Royal 💙Papworth Transplant Patient Group
@RPTPSG
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PATIENT run body providing information and support to, pre/post🫀and 🫁 Royal Papworth transplant patients. Views own, not necessarily of Hospital.
Cambridge, England
Joined February 2018
Hard to think of another transplant patient who did more for the entire @RoyalPapworth transplant community. An inspirational, kind and generous person. One of a kind. A legend. We will all miss you, Maggie. Rest in peace.
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We are heartbroken 💔 Getting the gift of more years does not diminish the pain of losing a truly wonderful person.
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Kath still getting airtime
The UK's leading hospices charity has exclusively shared figures with us which show centres across the country need to raise an extra £2 million a week to keep running due to the cost of living crisis. @ewither has been seeing how one centre in Hertfordshire is coping. #5News
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After six years, Friday marked @stephenposeynhs’s final day as our chief executive before joining @UHDBTrust. From the first day to the last, with so much achieved in between, thank you Stephen for your compassionate and collective leadership throughout 💙
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…..and all the more crushing when there’s a solution to hand and no good reason to deny us @evusheld4theuk #Evusheld4MentalHealth #EvusheldB4Winter
@DianeGi32807260 @maggie_erewash @Thomas_Waite @SteveBarclay @APPG_VGP @SteveBarclay at some point when you decided to enter politics you would’ve had a sense of public service and protecting the vulnerable so why are you completely silent on #Evusheld ??? Do something before more #CEV die or before they just give up on life. Isolation is depressing
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"I've always wanted to be a nurse." Kim was in the year group whose A-Levels were cancelled in 2020 due to the pandemic. She's now a healthcare support worker in cardiology and next month begins her nursing apprenticeship with us, funded by the NHS. #ALevels2022 | @NHSEngland
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Long acting Covid antibody treatment Evusheld will not be available on NHS after Dept of Health says there’s insufficient data on how long it protects against Omicron. NICE has been asked to review Evusheld but decision not due til April 2023. Evusheld sold in over 30 countries
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@BBCFergusWalsh Thank you for your support in raising the profile of this story. 500,000 immunocompromised people desperately need this drug, to start living their lives again. Is this a measure of what this country has become, that we throw the most vulnerable to the wolves.
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Delivering more gift bags for newly transplanted patient to the Transplant Team together with a cheque for £6,387 to Royal Papworth Hospital Charity from the retiring committee members representing the fund raising efforts over the last 5/6 years @papworthcharity @RoyalPapworth
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So this happened this morning. I collected my MBE from the Duke of Cambridge.The experience was humbling.Thank you to all my colleagues past and present who have made my career so enjoyable Working in the NHS takes teamwork @RoyalPapworth @NationalNHP @teamCNO_ @stephenposeynhs
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This is me on our first vaccination clinic- happily vaccinated and vaccinating my dear colleague. It was day that I will remember as a stand out in my 33 year career to date. I feel so privileged to have had 3 doses of a vaccine so that I can protect myself and others!
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I’m an Advanced HF/Transplant Cardiologist but spent months and months working on COVID-19 ICU in 20/21. I’m fully vaccinated for myself, friends/family, the patients I look after and wider society. #GetVaccinatedNow
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Thanks @drstephenpettit 🙏👍👍
We've just updated our COVID-19 FAQs for heart and lung transplant patients, including new information on: 💉 Vaccination. 🦠 Omicron. 💊 Treatment with sotrovimab and molnupiravir. https://t.co/NzickCKYQE
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From own experience it takes 6ms to get a decision on PIP. 🤦🏻♂️😮 Hundred people die challenging terminally ill benefits awards
bbc.co.uk
Around 100 people who were denied fast-tracked disability benefits died while challenging the decision.
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Full credit goes to @drstephenpettit and @RoyalPapworth 🙌🙌🙌🫀🫁
This tweet, with link to the Papworth Patient website and FAQs , is an excellent resource for their #heartTransplant folk. Sadly not matched across UK. We’ll have to keep turning to you @RPTPSG . Great job.
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@TransplantTwitter, a heroine goes home. We celebrate Michelle Hemmings's life with a celebration service on Friday 29th October 2021 at 11:00am (BST). Venue is New Testament Church of God. Lozells Road, Birmingham. Livestream link https://t.co/lhKKQis5zN Please join us. #PlsRT
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Straw poll in our local supermarket yesterday, about 1 in 20 were wearing masks. 95% of population are in for a shock when masks become compulsory again. 😷 #COVIDIOTS
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We’ve sadly lost another one of our people to Covid. Regrettably being double jabbed does not always give enough protection to organ recipients. #longshielding
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