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Fibromyalgia - What I Know Is Real Profile
Fibromyalgia - What I Know Is Real

@SoIsFibroReal

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Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #Bluesky@soisfibroreal

Canada
Joined February 2017
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
8 years
Taking back our #POWER. "The - So Is #Fibromyalgia Real? What I Know Is Real - Blog" …#fibrowarrior #WhatIKnowIsReal.
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
3 days
RT @APainPrincess: “When you have #Fibromyalgia, it’s a monthly, weekly—sometimes daily—thing, getting knocked down… Boom. A flare hits… im….
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
11 days
RT @AChVoice: “I turn them down and they dump on me (yes, even when I’ve explained my #fibromyalgia situation) and the #stress from that ti….
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
30 days
"It’s ALL mind over matter(!!) to me…it’s ALL using my willpower to overcome my physical problems…my INCREDIBLY STRONG willpower over my EXCRUCIATINGLY DIFFICULT fibromyalgia physical problems." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
30 days
#Stress… "It’s the very first thing I learned about my #fibromyalgia. I certainly didn’t know then that I had already probably pinpointed the most important thing I may ever need to know about my fibromyalgia." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
"Well, I’ve not only been functioning throughout the last fifteen years (22 now!) with #fibromyalgia…I’m gradually improving…slowly, steadily, but unmistakably…improving." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
#Fibromyalgia and staying positive. "Because if I’m being honest, truly honest with myself…isn’t it, more often than not, really more about just trying to NOT be depressed?” #Depression #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
#Fibromyalgia . "But something I’ve learned to consider and to be careful of, is that my temporary fix is not setting my overall fight back…that I am not winning a battle at the expense of losing the war…at the expense of the journey." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
"For now, I guess I realize that there is much I can do to live and function with fibro fog, lots by simply adapting, often instinctively, but with some strategic compensating as well." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
“Everything #fibromyalgia revolves around #sleep…got a bit…not enough…need more…need too much…can’t sleep…can’t stay awake…can’t wait to sleep…it’s never enough…” #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
"So I’m thinking, possibly my trial & error experiences over the last decade and a half might shed some light for someone else if they are pondering the question of #medication, whether they’re already taking medications to combat #fibromyalgia or not."
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
#Fibromyalgia and #MyBrain …"I saw a BIGGER PICTURE…what SEEMED to be happening in my body and why I SEEMED to need to do these "good things".” #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
1 month
“Yes, #fibromyalgia has been the mother(!) of all quarterbacking my own health for me." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"I just couldn’t do what I used to do with such limited available “good” time and energy each day…remember, a certain amount of time when you have #fibromyalgia is just “survival”, trying to feel okay enough to function at the most basic level."
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"…have I overdone it…lost control…pushed too far…can I “get back”?.This is my #fibromyalgia…at it’s worst…the “flare up” that everyone dreads…a really bad flare up." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"Is it just a lucky coincidence that as I work on improving all these lifestyle choices that are good for my body and brain, my fibromyalgia is slowly and steadily improving as well?" #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"Because really, it seems to me that #fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it!" #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
#Triggers "I know them well. & I‘ve learned to live in a way to avoid them as much as possible & minimize them as much as possible, so much so that flares are pretty much a thing of the past by now; I can’t remember the last time I had a significant one."
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"Each of us with #fibromyalgia has to make our own choice…to be whatever it is that helps us survive." #WhatIKnowIsReal
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"I wanted to share some specifics of my experiences with working out over the years, because whatever someone’s level of fitness or type of #exercise chosen, we may be encountering similar things and others may be able to draw from my experiences."
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@SoIsFibroReal
Fibromyalgia - What I Know Is Real
2 months
"What I know is real is that #fibromyalgia is not easy regardless of what path we take, but we CAN find our own way to have some CONTROL & some POWER over it….I know because I have…& I absolutely believe others can too…like maybe YOU." #WhatIKnowIsReal
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