aHUS Alliance
@aHUSAlliance
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Joined June 2015
Visit the new aHUS Global Site, serving as a patient organization portal for aHUS Information, News & Insights
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Rare Connect Webinar on #aHUSPoll2016 results. Register NOW!
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Eculizumab makes a guest appearance in India! | Atypical HUS India
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Ring out the bell the aHUS Global Voice Survey ends to today | aHUS UK
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Last day today for the 2016 aHUS Global Survey. Make your voice heard! Click here:
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RT @RareConnect: 2016 global #aHUS Poll, translated into 6 languages: https://t.co/PO6CETlvn2 Updates on Twitter: @aHUSallianceAct
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enquête #SHUa mondial pour apprendre les besoins des patients. https://t.co/3ONTasUwmi jours, ferme 15 Avril @shuabelgique @ShuaFrance
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Глобальное обследование, чтобы узнать потребности пациентов. https://t.co/3ONTasUwmi дней, в настоящее время до 15 апреля @aHUSRussia #почка
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RT @aHUSAllianceAct: #SEU Sondaggio globale per imparare le esigenze dei pazienti https://t.co/3ONTasUwmi, chiude 15aprile # malattierenali
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RT @aHUSAllianceAct: 患者 https://t.co/3ONTasUwmiのニーズを学ぶためのグローバル調査では、4月15日に閉じ #非典型溶血性尿毒症症候群 #奇病
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#Shua plus que quelques jours pour participer à la grande enquête réalisée par l'@aHUSAlliance. Clôture le 15/04 https://t.co/HxqQg4ECKs
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RT @aHUSAllianceAct Paciente encuesta mundial para informar#SHUa#research yla política sanitaria.Encuesta en español
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RT @aHUSUKvoice: @aHUSAllianceAct how much donated by all aHUS volunteers in time between £200,000 - £500,000
Reality Cheque: The Charity Paradox- discussing the need to change the way we view charities
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First use of Eculizumab in India. For a boy who was a US citizen and was in India. Some very pertinent points raised
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Calling all caregivers to provide info & insights about the world’s pediatric patients!
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Breaking news – the aHUS Alliance poll just launched on Monday, with 64% of respondents so far are adults.
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A couple of days back we celebrated Rare Disease Day. Come watch this video with many of our aHUS friends.
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