Recordati Rare Diseases
@RecordatiD
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At Recordati Rare Diseases, we focus on the few - those affected by rare diseases. Social media guidelines: https://t.co/PEjh3QzOIW
Puteaux, France
Joined April 2020
📍 Ne manquez pas ce moment fort de la SFE2025 ! 📅 Jeudi 25 septembre 2025 de 18h à 19h30 👨‍⚕️👩‍⚕️ Le symposium réunira des experts pour explorer la prise en charge globale et la qualité de vie des patients dans l’acromégalie et le syndrome de Cushing. #Symposium #Maladiesrares #SFE
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Dans le cadre du congrès de la SFE, le jeudi 25/09 à 18h 🔹 Au-delà du cortisol : quel impact du syndrome de Cushing sur la qualité de vie ? 🗣️ Dr. Nicolas Scheyer (Nancy) #Symposium #Maladiesrares #SFE #Cushing
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Dans le cadre du congrès de la SFE, le jeudi 25/09 à 18h 🔹 Qualité de vie du patient acromégale : Comment l’évaluer ? comment l’améliorer ? 🗣️ Dr. Bénédicte Decoudier (Reims) #Symposium #Maladiesrares #SFE #Acromégalie
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Dans le cadre du congrès de la SFE, le jeudi 25/09 à 18h 🔹Acromégalie : aller plus loin dans une prise en charge globale 🗣️ Pr. Bruno Vergès (Dijon) #Symposium #Maladiesrares #Acromégalie
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📢 Retrouvez-nous au symposium SFE 2025 de Recordati Rare Diseases "Prise en charge de l'acromégalie et du syndrome de Cushing : savoir aller au-delà des hormones” 📅 Le jeudi 25 septembre 2025 de 18h à 19h30 🎤 Modéré par Pr. Jacques Young #Symposium #Maladiesrares #SFE
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On Rare Disease Day, we are proud to share our Rare Disease Patient Community Charter, the result of a yearlong collaboration to ensure patients remain central to our planning, thinking, and actions. Developed with our “patient ambassadors” across Europe and beyond, and with
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Ahead of @rarediseaseday on February 28th, we’re sharing the story of Reza, a 13-year-old living with cystinosis - a rare condition that causes the amino acid cystine to build up in organs like the kidneys and eyes. Despite the challenges, Reza is full of optimism and big
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Pituitary Awareness Month begins! Join us in raising awareness about the crucial role of the pituitary gland and rare pituitary disorders. #ThisCushing initiative, Recordati Rare Diseases is sharing scientific content, patient stories and expert insights throughout October to
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Looking ahead to the Pituitary Awareness Month coming up in October, Recordati Rare Diseases highlights #ThisCushing, an awareness initiative that aims to provide healthcare professionals and patients with valuable resources to increase their understanding of Cushing's disease
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Today, we join the global community in recognizing World Lymphoma Awareness Day, a day dedicated to raising awareness about lymphoma and supporting patients and families affected by this challenging disease. With over 1 million people living with lymphoma worldwide, it’s
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We are thrilled to announce our participation in the upcoming #SSIEM2024 Congress in Porto from September 3-6! This event brings together experts and innovators in the field of inherited metabolic diseases, providing a platform for collaboration, learning, and advancing
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🎉 Congratulations to our team of 70 dedicated colleagues who participated in the "Enfants sans Cancer City" charity run, supporting the French patient association @ImagineforMargo ! By joining forces with Imagine for Margo, we help fund essential research that is crucial in the
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Tomorrow, a dedicated team of 70 colleagues from Recordati Rare Diseases will be participating in the Enfants sans Cancer City charity run in Paris la Défense! We are incredibly proud to support the association @ImagineforMargo in their efforts to combat pediatric cancer. Their
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Today is World Homocystinuras Awareness Day! Homocystinurias are a group of rare genetic disorders affecting how the body processes methionine, leading to elevated homocysteine levels in the blood. This can result in a range of health complications impacting the eyes,
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We’re excited to announce that Recordati Rare Diseases will be hosting a symposium at the SIOPE Congress, on Thurday 16 May, from 1 to 2 PM CET in Milan! Intended for healthcare professionals only, join us for an insightful discussion on "Real world clinical practice in
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As the curtains fall on this outstanding ECE edition in Sweden, we express our sincere gratitute to everyone who contributed to its success. 🙌 The opportunity to participate allowed us to connect with international dedicated attendees, fostering valuable conversations and
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🌟 Join Our satellite symposium! As an Healthcare Professional, would you like to learn more about the latest news about #CushingsSyndrome and #Acromegaly management? Look no further! Gain expert insights from Drs. Fleseriu, MK Biller, Reincke, and Esposito. 🗓️ When: Monday, 13
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Today is the opening of the European Congress of Endocrinology (ECE). At RRD we are proud to be part of this event with healthcare professionals. Meet us at our booth n°28! We will also share latest news on #Cushingssyndrome and #Acromegaly during our Satellite Symposium from
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We are excited to announce that Recordati Rare Diseases will be participating in the upcoming SIOPE Congress, organized by the European Society for Paediatric Oncology, from 13-17 May in Milan! This prestigious event for healthcare professionals brings together leading minds in
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At Recordati Rare Diseases, we’re thrilled to be part of the ECE Congress 2024 hold this year in Stockholm, Sweden from 11 – 14 May 2024, mark your calendars! 🗓️ 🔍 What’s in store? - Join us at Booth #28 to explore groundbreaking advancements in endocrinology. - Don’t miss
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