Stargardt's Connected
@StargardtsC
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Raising awareness, Giving support, Seeking a cure #Stargardts | Please capitalise each word in hashtags and use image descriptions #Accessible #Inclusive
London, England
Joined July 2018
Today on @rarediseaseday our CE @bhavna_tailor, has received today's @10DowningStreet @RishiSunak's Point Of Light award, recognising her outstanding work to help build a community for all those affected by #Stargardt disease. We are so proud of you! 🎉 👏
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Bhavna Tailor is fundraising for Stargardt's Connected. Please support us so we can continue to raise awareness, support our community and seek a cure for #Stargardt
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join the @StargardtsC zoom on Saturday, 3 February at 14.00 GMT (UK Time); 9.00 EST; 22.00 AWST to hear from #EmmyAward winning actress Ellen Gould who has Stargardt and is releasing a film about people with #Stargardt
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Thanks @NSTherapeutics for your STARLIGHT trial for #Stargardt.
Thank you @ModernRetina and Dr. Allen Ho for sharing results from our STARLIGHT trial of MCO-010 for #Stargardtdisease #retina #ophthalmology Visit for more info.
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Always so good to hear about novel treatments such as the MCO-010 for #Stargardt.
MCO-010 is a novel adeno-associated virus (AAV2)-delivered optogenetic gene therapy for treatment of severe vision loss in patients with Stargardt disease. Read more:
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Our fundraising calendar is back! You can now order the 2024 calendar featuring photos of animals — all taken by people who have Stargardt’s Disease. All proceeds go directly to raising awareness, providing support and seeking a cure.
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Thank you @Eyesonresearch for highlighting the role of support to people with #EyeConditions and inviting our fabulous CEO and founder of @StargardtsC to talk about #Stargardts on your podcast.
Have you heard of family support groups? These are instrumental in providing guidance to families affected with diseases, particularly rare disorders. Listen below to the CEO of the mighty @StargardtsC! Special episode now live!. #Science #podcast.
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Our very own Bhavna Tailor, founder of @StargardtsC talks about #Stargardt on the @Eyesonresearch podcast: Unsung Heroes: Charities and Family Support Groups
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There is still time to enter your photo into the 2024 stargardt calendar competition. A great way to raise money for #Stargardts, show off your animal photography skills and have your photo in a calendar all over the world! .
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Register and join the Stargardt's Connected zoom on Saturday 9 September at 12 pm BST. ReVision Therapeutics will be attending to talk about their pre-clinical trials as they work towards developing a treatment fort #Stargardts .
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Don't forget to enter our 2024 #Stargardt #Calendar #Competition. Were would love to see #photos from around the world. Entries Inn by 31 August.
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Exciting #familyday #FamilyFun being held jointly between #VICTA @VICTAUK and Stargardts Connected for 8-17 year olds #visualImpairment and their families on 23 September.
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RT @GoTak96843541: AAOから下記がリリースされました🇺🇸.↓.眼底自家蛍光はシュタルガルト病の予後価値を示す.Fundus autofluorescence shows prognostic value for Stargardt disease.https….
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RT @omaleentje: Vreselijk verdrietig. Dit is een student van mijn dochter . Lotte (21) heeft de ziekte van Stargardt en wordt blind: ‘Het m….
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Such exciting times for our #Stargardt community and thank you @belite_bio for your work on #Tinlarebant. Waiting in excitement for the next phase of trials.
💡Did you know? Tinlarebant has been granted Fast Track Designation and Rare Pediatric Disease Designation in the U.S., and Orphan Drug Designation in both the U.S. and Europe for STGD1. #BeliteBio #FastTrack #STGD1 #Tinlarebant.
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Mel Tollman is #fundraising for @StargardtsC by undertaking a #SprintTriathlon on July 6. Read his story and please donate. huge thank you to #TeamTollman and we wish them all the very best. #YouCanAchieveAnything #Winners #BraveAndDedicated
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@StargardtsC Calendar Photo Competition is Back! This time the theme is ANIMALS! Information at:.•Submit entries by Thursday 31st August 2023. Calendars will be sold on our website with all proceeds going to Stargardt’s Connected.
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For any #Stargardt in or near #London UK, Come join us for our Annual Picnic in the Park on Saturday 5th August, 12-4 pm at the Parade Ground, #HydePark . Bring a picnic and meet others with #Stargardt. Details on our website
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A #fabulous #artist. How amazing our #Stargardt community is. #ReachForTheStars #WeCanAchieveAnything.
#PortfolioDay2022 #PortfolioDay .Hello, I’m Tunku or Sinistral (alias). I’m an abstract artist with Stargardts. My work is an expression of my imagination and experiences as a blind man with elements of psychedelia and symbolism. Here are my works.
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