Julie Flygare
@RemRunner
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President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.
Los Angeles, CA
Joined January 2010
Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble:
fastcompany.com
The network's new comedy series features an exaggerated depiction of the neurological condition for laughs. Experts say that could delay real diagnoses.
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Can we reach 2000 signers? With 1 in 2,000 people living with narcolepsy, it would be SO meaningful, especially since the majority of people living with narcolepsy are UNDIAGNOSED so unaware of what they are up against.
change.org
Urge NBC to ensure accurate portrayal of narcolepsy in Stumble
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What does #narcolepsy look like? Spoiler alert: not like this! @nbc’s new show #Stumble repeats a tired Hollywood trick — the plank fall + thud. Please share my analysis and sign our petition: https://t.co/pHa5PEDlkl
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Can we reach 1000 signers in 48 hours? Please sign this petition to show Hollywood that the #narcolepsy community is strong and deeply concerned about inaccurate portrayals of this serious neurological condition. Thank you for your support. SIGN AND SHARE:
change.org
Urge NBC to ensure accurate portrayal of narcolepsy in Stumble
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Dear Hollywood: We are tired of the tired trope. Please sign and share this -- as #narcolepsy is a fascinating, complex condition, and NBC now has the opportunity to educate millions and dismantle long-held misunderstanding and stigma through responsible, informed storytelling!
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: https://t.co/j7UeKRblSM
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We're live!! Join us to hear Maha Awad's #Narcolepsy Story Sharing Event! https://t.co/wmYpmtdEXA via @YouTube
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September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale. 🏅 Today, we honor the incredible #narcolepsy community. Learn more: https://t.co/RbRgfThTXL
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Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: https://t.co/RbRgfThTXL
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Yes I canceled @DisneyPlus right away.
Would suggest we all consider this. Cancel Disney and ABC until they reverse this
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First Colbert, now Kimmel. Last-minute settlements, secret side deals, multi-billion dollar mergers pending Donald Trump's approval. Trump silencing free speech stifles our democracy. It sure looks like giant media companies are enabling his authoritarianism.
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"He's so personable & it's just refreshing to see that there's a human that is willing to put others before himself & also understand that this isn't about party-line politics. It's about people." @RobSandIA in Davenport last night. #IAgov
qctimes.com
Democratic candidate for Iowa governor Rob Sand held a town hall event in Davenport Monday evening.
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New study this week again confirms: permanent Standard Time—not permanent Daylight Saving Time—is best.
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About last week, WOW! What an experience! Honored to represent @project_sleep, share my personal and professional experience and attend historic orexin agonist presentations!
Reflecting on an amazing #WorldSleep2025 in Singapore! 🌏 Over 4,000 researchers & clinicians gathered — and we were thrilled to share patient voices + witness historic #narcolepsy orexin agonist trial results from @TakedaPharma & @Alkermes. The future of sleep is bright!💙
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🇸🇬 Singapore!! #WorldSleep2025 @worldsleepsociety kicked off Saturday. Grateful to share my OG #narcolepsy presentation during a fantastic course and to represent @project_sleep. See our involvement: https://t.co/eKK7vYzzje
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🎥 Tonight’s the night! Join us at 6:30 PM EDT for a LIVE webcast on narcolepsy & IH—tailored for NPs & PAs in sleep, cardio, neuro & pulm. 🎓 Register FREE for #CME/#CE credit: https://t.co/8FXogASxHS
#SleepMedicine #LiveCME #Narcolepsy @RemRunner
cmeoutfitters.com
Clinicians face considerable hurdles when diagnosing and managing narcolepsy and idiopathic hypersomnia (IH), largely due to overlapping symptoms, insufficient formal training in sleep medicine, and...
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Edgar Castro Tello's Sleep Apnea Story Sharing Event https://t.co/6cy5CQq7fN via @YouTube @project_sleep
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⚠️ Treating IH or narcolepsy? Your therapy choice could impact CV risk. Learn more at our LIVE webcast 8/20 @ 6:30 PM EDT 🎓 Earn FREE #CME/#CE: https://t.co/8FXogASxHS
#SleepDisorders #AdvancedPractice @RemRunner
cmeoutfitters.com
Clinicians face considerable hurdles when diagnosing and managing narcolepsy and idiopathic hypersomnia (IH), largely due to overlapping symptoms, insufficient formal training in sleep medicine, and...
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Trump’s use of the military and federal law enforcement to try to intimidate his political opponents is yet another dangerous step towards authoritarianism. This is an attempt to advance a playbook from the despots he admires in Russia and North Korea.
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