RareEndoERN Profile Banner
RareEndoERN Profile
RareEndoERN

@RareEndoERN

Followers
2K
Following
706
Media
444
Statuses
2K

#EuropeanReferenceNetwork Connecting care in the EU for patients with rare endocrine conditions.

Amsterdam, The Netherlands
Joined June 2017
Don't wanna be here? Send us removal request.
@RareEndoERN
RareEndoERN
2 years
Register now for this Endo-ERN endorsed event! Featuring many Endo-ERN experts the programme covers #hormonetherapy #registries and #transition in many conditions. Check out the full programme: #EndoERN #registries #endocrinology #raredisease
Tweet media one
0
0
1
@RareEndoERN
RareEndoERN
2 years
Last call for a super PhD position with Endo-ERN member Ghent University. This position is with the Basic and Translational Endocrinology (BaTE) and the deadline is Friday. #EndoERN #raredisease #endocrinology #eu4health #EUGlobalHealthStrategy
Tweet media one
0
0
1
@grok
Grok
19 days
Blazing-fast image creation – using just your voice. Try Grok Imagine.
284
565
3K
@RareEndoERN
RareEndoERN
2 years
Register now for our #raredisease webinar on Thursday! We are delighted to have Prof Henrik Falhammaar of #Karolinska Universitetssjukhuset. #EndoERN #endocrinology #endocrine #healthunion #eu4health #EUGlobalHealthStrategy #healthiertogether
Tweet media one
0
0
1
@RareEndoERN
RareEndoERN
2 years
The next chapter of #ERNs in progress in #Bilbao and Endo-ERN network members are there! Productive sessions about the sustainability of #ERNs including the implementation into the national healthcare systems. #EndoERN #raredisease #endocrinology #healthunion
Tweet media one
0
0
12
@RareEndoERN
RareEndoERN
2 years
Join @EJPRareDiseases for a groundbreaking 2-day face-to-face event that presents the culminating workshop in its series of capacity-building programs on biobanking. The free event will be held on Dec 13-14, 2023. 📝 Registration Deadline: Oct 23rd.
Tweet media one
0
0
0
@RareEndoERN
RareEndoERN
2 years
From October 9th to December 2nd, mentors and educators, experts in the field, will be available online to answer your questions and to support you during your journey in this @EJPRareDiseases online course. Take the opportunity to interact with them!.
Tweet media one
0
0
1
@RareEndoERN
RareEndoERN
2 years
Endo-ERN would like to highlight the upcoming 10th Alström Syndrome International Family Conference Scientific Symposium which will kick-off Wednesday in Baltimore, Maryland. #raredisease #endocrinology #rareconditions #ERNs #EuRRECa #EndoERN
Tweet media one
0
0
0
@RareEndoERN
RareEndoERN
2 years
We are at #ESPE! Visit the #EuRRECa and Endo-ERN booths on level 1. Our colleagues Mariya and Jacq are happy to help you with any of your registry queries. And Emily is available to help you with #yesCPMS. Don't forget the symposium tomorrow morning:
Tweet media one
0
1
5
@RareEndoERN
RareEndoERN
2 years
Did you subscribe to the @eurordis podcast #rareonair? There are so many topics of interest for the ERN community it is a must listen. Find on your favorite podcast platform of listen here: . #EndoERN #endocrinology #raredisease
0
1
2
@RareEndoERN
RareEndoERN
2 years
Save the date and register now for the next Endo-ERN webinar. We are delighted to have the expert speaker Prof Henrik Fahlhammar available to present this topic. Register now: #EndoERN #endocrine #rarediseases #education
Tweet media one
0
0
0
@RareEndoERN
RareEndoERN
2 years
The next episode of #rareontheair has dropped featuring Endo-ERN's very own Charlotte Beuzekom ERN eUROGEN 's Michelle Battye Brought to you by @eurordis don't forget to subscribe! Also available to listen here:
0
1
5
@RareEndoERN
RareEndoERN
2 years
Join @EJPRareDiseases at the Variant Prioritization and Enrichment for Rare Diseases Workshop.Don't miss this chance to dive into genomics for rare diseases! More information and registration here before 9 September:
Tweet media one
0
1
0
@RareEndoERN
RareEndoERN
2 years
Last call for registration for an informative webinar presented by Prof Claus Gravholt of the Dept. of Molecular Medicine, Aarhus University Hospital. Register now! #EndoERN #EuRRECa #klinefelter #rarediseases #endocrinology #ERNs
Tweet media one
0
0
0
@RareEndoERN
RareEndoERN
2 years
Just 30 days until this fantastic international in-person symposium. You can view the full programme for this #endorsed event. #EndoERN #raredisease #endocrinology #lipodystrophies #healthunion #eu4health #EUGlobalHealthStrategy
Tweet media one
0
0
2
@RareEndoERN
RareEndoERN
2 years
Register now! Check out the excellent programme featuring international experts on aspects of lipodystrophies and related conditions. #EndoERN #raredisease #endocrinology #lipodystrophies #healthunion #eu4health #EUGlobalHealthStrategy
Tweet media one
0
0
1
@RareEndoERN
RareEndoERN
2 years
Check out the programme for this #endorsed event coming up next month. A packed 2-days featuring international experts it should not be missed. #EndoERN #raredisease #endocrinology #lipodystrophies #healthunion #eu4health #EUGlobalHealthStrategy
Tweet media one
0
0
2
@RareEndoERN
RareEndoERN
2 years
Last call for the #RareBarometer! Give your opinion on newborn screening for rare disease. ⌛DEADLINE: Sunday, July 23: #EndoERN #screen4care #EURORDIS #rarebarometer #healthunion #eu4health #EUGlobalHealthStrategy
Tweet media one
0
1
2
@RareEndoERN
RareEndoERN
2 years
The #jobfairy has provided two excellent post-doc opportunities at Endo-ERN member IRCCS Istituto Auxologico Italiano in Milan. Check out the info including how to apply here:
Tweet media one
0
0
0
@RareEndoERN
RareEndoERN
2 years
The #jobfairy has provided two excellent post-doc opportunities at Endo-ERN member IRCCS Istituto Auxologico Italiano in Milan. Check out the info including how to apply here:
Tweet media one
0
0
0
@RareEndoERN
RareEndoERN
2 years
🧪🧪 Are you working in a lab? You are invited to participate in a survey exploring testosterone methodology in clinical units and laboratories throughout Europe. #EndoERN #raredisease #endocrinology #testosterone #EUGlobalHealthStrategy
Tweet media one
0
3
4