300 million+ people worldwide living with a rare disease. There are over 6000+ rare diseases. https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness @RareDiseaseUK #RareDiseaseDay2023

Alpha-1 Antitrypsin Deficiency, or Alpha-1, is an inherited, genetic condition that is passed on from generation to generation. https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency @RareDiseaseUK #RareDiseaseDay2023

@lindsayclimb is in two more events today 📣Cheering you on from the side lines Lindsay ! We know that you have a big fan club 🎉 https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency #britishtransplantgames2022 #BTG2022 #transplantsports

Lindsay Jarrett, committee member & lead for Scotland. Lindsay had a double lung transplant. https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency #britishtransplantgames #transplantsport https://t.co/nzmTwJ9xNT #BritishTransplantGames2022

It is estimated that in the UK over 80,000 people are affected wiht Hepatitis C and around 400,000 with Hepatitis C. #WorldHepatitisDay #loveyourliver https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency https://t.co/UzmsfxJWxZ

Leeds is the host city for the 2022, and we are proud to see Lindsay Jarrett competing tomorrow at approximately 10.30 BST. See the timetable https://t.co/rGiDggiwd3 https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency

We’re proud to share @samaritanscharity awareness-raising campaign #TalkToUs this July, to remind people that Samaritans are there for anyone struggling to cope, 24 hours a day, 365 days a year #TalkToUs https://t.co/AExcTwMHDo #alpha1awareness #alpha1uksupport

α1-antitrypsin deficiency is a heterogeneous disease driven by aberrant protease activity in the presence of low α1-AT levels. Understanding mechanisms driving pathological processes in α1-ATD phenotypes could identify novel therapeutic targets.  https://t.co/32v5YaElTP

Strong sunshine causes the level of ozone & air pollutants in the air to rise, this can cause breathing problems and trigger your symptoms. https://t.co/AExcTwv6eO #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency #hot #weather #lungconditions #selfcareisntselfish

Jump Back Up July - Day 3: Be willing to ask for help when you need it https://t.co/EHfxvNbhBr #JumpBackUpJuly

COVID Numbers are again increasing to high levels. Please be careful and take your usual precautions. https://t.co/WtbkgimfhZ https://t.co/AExcTwMHDo #alpha1awareness #a1uksupportgroup #alpha1antitrypsindefiency https://t.co/JnALuLqCB0 #covid #covidupdate

June is Pride month as that is is when the Stonewall Riots took place, way back in 1969. https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency #pride #pridemonth #takepride https://t.co/n6jZfuDi7Q

🫁Raise Awareness of Lung Conditions Support ‘Love Your Lungs Week’ - 21-27 June 2022 🫁 #loveyourlungs https://t.co/AExcTwMHDo #a1uksupportgroup #alpha1awareness #alpha1antitrypsindefiency https://t.co/iC9JQNWBZZ #asthmalunguk @asthmalunguk

We all feel lonely from sometimes. Loneliness is not always the same as being alone https://t.co/qrCCwOLNrO https://t.co/3RI2NbnXb8 #alpha1awareness #a1uksupportgroup #alpha1antitrypsindefiency #mentalhealthawareness #selfcareisntselfish #mentalhealth

Mereo is pleased to report positive top-line Data from “ASTRAEUS” a Phase 2 trial of alvelestat in AATD. Join us at 10:30 ET for a conference call to discuss the data in more detail. See the press release for full dial-in details https://t.co/JaQVh47VAt @ScotsKnight2

Anyone fancy sponsoring my 50km(30miles) walk on Saturday with @TeeGeeJay for @Alpha1UKSupport https://t.co/LDRpN4FkpP

Still laughing @KayBurley today ‘you haven’t seen what’s in my back garden’ to Dr Chris Thorogood #skynews

Remember: You are enough. Just as you are ❤️

A majority of alpha’s highlighted a lack of medical knowledge about Alpha- 1 amongst GPs. 22% rated their GP’s level of knowledge as ‘good or very good’, whereas almost half of the respondents felt that their GP had ‘poor or very poor’ knowledge of Alpha-1 #alpha1awareness

When talking about Primary care, a survey of alpha's revealed that 44% of respondents reported having to visit their GP more than once every three months to receive help for their condition, indicating a high unmet medical need.#A1UKSupport https://t.co/AExcTwMHDo