
RareEndoERN
@RareEndoERN
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#EuropeanReferenceNetwork Connecting care in the EU for patients with rare endocrine conditions.
Amsterdam, The Netherlands
Joined June 2017
Register now for this Endo-ERN endorsed event! Featuring many Endo-ERN experts the programme covers #hormonetherapy #registries and #transition in many conditions. Check out the full programme: #EndoERN #registries #endocrinology #raredisease
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Last call for a super PhD position with Endo-ERN member Ghent University. This position is with the Basic and Translational Endocrinology (BaTE) and the deadline is Friday. #EndoERN #raredisease #endocrinology #eu4health #EUGlobalHealthStrategy
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Register now for our #raredisease webinar on Thursday! We are delighted to have Prof Henrik Falhammaar of #Karolinska Universitetssjukhuset. #EndoERN #endocrinology #endocrine #healthunion #eu4health #EUGlobalHealthStrategy #healthiertogether
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The next chapter of #ERNs in progress in #Bilbao and Endo-ERN network members are there! Productive sessions about the sustainability of #ERNs including the implementation into the national healthcare systems. #EndoERN #raredisease #endocrinology #healthunion
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Join @EJPRareDiseases for a groundbreaking 2-day face-to-face event that presents the culminating workshop in its series of capacity-building programs on biobanking. The free event will be held on Dec 13-14, 2023. 📝 Registration Deadline: Oct 23rd.
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From October 9th to December 2nd, mentors and educators, experts in the field, will be available online to answer your questions and to support you during your journey in this @EJPRareDiseases online course. Take the opportunity to interact with them!.
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Endo-ERN would like to highlight the upcoming 10th Alström Syndrome International Family Conference Scientific Symposium which will kick-off Wednesday in Baltimore, Maryland. #raredisease #endocrinology #rareconditions #ERNs #EuRRECa #EndoERN
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Did you subscribe to the @eurordis podcast #rareonair? There are so many topics of interest for the ERN community it is a must listen. Find on your favorite podcast platform of listen here: . #EndoERN #endocrinology #raredisease
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Save the date and register now for the next Endo-ERN webinar. We are delighted to have the expert speaker Prof Henrik Fahlhammar available to present this topic. Register now: #EndoERN #endocrine #rarediseases #education
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The next episode of #rareontheair has dropped featuring Endo-ERN's very own Charlotte Beuzekom ERN eUROGEN 's Michelle Battye Brought to you by @eurordis don't forget to subscribe! Also available to listen here:
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Join @EJPRareDiseases at the Variant Prioritization and Enrichment for Rare Diseases Workshop.Don't miss this chance to dive into genomics for rare diseases! More information and registration here before 9 September:
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Last call for registration for an informative webinar presented by Prof Claus Gravholt of the Dept. of Molecular Medicine, Aarhus University Hospital. Register now! #EndoERN #EuRRECa #klinefelter #rarediseases #endocrinology #ERNs
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Just 30 days until this fantastic international in-person symposium. You can view the full programme for this #endorsed event. #EndoERN #raredisease #endocrinology #lipodystrophies #healthunion #eu4health #EUGlobalHealthStrategy
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Register now! Check out the excellent programme featuring international experts on aspects of lipodystrophies and related conditions. #EndoERN #raredisease #endocrinology #lipodystrophies #healthunion #eu4health #EUGlobalHealthStrategy
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Check out the programme for this #endorsed event coming up next month. A packed 2-days featuring international experts it should not be missed. #EndoERN #raredisease #endocrinology #lipodystrophies #healthunion #eu4health #EUGlobalHealthStrategy
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Last call for the #RareBarometer! Give your opinion on newborn screening for rare disease. ⌛DEADLINE: Sunday, July 23: #EndoERN #screen4care #EURORDIS #rarebarometer #healthunion #eu4health #EUGlobalHealthStrategy
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The #jobfairy has provided two excellent post-doc opportunities at Endo-ERN member IRCCS Istituto Auxologico Italiano in Milan. Check out the info including how to apply here:
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The #jobfairy has provided two excellent post-doc opportunities at Endo-ERN member IRCCS Istituto Auxologico Italiano in Milan. Check out the info including how to apply here:
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🧪🧪 Are you working in a lab? You are invited to participate in a survey exploring testosterone methodology in clinical units and laboratories throughout Europe. #EndoERN #raredisease #endocrinology #testosterone #EUGlobalHealthStrategy
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