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@PxPHub

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👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.

Canada
Joined June 2023
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@PxPHub
PxP
1 day
Learn more about different roles of patient partners in health research from this insightful session at #PxP25. 👉The recording is available here to watch any time:
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@PxPHub
PxP
2 days
What are some unique challenges and opportunities for patient engagement in research in different parts of the world? 👀Watch back this session from day 1 of #PxP25 https://t.co/zZ26hDBPM9
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@PxPHub
PxP
4 days
PxP India used storytelling, provocative debate, and Q&A to showcase how patients can convert their lived experience into valuable expertise to help shape research and healthcare processes. Wherever you are based in the world, you can watch it back here:
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@PxPHub
PxP
9 days
Looking for a case study on co-design? PxP Australia featured an insightful presentation by @joancarlini and Letisha Living, facilitated by @JanelleBowden. Their #ConsumerInvolvement project used Lego! Intrigued? Watch the session back here: https://t.co/gzqhZZj21p
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@PxPHub
PxP
2 months
RT @breastlessAfrik: We did it!!!🥳🎉🙌🏾 #PxP25🇨🇦 has officially ended. Day 3 which was held on the Australian time zone was awesome, fun and…
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@KWProScribe
Prof. Karen Woolley
2 months
#PxP25 Truly global. Truly sensitive to different languages (captions), expertise (context/content), and timezones (alarm clocks not always needed). With #AI, we can also ask speakers questions in their local language...not perfect, but progress.
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@breastlessAfrik
Kwanele Asante, BA Liberal Arts, LLB, MSc Med
2 months
Fellow #Insomniacs Africa🌍 Join us for Day 3 of #PxP25 on the Australian time zone. I am attending from Johannesburg, South Africa. And I am in awe to see my Portuguese speaking #livedexperience/ #patientpartner colleagues from Brazil and Australia participating in the first
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@PxPHub
PxP
2 months
'Bold, daring, brave and powerful' 💜 we love that, thank you Ann!
@Anntics
Dr. Ann Lawless
2 months
Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research
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@Anntics
Dr. Ann Lawless
2 months
Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research
@PxPHub
PxP
2 months
At the cutting edge: innovations in patient engagement The first sessions of #PxP25 day 3 is underway! Join us now, or consider coming to catch-up at a rewatch party 👉 https://t.co/QS3D4fMtIy #PatientEngagement #ConsumerEngagement #ForPatientsByPatients
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@PxPHub
PxP
2 months
At the cutting edge: innovations in patient engagement The first sessions of #PxP25 day 3 is underway! Join us now, or consider coming to catch-up at a rewatch party 👉 https://t.co/QS3D4fMtIy #PatientEngagement #ConsumerEngagement #ForPatientsByPatients
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pxphub.org
Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).
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@AccessCR
AccessCR
2 months
If you haven’t yet engaged with #PxP25, it’s not too late. Another great set of sessions for the last day today, live in the Aus Timezone! 👇👇👇
@PxPHub
PxP
2 months
Day 3 of #PxP25 is about to get started. If you haven't joined us yet this year, there is still time to register: https://t.co/lgvHoVWytM Thank you to our wonderful speakers for today 💜 @AggieMN @AhliaGriffiths @JanelleBowden @gillyminn
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@PxPHub
PxP
2 months
Day 3 of #PxP25 is about to get started. If you haven't joined us yet this year, there is still time to register: https://t.co/lgvHoVWytM Thank you to our wonderful speakers for today 💜 @AggieMN @AhliaGriffiths @JanelleBowden @gillyminn
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@PxPHub
PxP
2 months
We can't wait for day 3 of #PxP25! The sessions start at a different time today, to better suit people based in parts of Asia and Oceania. We are looking forward to hearing from today's speakers 👏 If you can't join live - check out the times for the re-watch parties.
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@PxPHub
PxP
2 months
@DisabilitywAnna “Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25
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@PxPHub
PxP
2 months
@DisabilitywAnna “I’ve learned to not assume what people [patient partners] might be interested in or helping out with. We try to keep the door open in terms of what they would like to contribute to a project.” - Manoj Lalu #PxP25
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@PxPHub
PxP
2 months
“As a patient partner, in projects where there have been longer timelines, that has helped a lot. Having a bit more time to meaningfully participate is so helpful.” - Anna Samson #PxP25
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@PxPHub
PxP
2 months
“When we shift towards inclusion, we include people’s experiences and improve the research.” - BC Pomeroy #PxP25
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@PxPHub
PxP
2 months
“Evidence-based advocacy helps understand patient needs in a systematic manner … and it generally has a greater impact.” “You can point to national and global disparities using evidence-based advocacy.” - Rachel Giles #PxP25
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@PxPHub
PxP
2 months
“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25
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@PxPHub
PxP
2 months
“Find your own voice and make it as quiet or as loud as you want it to be.” - Rita Schriemer #PxP25
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