I'm here yet again reminding people that I have not been president of ACRAWSA for well over 18 months. Please stop contacting me. I resigned for a reason. @acrawsa please rectify this immediately. Thank you.

Bye all. After today I've decided it's better not to really know how crappy the world really is. Elmo gets to play with his toys and abhorrent men that resemble rotting hot faeces get to destroy things. I'd rather just conserve what little energy I have. I'll disable tonight.

Just leaving my neuro specialist where he injected a nerve block into my head but unfortunately it only numbed part of it so I'm still feeling my dystopian future as the US election rolls on.

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

True story - my sister once moved into a house in the Hunter valley where she felt weird energy. Later she discovered this was the house. She left soon after.

What does it say about our legal system when the U.S. Supreme Court refuses to stop an execution even when the county prosecuting agency that handled the original trial files a brief in support of a stay and supports vacating the entire conviction? #MarcellusWilliams

When the victim’s family *and* the prosecuting attorney who put him away all say he is innocent and you still deny clemency, you aren’t pro-life. You’re pro-death, @GovParsonMO. https://t.co/jHRfMVfZ8s

Bsl not checked and partner is bringing food on so I don't hypo. I can't move as I'm in a wheelchair and my BP was too unstable to get up. But I feel so sorry for the ppl working here. Remember when we all thanked them? They need real help now.

We are really witnessing a health system at breaking point here in Australia. These poor fellas are overworked, underpaid, with no improvement on infrastructure with a growing population. I'm sitting here being extremely compliant, but no fluids or check in 4 hrs.

I'm sitting in a hospital waiting room cos my BP is all over the place. I think I'm fine but still I have to wait. I get that 78/72 is bad but it's not that now. So can I go home please? #POTS #MECFS

Being chronically disabled means having a BP of 73/36 & deciding whether to go to hospital just for an uncomfortable night with a drip, followed by a resting heart rate of 49, yet your heart is totally fine. Oh, and not being able to eat anything while having a T1 hypo.

Had a lovely outing today with my cuz and while out saw Channel nine filming at a High Tea - Tony Jones present....did all I could to stay quiet as I really felt like doing a WTC but not my country so an Acknowledgement woulda been lost on him.

That builder Zak is everything wrong with men who can't handle communicating with a young woman. Hope he loses business in the future because of that. I was swearing at the TV. #TheBlock

I’m fucking dead 🤣🤣🤣

fellas when you see this face…….. run #Debate2024

When I was a child my mother used to take me to weight watchers for a weekly weigh in. She wld try to bribe my brother & I into losing weight, even wrapping plastic wrap around his body to get some off. Both of us have disordered eating & emotional issues. This is a bad idea.

Bill Shorten becomes latest person to be defeated by NDIS paperwork

This very windy weather reminds me of a time when I was living in Killarney and decided I'd go for a walk with a friend through the Ross Castle estate just as a storm was brewing. A tree fell down and narrowly missed us. It was both scary and exciting in the strangest of ways.

Ughh... managed to keep down soup today & had two biscuits to keep up Blood sugar. I am so fatigued right now.

They said I'm one of those 'unicorns' that has multiple autoimmune illnesses which just means we have to work steadily through all the weeds to create better management. It was a refreshing to have such a good experience. This is the standard we should all get.

I finally saw a neurologist this week and due to hearing many stories of medical gaslighting I was so worked up beforehand. What if they treat me as if I'm wasting their time? What if they don't believe my medical conditions are real? They were great. Reasonable 1)2