PoTS UK
@UKPoTS
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A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
UK
Joined May 2014
Our NEW ⭐️What is PoTS⭐️ video!. To mark the first day of #DysautonomiaAwarenessMonth (disorders of the autonomic nervous system) please educate about #PoTS by sharing our new ‘What is PoTS’ video💜. This video gives a summary of symptoms, QOL, associated conditions & treatments.
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Tonight for those starting University 👇.
Our 'PoTS and University' Online Peer Support Group is the perfect opportunity to talk to others in the same situation and hear from Anna and Emily who understand how you are feeling!. Wednesday 27th August 7pm.Register here:
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If you would like to attend we would be grateful if you could take a few minutes to complete our survey: This will help us structure the webinars to ensure that they are as beneficial as possible. #PoTSAwarenessMonth #PoTS #PoTSWebinars
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Our 'PoTS and University' Online Peer Support Group is the perfect opportunity to talk to others in the same situation and hear from Anna and Emily who understand how you are feeling!. Wednesday 27th August 7pm.Register here:
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Article @BBCNews shares study - Long Covid patients gaslit by GP's. #LongCovid #PoTS @LongCovidSOS @LongCovidKids @long_covid .
bbc.co.uk
The University of Surrey study says patients faced "gatekeeping" of treatment from medical professionals.
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We love to see people proudly wearing PoTS UK merchandise. Please visit our shop: #PoTSMerchandise #PoTS
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2/2 Here at PoTS UK we are always keen to share your story and if you are happy to do so then please visit our website for further information:
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1/2 Thank you to all those who have taken the time to comment and respond to our survey. We have had an overwhelming response and will pass these details on to ITV News who will hopefully cover the majority of the country with their news report 🙌.
1/3 ITV News are preparing a news report about #PoTS for middle/late September. They are looking for people who have a diagnosis & are willing to share their story. Complete this form BEFORE Friday 22nd August: We are still looking for volunteers from…
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3/3 Please note:.🗓 You need to be available for filming during the first two weeks of September.🎥 They would like to film you at home, doing some of your daily activities & talking about how your life is affected by PoTS. 📸 They may ask if you are willing to share any photos.
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2/3 We are still looking for volunteers from:.ITV Anglia East.ITV Anglia West.ITV Meridian West.ITV News West Country East.ITV Yorkshire South. 𝗬𝗼𝘂 𝗺𝘂𝘀𝘁 𝗯𝗲 𝘄𝗶𝘁𝗵𝗶𝗻 𝘁𝗵𝗲 𝗿𝗶𝗴𝗵𝘁 𝗿𝗲𝗴𝗶𝗼𝗻. (The breakdown of these areas can be found in the form).
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RT @scottish_vig: So great to see POTS getting some main-stream coverage. I wonder if any docs read the @DailyMail ? I hope so. it is….
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4/4 Thank you to all those featured in this article, and to our volunteer Louise discussing Ivabradine and her @MedDetectDogs Mercedes💜. Thank you to @_lukechafer for writing this excellent and detailed article.
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3/4 Dr Gall discussing Ivabradine:."I have used this drug for a number of years, it is very effective for some patients. The reality is that there is not a single drug that will work for everyone with PoTS, so it is important for people to have access to all possible options".
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1/4 This @DailyMail article discusses #PoTS, difficulties obtaining a diagnosis & medication Ivabradine👇. 'For more than 20 years Kerry Clayton endured dizzy spells, fainting & constant light-headedness – only to have concerns repeatedly dismissed by doctors.'. #MECFS #LongCovid
Are YOUR dizzy spells being caused by hidden nervous system problems that GPs often fail to spot. and could the cure be a 30p pill?
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"It’s going to push me to the limit physically and mentally, but I’m doing it for a cause very close to my heart." .You can read Bec's story here: We can't wait to hear all about it. You've got this! 💜. #3PeaksChallenge #RaisingAwarenessOfPoTS #PoTS
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Sophie started this #PoTS petition to give a voice to others in similar situations, hoping to unite stories and make a stronger impact moving forward. We will keep you updated with any response from the Government✍️. #PoTSPetition #NHS #LackOfServices #PosturalTachycardiaSyndrome
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FINAL day to sign our #PoTS petition: .Fund training and facilities for healthcare professionals!. Closes midnight tonight✍️: #PoTSPetition.
petition.parliament.uk
Fund training for all healthcare providers on spotting and dealing with Postural Tachycardia Syndrome (PoTS) as well as facilities where people with this condition can access the correct form of...
Our petition closes on 30th July- we need as many signatures as possible!. We are asking the Government to fund training for all healthcare providers on spotting/dealing with #PoTS and facilitate the correct form of healthcare. Please SHARE FAR AND WIDE:
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