TTP Network
@TTP_Network
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Patient Support Group. Registered Charity. Supporting patients, families and professionals dealing with Thrombotic Thrombocytopenic Purpura in UK and Eire.
England, United Kingdom
Joined January 2014
It’s #TrusteeWeek! 💙 We’re celebrating the incredible team guiding TTPNetwork with passion, expertise & lived experience. Their dedication helps ensure no one facing TTP feels alone. Meet our trustees 👉 https://t.co/XukOAMyWwI
#ThankATrustee #PatientAdvocacy
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We’re so excited to be part of @GoVoOfficial - the new volunteering platform connecting people with amazing opportunities. You can now easily browse, filter, and sign up for volunteer roles like being a Trustee directly on GoVo. Get volunteering at
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Bridgathon 2025 has started. Supporting the UCL TTP Education & Research Fund. Donate here: https://t.co/B2NahCmvB0
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Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP? read more here: https://t.co/mSfcVuVZMe take part here: https://t.co/OLYoecZLgU
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The 2025 TTPNetwork Patient event is happening soon. Get your ticket here: https://t.co/HpmdNSdl25 Learn more about TTP, meet others with cTTP and iTTP and their families. Have fun! Plus refreshments and lunch included.
tickettailor.com
TTPNetwork Patient Event 2025 – Aston Conference Centre, Sat 17 May 2025 - Join us for our 2025 TTPNetwork event A day to meet other patients and families, hear from subject experts, learn more about...
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Tom is raising funds for TTPNetwork. Support him here: https://t.co/yiTyAGqufE
justgiving.com
Help Tom Kellett raise money to support TTPNetwork
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Missed the last post? no need to worry - send an e-card and support TTPNetwork at the same time! https://t.co/Jh9Olx5C8F
#DontSendMeACard #Christmas2024
dontsendmeacard.com
Send eCards and donate the cost of greeting cards to TTPNetwork. With DontSendMeACard every e-card you send saves time, helps a charity, and reduces carbon.
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As Christmas approaches we are offering two opportunities to support TTPNetwork. Send an e-card or pick a penguin! https://t.co/Jh9Olx5C8F
https://t.co/vqy9CLheSq
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Today we celebrate International Day of Charity. Thank you for all of your support, enabling us to continue our work.
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Don't forget to take your TTP Travel letter, translated into the language you need: https://t.co/SLrShgONMh
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Are you planning a trip abroad? Take a look at the Your Travel and Health website https://t.co/zcMlw4u2tL Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &more.
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Are you a TTP Patient? Would you like to know more about relapses? join us for our free webinar:
tickettailor.com
Webinar - Preventing TTP relapses; Signs, symptoms and what to do – Zoom, Wed 7 Aug 2024 - This webinar will give an overview of what signs and symptoms to look out for, and what to do if you are...
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Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life! To make your voice heard & share your experience, take the survey by clicking here, before 8 September: https://t.co/nEpMJyPOfM
@eurordis
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A huge thank you to all our volunteers including our Trustees who volunteer their time. We couldn’t do it without you.
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Another fabulous TTP consultant running for us this year. Dr Rachel Evans from Newcastle is bringing up the north with this ULTRA MARATHON!!! You can support her here:
justgiving.com
Help Rachel Evans raise money to support TTPNetwork
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Dr Will Thomas ran a marathon on Sunday in an incredible 3.5hrs. After months getting up super early to train. We are so grateful for his support. https://t.co/0pgDLmpf7X?
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On this very #rarediseaseday we are delighted to launch our new website https://t.co/GgzyYVcWZb thank you to @TakedaPharma and @AppCentricLtd for your support and expertise
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