
Fibromyalgia - What I Know Is Real
@SoIsFibroReal
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Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #Bluesky@soisfibroreal
Canada
Joined February 2017
Taking back our #POWER. "The - So Is #Fibromyalgia Real? What I Know Is Real - Blog" …#fibrowarrior #WhatIKnowIsReal.
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RT @APainPrincess: “When you have #Fibromyalgia, it’s a monthly, weekly—sometimes daily—thing, getting knocked down… Boom. A flare hits… im….
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RT @AChVoice: “I turn them down and they dump on me (yes, even when I’ve explained my #fibromyalgia situation) and the #stress from that ti….
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"It’s ALL mind over matter(!!) to me…it’s ALL using my willpower to overcome my physical problems…my INCREDIBLY STRONG willpower over my EXCRUCIATINGLY DIFFICULT fibromyalgia physical problems." #WhatIKnowIsReal
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#Stress… "It’s the very first thing I learned about my #fibromyalgia. I certainly didn’t know then that I had already probably pinpointed the most important thing I may ever need to know about my fibromyalgia." #WhatIKnowIsReal
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"Well, I’ve not only been functioning throughout the last fifteen years (22 now!) with #fibromyalgia…I’m gradually improving…slowly, steadily, but unmistakably…improving." #WhatIKnowIsReal
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#Fibromyalgia and staying positive. "Because if I’m being honest, truly honest with myself…isn’t it, more often than not, really more about just trying to NOT be depressed?” #Depression #WhatIKnowIsReal
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#Fibromyalgia . "But something I’ve learned to consider and to be careful of, is that my temporary fix is not setting my overall fight back…that I am not winning a battle at the expense of losing the war…at the expense of the journey." #WhatIKnowIsReal
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"For now, I guess I realize that there is much I can do to live and function with fibro fog, lots by simply adapting, often instinctively, but with some strategic compensating as well." #WhatIKnowIsReal
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“Everything #fibromyalgia revolves around #sleep…got a bit…not enough…need more…need too much…can’t sleep…can’t stay awake…can’t wait to sleep…it’s never enough…” #WhatIKnowIsReal
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"So I’m thinking, possibly my trial & error experiences over the last decade and a half might shed some light for someone else if they are pondering the question of #medication, whether they’re already taking medications to combat #fibromyalgia or not."
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#Fibromyalgia and #MyBrain …"I saw a BIGGER PICTURE…what SEEMED to be happening in my body and why I SEEMED to need to do these "good things".” #WhatIKnowIsReal
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“Yes, #fibromyalgia has been the mother(!) of all quarterbacking my own health for me." #WhatIKnowIsReal
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"I just couldn’t do what I used to do with such limited available “good” time and energy each day…remember, a certain amount of time when you have #fibromyalgia is just “survival”, trying to feel okay enough to function at the most basic level."
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"…have I overdone it…lost control…pushed too far…can I “get back”?.This is my #fibromyalgia…at it’s worst…the “flare up” that everyone dreads…a really bad flare up." #WhatIKnowIsReal
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"Is it just a lucky coincidence that as I work on improving all these lifestyle choices that are good for my body and brain, my fibromyalgia is slowly and steadily improving as well?" #WhatIKnowIsReal
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"Because really, it seems to me that #fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it!" #WhatIKnowIsReal
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#Triggers "I know them well. & I‘ve learned to live in a way to avoid them as much as possible & minimize them as much as possible, so much so that flares are pretty much a thing of the past by now; I can’t remember the last time I had a significant one."
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"Each of us with #fibromyalgia has to make our own choice…to be whatever it is that helps us survive." #WhatIKnowIsReal
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"I wanted to share some specifics of my experiences with working out over the years, because whatever someone’s level of fitness or type of #exercise chosen, we may be encountering similar things and others may be able to draw from my experiences."
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"What I know is real is that #fibromyalgia is not easy regardless of what path we take, but we CAN find our own way to have some CONTROL & some POWER over it….I know because I have…& I absolutely believe others can too…like maybe YOU." #WhatIKnowIsReal
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