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SUDEP Action Profile
SUDEP Action

@SudepAction

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Following
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Statuses
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Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]

Wantage, Oxfordshire
Joined December 2009
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@SudepAction
SUDEP Action
5 hours
A huge thank you to everyone who has completed their #MyWayto5K challenges for #SUDEPActionDay2025 already! 🍂 There is still time to sign up if you haven’t already done so: https://t.co/2jYViwbxwB #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
11 hours
Our bereavement service is confidential, and support is tailored to your needs. Talk to our support team today by calling 01235 772852 or emailing support@sudep.org #SUDEP #epilepsy grief
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@SudepAction
SUDEP Action
3 days
Well done to Steve Boodhun, alongside Laura, Caroline, Sophie, Rachel and Paul, who took on the Yorkshire Three Peaks Challenge in memory of Sarah Pearmain. They smashed their fundraising target, raising a total of £2,196! “She was so much more than the thing that killed her."
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@SudepAction
SUDEP Action
4 days
Amber tragically died of SUDEP in April 2023, aged 22. After her inquest, the Coroner issued a Prevention of Future Deaths Report to the Health Secretary, urging better awareness of SUDEP risks among epilepsy patients. @wesstreeting #SUDEP #epilepsy #epilepsyawareness
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@Tesla
Tesla
14 days
Teslas have the lowest maintenance & repair costs of any brand
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@SudepAction
SUDEP Action
4 days
If you’ve lost someone to epilepsy, our coffee clubs are a calm space to connect with others who understand. Over a cup of tea or coffee, you can share memories and stories and know you’re among people who truly “get it.” 💜 Find your local Coffee Club: https://t.co/SkQSB6ukhF
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@SudepAction
SUDEP Action
4 days
Join Catherine Cornibert and rising comedians for a special night of comedy to raise funds in memory of Khamaali. 📅 Sunday 30th Nov 📍 Grand Junction Arms, London NW10 7AD Get tickets here: https://t.co/UxBuvBtxBu Donate: https://t.co/qcjwzWTfwz #SUDEP #epilepsy
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@SudepAction
SUDEP Action
5 days
Join us in the #MyWayto5K challenge and help shine a light on SUDEP and epilepsy risks. Run, walk, roll, or move your way - every step counts. Sign up today: https://t.co/YTyG5rbdn9 #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
5 days
“He certainly lived life to the full. I think it inspired a lot of people to do the same. He's left a massive impact on a lot of us.” Abigail Birtles, Charlotte Templeman and Kieron Parry organised GoodieFest in memory of Ryan Goodman raising over £3,000: https://t.co/e7qNhlA6cJ
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@SudepAction
SUDEP Action
6 days
“Kaylee was more than her diagnosis. She was light in its purest form, teaching compassion, patience, strength, and unconditional love.” Read Kaylee’s story: https://t.co/OF0fEVI2UG #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
6 days
Missed #SUDEPActionDay2025? This year, we reached over 40 countries in our mission to #BREAKDOWNBARRIERS around information that people with epilepsy, or those bereaved by it, should have access to. #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
6 days
Well done to those taking on #MyWayto5K this year! There is still time to register before the end of the month: https://t.co/YTyG5rbdn9 Do your part in raising vital awareness of SUDEP and epilepsy risks this October. 🧡 #SUDEP #epilepsy #epilepsyawareness
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@p4sc4lh
p4sc4l
7 hours
Quote: "NETHERLANDS: Two Members of Parliament from the far-right PVV party—Maikel Boon and Patrick Crijns—used AI to generate fake, hyperrealistic images of political rival Frans Timmermans... These manipulated images portrayed Timmermans in degrading or incriminating situations
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@SudepAction
SUDEP Action
7 days
Raising awareness continues even after #SUDEPActionDay2025 You can still get involved by continuing to share our messages and spreading the word to raise #epilepsyawareness. Explore our website to find out more about our work: https://t.co/12H0Soaqgf #SUDEP #epilepsy
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@SudepAction
SUDEP Action
7 days
I try and cope the best I can But I'm missing you so much If I could only see you And once more feel your touch. ("You’ve Just Walked on Ahead of Me" by Joyce Grenfell) Get support after an epilepsy-related death: call 01235 772852 or email support@sudep.org #SUDEP #epilepsy
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@SudepAction
SUDEP Action
10 days
Parents & carers — our “Live well with epilepsy” guide is packed with practical tips to support your loved one confidently & safely. 📄 Download your free copy: https://t.co/B6LfAN4qNz #SUDEP #epilepsy #epilepsyawareness #seizures
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@SudepAction
SUDEP Action
11 days
Take on your own #MyWayto5K challenge and honour the memories of those lost to epilepsy while raising vital awareness and funds to help save lives. Sign up today: https://t.co/YTyG5rbdn9 #epilepsy #epilepsyawareness #SUDEP
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@SudepAction
SUDEP Action
11 days
Businesses, fundraisers, and representatives of SUDEP Action came together for #SUDEPActionDay2025. At our London event, four of the five original charity founders had the opportunity to reunite - Catherine Brookes, Sue Kelk, Sheila Pring and Jane Hanna. #SUDEP #epilepsy
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@SudepAction
SUDEP Action
11 days
🚐 Win Tia's home on wheels — built in memory of her uncle Brett. 💜 5% of all proceeds go to SUDEP Action, helping fund lifesaving epilepsy work & support grieving families. Enter today 👉 https://t.co/d1nmWK1jtH #SUDEP #epilepsy #epilepsyawareness #vanlife
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@SudepAction
SUDEP Action
12 days
The Charlie Card reminds health professionals of their legal responsibilities to provide emergency medication in a crisis. Charlie Marriage was unable to obtain access to his medication when he needed it. He subsequently died of #SUDEP in 2021. https://t.co/riEUObYPh1
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@SudepAction
SUDEP Action
12 days
Thank you to everyone for getting involved in #SUDEPActionDay2025 🧡 Everyone who has taken part this year has helped #BREAKDOWNBARRIERS around important info about epilepsy risks, safety and #SUDEP. We hope to have your support again next year. #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
12 days
Regular check-ins with EpSMon can highlight when its time to speak with your GP, it can also help identify risks that could lead to #seizures. Download today and start your safer #epilepsy journey. Search “EpSMon” on the App Store. #SUDEP #epilepsyawareness #SUDEPActionDay2025
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@AmericaInvests
American Investment Council
5 days
🧑🏽‍🚒 “If you passed a teacher or firefighter today, odds are their pension is backed by private capital.” —Will Dunham. Private investments drive strong returns—and 401(k) savers deserve the same access.
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