
SUDEP Action
@SudepAction
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Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]
Wantage, Oxfordshire
Joined December 2009
We have info about the epilepsy risks facing younger people on our website, including the move from paediatric to adult services: . #internationalyouthday #epilepsyawareness
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The Epilepsy Research Institute’s 2025–26 Grant Round is officially open for preliminary applications! @EpilepsyInst & SUDEP Action Emerging Leader Fellowship – up to £300,000 over 1–4 years for research into #SUDEP & preventable #epilepsy deaths.
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The Charlie Card reminds health professionals of their legal responsibilities to provide emergency meds in a crisis. Charlie Marriage was unable to access his medication when he needed it & subsequently died of SUDEP in 2021. @IPAPharmacy @ESNA_epilepsy.
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Take on a 10K for SUDEP Action, like Paul Maven:. “I ran the Leeds 10k for my lovely brother-in-law James, who lost his life last year whilst working away from home. He was such a lovely man who everyone loved. He left us far too young.”. Please email fundraising@sudep.org 🏃♀️ 🏃♂️
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“Michael was 24 when he died. He was a quiet lad whose life was only just starting to improve and flourish.”. Read Michael’s story: If you’d like to share your story, please email Pierce at info@sudep.org . #SUDEP #epilepsy #epilepsyawareness
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Could you complete a 30-day challenge this September?. This September, join us in support of our 30th anniversary and take on your own fundraising challenge. Choose your challenge and repeat it for every day in September. Get brainstorming: . #30for30
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“I wanted to continue to support the charity, even in a small way to ensure many others can receive help and overall build awareness of epilepsy as it is still very much overlooked as a serious condition.” (Ciara) . Become a regular giver today: #epilepsy
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Returning home from uni for the summer?. It’s important to keep on track with your medication. If you’re worried about a change in your routine, why not create a reminder on your phone or share your medication schedule with a family member or friend?. #epilepsyawareness #seizures
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4 weeks to go until the #30for30 Challenge!. Choose your own fundraising challenge and repeat it for every day in September, or 30 times in a row, or simply donate £30 in support of our 30th anniversary. Get brainstorming and sign up for your 30 for 30:
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Happy World Wide Web Day! 🌐. Last year, we launched our new SUDEP Action website to better reach those who need specialist support, information about epilepsy safety and access to fundraising. Explore today: . #SUDEP #epilepsy #WorldWideWebDay
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Data relating to #SUDEP deaths in adults and older adolescents from our Epilepsy Deaths Register (EDR) was presented at the 11th Congress of the @EANeurology in Helsinki: Report an #epilepsy-related death today:
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Take to the skies for SUDEP Action!. Challenge yourself with a skydive in support of our work with the #epilepsy community – there is a booking deposit of £70 and a fundraising minimum of £325 to raise before you jump 🪂. Book today:
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