Zipper Sisters
@ZipperSisters
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Sisterhood of Women with Congenital Heart Defects We are 1 in 100! #CHD #ACHD awareness. Patient first. Established 2012
Joined April 2020
Neurocognitive deficits are prevalent in young adults w/ moderate & severely complex #ACHD, & it is essential to integrate neurocognitive assessments into routine ACHD care, according to the MINDS-ACHD study published in #JACC. Read more: https://t.co/Q0aXHXEgiD
#CHD
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We are excited to announce we have some new leaflets: 'Exercise and ACHD' and 'Menopause and ACHD'. They are available to download from our website, and ACHD teams are able to request these from us for free. To download all of our leaflets, go to https://t.co/Hsr5eDvWDb
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Please share ❤️ Registration: https://t.co/C6LCPO5fQA
@cchaforlife @globalarchorg @ZipperSisters @conqueringchd @ACHA_Heart
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Incredible to meet with patients and the teams supporting them in driving patient involvement in #ACHD research design through @PCORI in TX, LA, and OK - excited to work together moving forward! @linds_alano @JoeyV1in100 @AnuAgarwalMD @valeriaduarteMD @TCH_adultCHD
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As more children with congenital heart disease are growing up, it’s important for us to understand how to manage and treat these children as adults! Learn about Tetralogy of Fallot here! https://t.co/QIYIyKyFGi
#achd #CriticalCareCardiology #tetralogyoffallot #uicim
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I had so much fun creating this comic on Partial Anomalous Pulmonary Venous Connection! Thank you @ClaireCambron @RawanAAmir @T_GuptaMD @jsaef1 @CardioNerds for continuing to inspire me & share our love for #ACHD! 🫀🤓
Category: Vivid Venous Visuals 🫀🩸 These works celebrated the beauty and complexity of the venous system in ACHD Congratulations to our winner 🏆 Sukriti Banthiya @sukritibanthiya
@CardioNerds @ClaireCambron @jsaef1 @T_GuptaMD
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We want to hear from you, #CHDcommunity! The Michigan Transition to Adulthood Lived Experience (MiTALE) Study is looking for young adults ages 18 to 30 with #ACHD to share their thoughts in an online study!
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We're thankful for our followers and for those who have invited us in and included us in the conversation! We're on Instagram and will be launching a Facebook page next year! Stay in touch! #ACHD
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Do you have a story to share about living with congenital heart disease? We want to hear from heart warriors, parents, caregivers, and medical staff for our upcoming issue of Life with CHD magazine. Heck out our October issue. @FontanOutcomes @YaleACHD
https://t.co/ZyDPZFqdTI
heyzine.com
Created with the Heyzine flipbook maker
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Our friend David, whom we introduced a few weeks ago, is still journaling his #CHD #HeartFailure #hospice experience. There's so much to learn from this man if you are a care provider in #ACHD. https://t.co/7FRzZ8zSMx
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The evolving ventricular arrhythmia substrate in Tetralogy of Fallot ✅ #ACHD #CHD @GiancarloS1111
@MoonsPhilip @raqpri1977
@JavierRuperti @JSabatino86 📖 Read more: https://t.co/ysKs6hRLDE Congratulations JP Moore, @KhairyPaul et al
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A fabulous tribute to a brilliant trailblazing scientist who wrote THE book about #CHD 🇨🇦. Thank you Maude Abbott, @DrArianeMarelli, and all the other bold women cardiologists for following in her footsteps 🥰 @ZipperSisters @cchaforlife @ACHA_Heart @globalarchorg @CachNetwork
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@m4ggiesimpson @ehj_ed @ESC_Journals So pleased to see “listen to the patient” . Patients lived entire lives with #CHD #ACHD becoming experts themselves. Partnership approach important & acknowledgement that often we are all still learning @ZipperSisters @shelagh_ross @DrPetraJenkins1 @MoonsPhilip @alottalottos
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Awesome infographic by one of the future ⭐️⭐️⭐️ of #ACHD @RawanAAmir ! #ACCFIT Save this @cardionerds infographic to your phones!
To close or not to close? 🤔 That is the ultimate #PFO question🫀 Get the inside scoop on keys 🔑 to diagnosis & when referral for closure is the right call for your patients🤓 Huge thanks to @RichardAFerraro @AmitGoyalMD @a_h_ghoneem @TDonisan @CardioNerds !🫀 #CardioTwitter
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We are excited to announce that our final webinars of the year will take place on back-to-back Wednesdays next month. We hope you will review both topics and register now to join us live at https://t.co/rm4ZTKrtQ2!
#ACHD #CHD #CHDAwareness #CHDCare4Life
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How do we be seen and heard?
Congenital Heart Disease: the poor cousin of childhood diagnoses? @NIH funded $143 million in 2023 to research congenital heart disease (affects 1 in 80 babies) while childhood leukemia (1 in 13,500) got $268 million. @globalarchorg
https://t.co/oGkkEciiHV
@HeartSisters
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Looking for more on #CHD? Explore CardioSmart's CHD Hub to learn more about the condition and share the resources with your patients. 🔗 https://t.co/uGyET5jBTN
#ACCMidEast #ACHD
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