Renal Patient Led Advisory Network
@RPLANNW
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Advocating for & supporting Renal Patients in England since 2020. Helping lead the conversation for better care for the Renal community 💜
England, United Kingdom
Joined February 2021
We’re back everyone, supporting patients all over the UK! Come say hi and get involved! 💜💜 #patientssupportingpatients
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We thought we'd answer some of your most commonly asked questions ahead of #OrganDonationWeek next week. Confirming your decision on the NHS Organ Donor Register is the best thing you'll do today. #ODW25 #OrganDonation
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There’s a new #chronicallychristy episode out and I’d urge all chronically ill people to have a listen. Cards 2 Warriors sends cards all over the world to help brighten peoples days, and I’d urge you to sign up if you haven’t already. #cards2warriors
https://t.co/ZqHZDZIqkk
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Here’s the link to sign up to receive cards from Cards2Warriors. I received my first card recently and it was very much needed…… #cards2warriors #chronicillness
https://t.co/qNqPVqRnI6
cards2warriors.org
Patients struggling with chronic illness and pain are invited to sign up to receive cards of cheer and encouragement.
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@WIRRALGLOBENEWS @RebeccaMJourno @NHSOrganDonor @Kidney_Research I’m in the papers today trying to raise a bit of awareness 💜💜 https://t.co/Thq0k1V9FN
wirralglobe.co.uk
A WIRRAL woman is one of 915 people waiting for an organ transplant as the waiting list has reached a UK record high.
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There’s a new #chronicallychristy episode out today featuring @diaryofakidneyw . Please have a listen here or wherever you get your podcasts from….. @kidneycareuk
https://t.co/gMLdSt57CD
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🎧 It’s here! New episode of #DiaryOfAKidneyWarriorPodcast is LIVE. @ChristyMillarUK 's journey through CKD, advocacy, and empowerment. Listen now 👉🏽👉 https://t.co/vZq4pj6cWt Please RT or share with someone who needs this story. 💚 #CKD #KidneyWarrior #ChronicIllnessSupport
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We are looking for #kidneytransplant recipients in the UK to complete a short study on symptom experience. Details below 👇🏻 thank you for considering #transplantation #kidneydisease #UKKW2025 #ukkw25 link: https://t.co/kYtCaKRJnu
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Chatting to Georgina, the founder of Purpl, the UK’s first disability discount website in next weeks podcast episode. #chronicallychristy
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Christy is waiting for her third #KidneyTransplant, and as she waits she works on her podcast entitled 'Chronically Christy'. Having been through many surgeries, years of #dialysis and #transplants she hopes to help others on their #kidney journeys ❤️ https://t.co/jLYgrdYheV
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Podcast listens on the last few have been a bit low, sorry they’re just me rambling but here’s another 😝 out Thursday discussing our rights as disabled workers and the jobs I’ve done over the years…….
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Todays episode is basically me working myself into a tizzy about dialysis 🤦🏻♀️🤦🏻♀️ https://t.co/i6wKZsYZbo
#chronicallychristy
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New episode….. in sickness and in health #chronicallychristy
https://t.co/LXlqsohM9e
podcasts.apple.com
Podcast Episode · Chronically Christy · 20/06/2024 · 24m
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Listen to the new episode today featuring renal dietician Hilary Morgan. #chronicallychristy
https://t.co/cTPBLntsuW
podcasts.apple.com
Podcast Episode · Chronically Christy · 23/05/2024 · 18m
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Ahead of #InternationalNursesDay tomorrow Christy, who has had a #KidneyTransplant, says thank you to her renal nurses: “I’m still friends with my renal nurses nearly ten years post transplant. They saw me at my worst and my best. My transplant is failing, I hope they’re...1/4
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One more listen and I’ll hit 300 then can have wine in the sunshine to celebrate……. #chronicallychristy
https://t.co/2wwAwitJHU
podcasts.apple.com
Podcast Episode · Chronically Christy · 09/05/2024 · 14m
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Ever used patient transport in the North West? Then please help us by filling out this survey…. https://t.co/IM8VaHmWMW
forms.office.com
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Amazing turn out for such an early start for the North West! Exciting to see so many people enthusiastic about using PREM to drive imrovement @KidneyNW22 @kidneycareuk
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My sis was almost 18 when I got poorly…… come listen to how my kidney disease has affected her on April 25th #chronicallychristy
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