Changing Our Lives
@Positive_Lives
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We are a rights based organisation working with disabled people and people with mental health difficulties to achieve equality and social inclusion.
England
Joined December 2010
Looking for information regarding learning disability and autism in community languages? Check out our new resources in Urdu and Punjabi: https://t.co/x12C9fzRW5:
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Whether you're a nurse, family member or young person, we'd like to hear from you. Please let us know your thoughts by 25/07 via the questionnaires on our website, under 'Our work' and 'Acute liaison nursing': https://t.co/xx4UPuNkWd Please retweet and share!
changingourlives.org
We have been commissioned by Health Education England to produce a national competency framework for Learning Disability Acute Liaison Nurses.
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People have told us they don’t understand the title of ‘Acute Liaison Nurse’. Do you think this name should change? https://t.co/Ih30kF9KTD (Questionnaire for nurses) @NHSEngland @DavidHarling1 @BornatRightTime @GeorgeJulian @CNOEngland @teamCNO_
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Check out our new @NHSEngland commissioned publication, 'Opening Doors', which shines a light on the good practice of learning disability nurses in forensic settings. Available at: https://t.co/7Iq4BCKmml | @DavidHarling1 @ElliegorRMN
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‘Why are we stuck in hospital?’ Exhibition tours to Sheffield, opening next week!
linkedin.com
Foka Wolf’s installation Why are we stuck in hospital? opens next week at SITE GALLERY in Sheffield. Foka’s installation, which debuted last March at the Ikon Gallery in Birmingham, responds to the...
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We are very proud to see this research published and hope that these findings are a step towards both a reduction in the numbers of people who find themselves needlessly trapped in the system and an improvement in agencies responses to prevent admission.
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But we have encountered extreme cases where individuals have been detained for much longer, such as Kasibba, who lived in the system for 40 years.
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This is often not for reasons of ill health but due to complex factors such as breakdowns in support within the family and inadequate support from agencies. It is a gross injustice that the average length of stay for these individuals is 5 years...
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Produced in collaboration with @unibirmingham, the report explores the reasons why at any one time in England there remains around 2000+ people with a learning disability/autistic people, who find themselves needlessly detained within the hospital system for prolonged periods.
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Yesterday the full academic report from the 'Why are we stuck in hospital?' research project was published in the journal, Health and Social Care Delivery Research, Volume: 12, Issue: 3. @NIHRresearch @unibirmingham
https://t.co/I45YmS5SiX
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Here is a link to the #posturalcare tool for learning disability nurses: https://t.co/nA7RW6p5WA. You can find it on our website under Our Work, Acute Liaison Nursing. #LDNsymp23 #LDNSuperpower @DavidHarling1 @CNOEngland @teamCNO_ @physiofootsteps
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Thank you, @jimgblair!
@Positive_Lives a powerful organisation dedicated to improving and enhancing lives with and for people with learning disabilities https://t.co/dt9UOIDbO0 check them out 👇🏻👍🏻@UKLabour @AnnKeen11 @nmcnews @gmcuk @TheBMA @theRCN @wesstreeting @KeeleyMP
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It's the @ESNsocial European Social Services Awards tonight - with @AnneMarieGlasby and @DrBeckyBham on their way to Zagreb, representing @Positive_Lives and @unibirmingham - but more importantly, amplifying the voices of people still stuck in long-stay settings @NIHRresearch
So proud that our work on leaving long-stay hospitals has been shortlisted (for 'research and evaluation' under the title of 'Sharing the Voices of those who are Institutionalisded to Change Practice and Policy'). We're keen to avoid a 'nul points' situation, so please vote!!
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Launched today! 'Hospital to Home: B's story' is now available via our website.
@Positive_Lives
@RightfulLives
@LearningDisEng
@JonGlasby Launch of our new Hospital to Home book, 'B's story', which charts their life moving into their new home and outlines our approaches to achieving ordinary life outcomes. https://t.co/ZVCGVoe7n1
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Introduced by our trustee Dr Rosie Harding, Professor of Law and Society at Birmingham Law School, @unibirmingham, the event was attended by solicitors and barristers from a range of different law firms and aimed to build a legal network of support for our work.
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The book and film can be found on our website via the following links: https://t.co/vQT72WUx4R and
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At the event, we launched Kasibba’s book and accompanying short film, which details our work with one woman who was kept in long-term segregation for 20+ years and who we supported over a 6 year period to leave the hospital system and move into her own home.
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At any one time in England, there are approximately 2000 people with learning disabilities and/or autistic people living in locked in-patient hospitals, with an average length of stay of 5 years. However, some will remain in hospital for 50+ years despite not needing treatment.
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