilar therapy, developed to compete with eculizumab in Australia. https://t.co/aNbEemyfj1
#saveaHUSlives
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