The Susie Foundation
@SusieFoundation
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Inspired by a patient. Founded by a caregiver. Dedicated to fighting ALS.
Beacon Falls, CT
Joined June 2013
What an unbelievable afternoon alongside some incredible families! Thank you to the @Patriots for hosting our group of PALS, caregivers, families, & partners at training camp today! And thanks to our partners @ALSAMA, @HopeLovesCo, @ComCareALS, @ALSFamily, @ALSTDI, & @ALSACT!
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I appreciate the @alsassociation for providing their perspective. After reading this statement, it is clear that they, and likely others in our community, have no idea what an expanded access program is or does. It's time we change that. (1/5)
#ACTforALS is well-intentioned but may delay getting treatments to everyone with #ALS, in favor of a few. We will continue working with stakeholders on behalf of the entirety of #OurALSCommunity to address these issues and improve the bill. Read more:
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#SusieMasks are finally here! For just $15 you can show off your TSF pride with a reusable, washable black cotton face mask AND send a *free* mask to a family living with #ALS! Get yours ➡️ https://t.co/GDxtvLq9TY
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I bought TWO 🙌🎯❤😷😷 @SusieFoundation
🚨BREAKING: #SusieMasks are officially on-sale! 🚨 For just $15 you can show off your TSF pride with a reusable, washable black cotton face mask AND send a *free* mask to a family living with #ALS! So what are you waiting for? Shop now ➡️ https://t.co/GDxtvLq9TY
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🚨BREAKING: #SusieMasks are officially on-sale! 🚨 For just $15 you can show off your TSF pride with a reusable, washable black cotton face mask AND send a *free* mask to a family living with #ALS! So what are you waiting for? Shop now ➡️ https://t.co/GDxtvLq9TY
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Reposting this one from @ALSKnights because it’s just too good not to pass along! Thank to all those who participated in #ALSTrivia this past Thursday evening and helping us raise over $3k to support 11 different ALS-serving organizations!
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Today we are feeling grateful for all the incredible things this community continues to accomplish and for the many organizations and thousands of advocates leading this fight. We are stronger together and will keep battling as one until we can stay, #ALSYouGone
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11 organizations with a single mission: to fight #ALS Join me, The @SusieFoundation, and 10 of our incredible partner organization for an unforgettable night of virtual trivia to help fight #ALS! $15 per person; link below to register. https://t.co/U6u5iUBngI
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Tomorrow is #ALSAwarenessMonth Trivia Night! For $15, you can enjoy a fun night in quarantine & support so many organizations supporting families affected by #ALS. We look forward to seeing you tomorrow! Benefiting #AngelFundforALSResearch @ALSKnights & everyone tagged!
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With over 280 miles ran & $8,280 raised, our Team Susie Virtual 5k-ers are continuing to absolutely crush things on this beautiful Memorial Day! We can’t thank all of our athletes enough for everything they’ve done to support families living with #ALS! https://t.co/zNgLj3l2u1
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It’s a beautiful day to support the @SusieFoundation! #SusieVirtual5K 💜💜 thanks Sheila and Sam for a great walk :)
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Walked 9 miles this weekend with @_RyanMatthews to support The @SusieFoundation and help patients and families living with ALS. To donate to these deserving families, please visit https://t.co/sC7AfEvTsP 🇺🇸💙💪🏻
Third and final 5k with @lizmatthews729 is in the books this weekend for the #SusieVirtual5k hosted by the @SusieFoundation! Over 100 #TeamSusie athletes have raised over $7500 to support families living with #ALS & there’s still time left to join in! https://t.co/kdN4vP6zTk
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Third and final 5k with @lizmatthews729 is in the books this weekend for the #SusieVirtual5k hosted by the @SusieFoundation! Over 100 #TeamSusie athletes have raised over $7500 to support families living with #ALS & there’s still time left to join in! https://t.co/kdN4vP6zTk
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First and second legs of three 5ks this weekend with @lizmatthews729 for the #SusieVirtual5k are officially in the books! Want to join us and support the work of The @SusieFoundation this weekend? Follow the link below to sign up FOR FREE. https://t.co/kdN4vP6zTk
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#SusieVirtual5k in the books! Thanks to everyone who donated! There's still time to sign up and/or donate! @SusieFoundation
https://t.co/4tX7jheJps
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Our #SusieVirtual5k is off to a scathing hot start this morning with over 50 miles logged already this weekend to support families living with #ALS! There’s plenty of time left to join! Follow the link below to support an athlete, or register FOR FREE! https://t.co/zNgLj3l2u1
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