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Vasculitis Foundation Profile
Vasculitis Foundation

@VasculitisFound

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Building on the collective strength of the vasculitis community, the Foundation supports, inspires and empowers individuals with vasculitis and their families

Kansas City
Joined April 2011
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@VasculitisFound
Vasculitis Foundation
2 years
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@VasculitisFound
Vasculitis Foundation
2 years
Let’s end 2023 with a bang! Be part of our shared movement to empower, educate, and advocate alongside the entire vasculitis community. Let’s make today one of the biggest giving days of the year. Donate now:
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@VasculitisFound
Vasculitis Foundation
2 years
Brandi is living with GPA vasculitis, but that doesn’t stop her from hiking in Arkansas!.
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@VasculitisFound
Vasculitis Foundation
2 years
RT @VasculitisBCN24: The 21st International Vasculitis Workshop will take place in Barcelona!. April 7-10th, 2024. Save the date‼️😉. https:….
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@VasculitisFound
Vasculitis Foundation
2 years
Getting ready to travel? Our community of vasculitis warriors shared their top travel tips to help you face your adventures with extra calm and control!
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@VasculitisFound
Vasculitis Foundation
2 years
When Samantha was diagnosed w/ vasculitis in her 20s in 2005, she had one question: Can I become a mom? At the time, there was no research into vasculitis & pregnancy. Her only choice? Try & hope for the best. This story is her journey to motherhood.
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@VasculitisFound
Vasculitis Foundation
2 years
Stay in the loop–or invite family & friends to learn about vasculitis–by signing up for our monthly e-newsletter. The e-newsletter is packed w/ information you need to know about vasculitis, including community stories, upcoming events, resources, & more.
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@VasculitisFound
Vasculitis Foundation
2 years
People impacted by vasculitis attend VF regional conferences to learn AND build friendships. For many, it's their first time meeting someone in person with their diagnosis. Support community building with a donation today!
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@VasculitisFound
Vasculitis Foundation
2 years
Pre-authorization. Co-pay assistance. Appealing denied claims. These are some of the barriers people w/ vasculitis face in acquiring specialty meds. In Wednesday's webinar, Rachael Perritt, PharmD, BCPS, provides a clear roadmap to medication access.
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@VasculitisFound
Vasculitis Foundation
2 years
It’s already hard to manage stress with a chronic illness. Add to that the holiday season and we could really use some extra support. Luckily, Daniel Hall, PhD, has some tips for regaining control in your life and managing stress.
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@VasculitisFound
Vasculitis Foundation
2 years
In this 30-minute live Q&A, nephrologist Elizabeth Brant, MD, who’s also living with vasculitis, and nephrologist Suneel Udani, MD, will answer your questions on kidney involvement with vasculitis. Tune in live to submit your questions. 12/5 at 1pm CT:
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@VasculitisFound
Vasculitis Foundation
2 years
This on-demand webinar provides patient-friendly overview of how the eye functions, and how various types of vasculitis can affect the eye and vision.
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@VasculitisFound
Vasculitis Foundation
2 years
Can Vasculitis impact your brain? This on-demand presentation and Q&A sheds light on this:
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@VasculitisFound
Vasculitis Foundation
2 years
This time of year is all about gratitude. But, as this care partner asked, “How do you stay positive without falling into toxic positivity?” Share your tips in the comments.
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@VasculitisFound
Vasculitis Foundation
2 years
‘Tis the day of thankfulness here in the United States. We reached out to our community and asked them: “Despite vasculitis, or because of it, what are you grateful for?” Here’s what some of you said.
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@VasculitisFound
Vasculitis Foundation
2 years
Join us on Monday 11/27 at 7pm CT for Community Trivia to kick off GivingTuesday. There’s no cost to join, but registration is required. Get ready for some good-humored competition!
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@VasculitisFound
Vasculitis Foundation
2 years
Many of us in the United States will be gathering with friends and family for Thanksgiving next week. Give us your advice: how do you get through the holidays when you’re not feeling well?.
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@VasculitisFound
Vasculitis Foundation
2 years
Dr. Shanali Perera was training to be a rheumatologist when she began experiencing her own mysterious symptoms. Years passed b4 she got her own diagnosis. Today, she's reclaiming her life through art as she shares what it looks like to live w/vasculitis.
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@VasculitisFound
Vasculitis Foundation
2 years
RT @kaz_yos: #ACR23 With @SattuiSEMD at his ASV Poster 2377!
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@VasculitisFound
Vasculitis Foundation
2 years
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