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SUDEP Action Profile
SUDEP Action

@SudepAction

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Following
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Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]

Wantage, Oxfordshire
Joined December 2009
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@SudepAction
SUDEP Action
16 hours
We have info about the epilepsy risks facing younger people on our website, including the move from paediatric to adult services: . #internationalyouthday #epilepsyawareness
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@SudepAction
SUDEP Action
20 hours
The Epilepsy Research Institute’s 2025–26 Grant Round is officially open for preliminary applications! @EpilepsyInst & SUDEP Action Emerging Leader Fellowship – up to £300,000 over 1–4 years for research into #SUDEP & preventable #epilepsy deaths.
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@SudepAction
SUDEP Action
2 days
We can help you find answers and support you through the processes and investigations that happen after a sudden death. Call our team on 01235 772852 or email support@sudep.org . #SUDEP #epilepsy
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@SudepAction
SUDEP Action
5 days
Could you perform a task 30 times in one sitting?. This September, join us in support of our 30th anniversary and take on your own fundraising challenge. Choose your challenge and repeat it 30 times in a row. Sign up today: . #SUDEP #epilepsy #30for30
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@SudepAction
SUDEP Action
5 days
The Charlie Card reminds health professionals of their legal responsibilities to provide emergency meds in a crisis. Charlie Marriage was unable to access his medication when he needed it & subsequently died of SUDEP in 2021. @IPAPharmacy @ESNA_epilepsy.
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@SudepAction
SUDEP Action
6 days
SAVE THE DATE: SUDEP Action Day is on Wednesday October 15th and the theme for this year is SUDEP: Break Down Barriers. More info to follow
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@SudepAction
SUDEP Action
6 days
Take on a 10K for SUDEP Action, like Paul Maven:. “I ran the Leeds 10k for my lovely brother-in-law James, who lost his life last year whilst working away from home. He was such a lovely man who everyone loved. He left us far too young.”. Please email fundraising@sudep.org 🏃‍♀️ 🏃‍♂️
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@SudepAction
SUDEP Action
7 days
“Michael was 24 when he died. He was a quiet lad whose life was only just starting to improve and flourish.”. Read Michael’s story: If you’d like to share your story, please email Pierce at info@sudep.org . #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
7 days
Could you complete a 30-day challenge this September?. This September, join us in support of our 30th anniversary and take on your own fundraising challenge. Choose your challenge and repeat it for every day in September. Get brainstorming: . #30for30
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@SudepAction
SUDEP Action
8 days
“I wanted to continue to support the charity, even in a small way to ensure many others can receive help and overall build awareness of epilepsy as it is still very much overlooked as a serious condition.” (Ciara) . Become a regular giver today: #epilepsy
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@SudepAction
SUDEP Action
8 days
Returning home from uni for the summer?. It’s important to keep on track with your medication. If you’re worried about a change in your routine, why not create a reminder on your phone or share your medication schedule with a family member or friend?. #epilepsyawareness #seizures
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@SudepAction
SUDEP Action
9 days
4 weeks to go until the #30for30 Challenge!. Choose your own fundraising challenge and repeat it for every day in September, or 30 times in a row, or simply donate £30 in support of our 30th anniversary. Get brainstorming and sign up for your 30 for 30:
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@SudepAction
SUDEP Action
9 days
Do you have questions following the death of someone loved, who was lost to epilepsy?. Call our team on 01235 772852 or email support@sudep.org. #SUDEP #epilepsy
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@SudepAction
SUDEP Action
12 days
Well done to Rob Sayer who completed the 2025 Saucony London 10K in memory of Becky Scrivens, raising £750. A special thank you to Roger and Sandie Scrivens who went to cheer him on!. If you’d like to run for SUDEP Action, head to: . #SUDEP #epilepsy ==
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@SudepAction
SUDEP Action
12 days
Happy World Wide Web Day! 🌐. Last year, we launched our new SUDEP Action website to better reach those who need specialist support, information about epilepsy safety and access to fundraising. Explore today: . #SUDEP #epilepsy #WorldWideWebDay
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@SudepAction
SUDEP Action
13 days
“Jasmine was a beautiful girl inside and out…She was the most kind and caring daughter”. Forty-one people ascended Mount Snowdon raising over £6,000 in memory of Jasmine MacArthur who died due to #epilepsy in March at just 16 years old. #snowdon #SUDEP
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@SudepAction
SUDEP Action
13 days
Register today for the 30 for 30 Challenge!. This September, join us in support of our 30th anniversary and take on your own fundraising challenge. Choose your challenge and repeat it for every day in September, or 30 times in a row, or simply donate £30:
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@SudepAction
SUDEP Action
14 days
Data relating to #SUDEP deaths in adults and older adolescents from our Epilepsy Deaths Register (EDR) was presented at the 11th Congress of the @EANeurology in Helsinki: Report an #epilepsy-related death today:
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@SudepAction
SUDEP Action
14 days
Take to the skies for SUDEP Action!. Challenge yourself with a skydive in support of our work with the #epilepsy community – there is a booking deposit of £70 and a fundraising minimum of £325 to raise before you jump 🪂. Book today:
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@SudepAction
SUDEP Action
15 days
Support FAQ: Do I have to pay to get support?. Our support service is free to ensure it’s as accessible as possible to anyone in need. Donations to the charity to aid their ongoing work are welcome. Find out more at: #SUDEP #epilepsy
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