Zipper Sisters
@ZipperSisters
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Sisterhood of Women with Congenital Heart Defects We are 1 in 100! #CHD #ACHD awareness. Patient first. Established 2012
Joined April 2020
RT @HeartSomerville: We are excited to announce we have some new leaflets: 'Exercise and ACHD' and 'Menopause and ACHD'. They are availabl….
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RT @shelagh_ross: Please share ❤️ Registration: @cchaforlife @globalarchorg @ZipperSisters @conqueringchd @ACHA_He….
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RT @BexG_MD: As more children with congenital heart disease are growing up, it’s important for us to understand how to manage and treat the….
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RT @sukritibanthiya: I had so much fun creating this comic on Partial Anomalous Pulmonary Venous Connection! Thank you @ClaireCambron @Rawa….
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RT @kellyerea: We want to hear from you, #CHDcommunity! . The Michigan Transition to Adulthood Lived Experience (MiTALE) Study is looking f….
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We're thankful for our followers and for those who have invited us in and included us in the conversation! We're on Instagram and will be launching a Facebook page next year! Stay in touch! #ACHD.
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RT @LifeWithCHD: Do you have a story to share about living with congenital heart disease? We want to hear from heart warriors, parents, car….
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Our friend David, whom we introduced a few weeks ago, is still journaling his #CHD #HeartFailure #hospice experience. There's so much to learn from this man if you are a care provider in #ACHD.
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RT @WGACHDChair: The evolving ventricular arrhythmia substrate in Tetralogy of Fallot ✅.#ACHD #CHD @GiancarloS1111.@MoonsPhilip @raqpri1977….
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RT @shelagh_ross: A fabulous tribute to a brilliant trailblazing scientist who wrote THE book about #CHD 🇨🇦. Thank you Maude Abbott, @DrAr….
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RT @m4ggiesimpson: Adults with congenital heart disease: what every cardiologist should know about their care . #A….
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RT @Sarah_R_Ellison: @m4ggiesimpson @ehj_ed @ESC_Journals So pleased to see “listen to the patient” . Patients lived entire lives with #CHD….
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RT @a_h_ghoneem: Awesome infographic by one of the future ⭐️⭐️⭐️ of #ACHD @RawanAAmir ! . #ACCFIT Save this @cardionerds infographic to you….
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RT @ACHA_Heart: We are excited to announce that our final webinars of the year will take place on back-to-back Wednesdays next month. We ho….
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How do we be seen and heard?.
Congenital Heart Disease: the poor cousin of childhood diagnoses? .@NIH funded $143 million in 2023 to research congenital heart disease (affects 1 in 80 babies) while childhood leukemia (1 in 13,500) got $268 million. @globalarchorg . @HeartSisters
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RT @ACCinTouch: Looking for more on #CHD? Explore CardioSmart's CHD Hub to learn more about the condition and share the resources with your….
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RT @CardiacNeuro: New scoping review: #Neurodevelopmental f/u in children with #CHD. ➡️22 different f/u pathways, 4 countries w/variable i….
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