This is just factually untrue lmao. How do people in 2025 not realize people with severe MECFS have to pay for private care and private treatments out of pocket. “They pay for everything” what everything Gilbert?

Until you live the life of a severe patient, having to lie flat near 24/7, cannot walk, pissing in bedside urinals your family empties, you can’t say anything about how someone chooses to try to save their life +access treatment. We decline every day until there’s nothing left

I’d never give up on T either. We have always been there for each other for a long time now. He knows me better than anyone. Sadly everything said is true. I have no idea what the future holds but I am severely declining w/o treatment. For those who can share or donate, thank u💙

🧵 1/3 🩵 December Nevra Update 🩵 Urgent mutual aid needed! Nevra is a woman in Pakistan living with Very Severe ME, severe mould reactions, endometriosis, PMDD & related conditions. She is currently in a severe crash and without in-person care.

There’s a lot of heaviness out there. I really wish this kind of case was discussed in the press, in advocacy, etc.

Please help my dear friend Josh who is in desperate need of neurosurgery. He is such a great guy and suffering so much; he deserves to get his health back!

https://t.co/yJFbTFbc9X Every dollar helps. She is less than a week out and is already trying to go back to work because there's no savings, no family wealth, and she is also a single mother.

My sister, best friend, and biggest support had a heart attack last week. She's only 48, it was completely unexpected and couldn't have come at a worse time. If you can, please donate to the GFM I created to cover one months worth of bills so she can actually rest and recover.

Unfortunately, we have not met our goal yet for rent, and our posts have not had much visibility. Meanwhile, as the year comes to a close, we bring you a message from Nevra. #pwME links in bio for donating and sharing, text below 1/n

Next trip is in February, with ICT/ICP neurosurgery tests, lumbar puncture, head angiogram, endocrinology, maybe chronic infectious persistence tests https://t.co/lts1LL5ocX So costly, I’ll reapply for financial aid but may be denied bc I’m not a NY resident, please donate/share

Thank you to everyone who has shared and donated so far! It means everything to me. You are helping me access care I wouldn’t be able to otherwise. 💙

Leute, wenn möglich unterstützt Josh! Sein Zustand und allgemein seine Situation sind echt beschissen. Spenden und/oder Teilen wären eine große Hilfe. 🙏🏼 #MECFS #LongCovid #cci

Josh is a dear friend and a very kind soul who has supported me during some of the hardest moments of my daughter’s illness. He is going through a difficult time himself and has created a GoFundMe. Any support or sharing is appreciated 🙏🏻

Please RT and donate to Josh! He finally has an opportunity to try to get critical neurosurgery and other specialist care from the same clinicians helping me ❤️‍🩹 His travel costs plus OOP insurance costs are a lot, and he needs community help to cover it all

1/3 Help @ProperChels34 make his fundraising campaign a success! And please researchers do something concerning the relation between #CCI & other structural issues & #MEcfs #LongCovid. It's overdue and pretty urgent for so many people!

Now I ask, if you have even a dollar extra to give, help @ProperChels34 get the treatment he needs. Finding an answer and not being able to afford it should be illegal, but while we fight the greed of the government and it's corporate overlords, let's help one another. 🫶

Please consider donating if you can! Josh is always supporting a lot of people, let’s crush the fundraising goal.

Josh is an amazing guy and such a great friend. Let’s help him out guys, he truly deserves it. Please donate and share 🩵🙏🏼❤️

Alright, guys, this is Josh's fundraiser! Please support my friend by sharing and/or donating! Josh is the kindest person and he deserves all our help and support! Thank you! ♥️