prunus spinosa
@SpinosaPrunus
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mom, social worker, for children's rights, democracy, diversity, human rights and tolerance. I love traveling, music, reading, yoga and spn
Deutschland
Joined May 2016
Here is the Englisch translation for our song "The wolf". A song sang by my kid with #longCovid #Mecfs for all the kids out there with this illness. I hope your #kids like it. We all need some hope for our kids. https://t.co/wX8ux0PCbE
#millionsmissing #nichtgenesen
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Another sign benfotiamin and TTFD seem to help my kid imensely with #mecfs #longcovid: I just caught my kid on inliners in our basement. 😀
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Just came home to hear this.. My #mecfs #lomgcovidkid playing the violin. Only #mecfs parents know what that does to me. #hope ♥️♥️♥️♥️♥️♥️ She said with the TTFD her head isnt booming like usually
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Gott im Himmel, lass diese Ankündugung wahr werden! 🙏🙏🙏 https://t.co/ITtF8j7Btr
Hoffnung für #LongCovid- & #MECFS-Betroffene: Eine halbe Milliarde Euro für die Nationale Dekade gegen Postinfektiöse Erkrankungen! U.a. für klinische Studien, Erhebung von Genomdaten, KI-Auswertung und Vernetzung von Forschung. 👉Mehr dazu: https://t.co/mNVnnrpq0q
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Already sold 20 cards right when I put them in the shop of the yoga studio. Gonna have to print more for our fundraiser. #mecfs #mecfskids #fundraiser
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„Die vermutlich verschiedenen Krankheitsmechanismen seien inzwischen relativ gut verstanden […] Medikamente deutscher Unternehmen könnten bis zur Zulassung gebracht werden, hier lasse sich ein großer Markt erschließen“ @DoroBaer @bmftr_bund
https://t.co/OxRPHLCqn8
aerzteblatt.de
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My #mecfs Kid / #longcovid Kid hast designed Christmas cards. will try to sell them (80 cards) in our local yoga studio. A little pocket money for art supplies to make more art for next fundraiser & 50% will be donated to the @MECFSResearch 🤞 that people want to buy the
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Thrombozyts aggregation went down from level 4 (worst) to 1, microclots went down from 3-4 to 1 (best) & for endothelium damage was 3 and now they couldn't find any anymore. #realtherapies #mecfs #longCovid
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We soon can try to give less anticoagulants (🤞 that that works), will continue IVIG and started benfotamin. Hoping benfotamin will help with neurological problems. #longcovidkids
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Did another help apheresis & microclots blood work with our #longCovid kid on Wednesday. Friday the doc called to tell me new blood works look great. Oxigen sat. Went up to 69 (started at 17 in spring). #mecfs
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Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition (Derrick Lonsdale and Chandler Marrs) 🧵 of quotes and bits, summarized https://t.co/QcA13J4SV3
Core of orthomolecular medicine: "individual being overwhelmed by the nature of the attack, whether it was from infection, trauma, or the environment [...] would be expected to worsen the situation [...] by exposing or exacerbating the symptoms related to the defective enzyme"
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I made (with help of chat gpt) an overview transcript for those who are too sick to watch the YouTube video. #mecfs #longCovid #thiamine #bvitamins
https://t.co/zK2Zeepba1
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found a great detailed lecture on B1 Thiamin deficiency. I highly recommend it to anyone with #longcovid #mecfs #postinfectiousdisease or their caretakers. https://t.co/0OtKyRBt1C
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3/ Watch the full video exploring how UCSF researchers, with the support of PolyBio, have been able to make enormous strides in Long Covid research:
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Worth watching for anyone with #mecfs. We should all check If a B1 deficiency makes the symptoms worse https://t.co/XspZk4PMri
@dr_ericberg
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Just got the news from the teacher that she passed the big math test with a decent grade. She is a smart kid. Just wished she was well enough to actually go to school. #lomgCovod #mecfs kids have it so difficult
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Very interesting. If you consider COVID can be such a stressor that might overrun the system, it explains why B1 helps some with #longCovid #mecfs
Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition (Derrick Lonsdale and Chandler Marrs) 🧵 of quotes and bits, summarized https://t.co/QcA13J4SV3
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"causes for B1 deficiency include...low stomach acid". My kid has that problem since COVID...
Vitamin B1 deficiency can mimic many health problems. It affects energy, nerves, digestion, sleep, and even heart health. Causes of a vitamin B1 deficiency include sugar, alcohol, aging, low stomach acid, and more. See how to spot the signs. https://t.co/Xup36X2ah1
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Thiamine (B1) Some interesting facts from LibreTexts. Thiamine is especially important in glucose metabolism. It acts as a cofactor for enzymes that break down glucose for energy production. Additionally, thiamine plays a role in the synthesis of ribose from glucose and is
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