AOFAC Foundation
@aofac
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A patient advocacy group in the areas of Thrombotic Thrombocytopenic Purpura (TTP) with interest in Sickle Cell Disease&Lupus SLE. UK&Wales https://t.co/ZZO1I6STnA
England, United Kingdom
Joined January 2014
At the AOFAC Foundation’s Thrombotic Thrombocytopenic Purpura (TTP ) Awareness; We had a medical student branched at our table;This is what she had to say on the awareness of TTP as a medical student currently in a medical school #TTPAwarenessEverywhere #TTP
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Rare Disease Day 2026 reminds us that rare diseases affect 1 in 17 people in the UK. TTP is rare, life-threatening, and often misunderstood. Rare can mean delayed or missed diagnosis. Awareness save lives. Equity in diagnosis, specialist care and treatment must be the standard
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Today is Rare Disease Day focusing on #EquityforRare, we envision a world where every person affected by TTP receives equitable, timely, and accurate diagnoses, compassionate care, and an improved quality of life. Equity in care, awareness, and support is the path forward.
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TTP patients & survivors — your NHS experience matters. Please take 10 minutes to complete this Patient Experience Survey and help improve care for the TTP community. Share your voice here: https://t.co/JtpgC4AjDo
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At our TTP awareness event in Chelmsford, Essex, we learned that many people—including some medical professionals—have never heard of TTP. That’s why awareness matters. Awareness saves lives. #TTPAwarenessEverywhere #TTP #AOFACFoundation
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Happy New Year from AOFAC Foundation We honour our TTP survivors, patients, carers, and families. Your strength inspires us, and we remain committed to supporting you. Wishing you a healthy, peaceful year ahead. #TTPAwarenessEverywhere #TTP #Healthy #2026
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🎄 Season’s Greetings from AOFAC Foundation! This Christmas, we celebrate the strength and unity of our TTP community and thank everyone who continues to support and inspire positive change. Wishing you peace, joy, and a hopeful New Year. ✨
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📣 Our “What is TTP?” poster is now up at Orsett Hospital in the Haematology Day Unit and MAU! 🙌 Huge thanks to the teams for helping raise awareness. 💛 #TTP #OrsettHospital #Awareness #PatientSupport
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📣 Our “What is TTP?” poster is now up at Broomfield Hospital in the Haematology Day Unit and MAU! 🙌 Huge thanks to the teams for helping raise awareness. 💛 #TTP #BroomfieldHospital #Awareness #PatientSupport
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Due to unforeseen priorities, the AOFAC Foundation will pause our Annual Charity Ball this year. We will, however, gather on a smaller scale to honor our community and mission. Please consider donating at https://t.co/oiHcAZQ6j0.
#TTPAWARENESSEVERYWHERE
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At our awareness event earlier this month ( 25th October) at Florence South Carolina USA 🇺🇸 A big thank you to everyone that participated; We are grateful for all your supports. #TTPAwarenessEveryWhere #TTP
#aofacfoundation2025walk
#KickCancer #KickTTP Meeting Point: Florence
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At our awareness event earlier this month at South Carolina USA 🇺🇸 A big thank you to our lead at -Florence SC USA and everyone that participated; We are grateful for all your supports. #TTPAwarenesseverywhere #AOFACFOUNDATION #TTP Meeting Point: Myrtle beach
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The new @eurordis Rare Barometer survey is live. Share your experience of living with a rare or undiagnosed condition, from coping with stress to support and community life. Open worldwide in 25 languages until 14 Dec 2025. Take part here: https://t.co/LWSHTJSDKu
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Have your say on sickle cell & genomics research! 🧬 Help shape the Top 10 priorities by sharing what matters most to you, your family & community. Survey closes Oct 14, 2025 👉 https://t.co/aBaaKKQwNC
#PSP #SickleCell #Genomics #PatientVoice #ResearchMatters
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Earlier this month (3rd Sept) at our annual USP (Palmer’s College) Educational Prize giving; We awards the best student that performed excellently in their education among all odds - a Health and Social care student Congratulations to our winner for her well-deserved recognition.
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At our Annual #TTP Awareness last Friday - 12th September at Francia Marion University - South Carolina 🇺🇸 A big thank you to our lead and our volunteers and everyone that made it possible. We are grateful for all your supports. #TTPAwarenesseverywhere #AOFACFOUNDATION
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At our Annual 5k TTP Awareness walk, jog, run, wheel, move last Saturday - 6th September A big thank you to everyone that participated; We are grateful for all your supports. #TTPAwarenesseverywhere #AOFACFOUNDATION #TTP Meeting Point: Virginia, USA 🇺🇸
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At our Annual 5k TTP Awareness walk, jog, run, wheel, move last Saturday - 6th September A big thank you to everyone that participated; We are grateful for all your supports. #TTPAwarenesseverywhere #AOFACFOUNDATION #TTP Meeting Point: Virginia, USA 🇺🇸
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At our Annual 5k TTP Awareness walk, jog, run, wheel, move last Saturday - 6th September A big thank you to everyone that participated; We are grateful for all your supports. #TTPAwarenesseverywhere #AOFACFOUNDATION #TTP Meeting Point: Washington DC, USA 🇺🇸
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