PerinatalHospice.org
@PerinatalHospic
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Resources for continuing a pregnancy w/ life-limiting prenatal diagnosis. A Gift of Time @JHUPress, Waiting with Gabriel @loyolapress. Tweets by @AmyKuebelbeck
Saint Paul, Minnesota USA
Joined August 2013
What is perinatal hospice? It is a practical and compassionate model of care before & after birth for those continuing a pregnancy when a baby's life is expected to be brief
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RT @ANZSPM: Register for the upcoming RACP Webinar - Perinatal Palliative Care, presented by Dr Kirsten Bell. This series is a compliment….
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RT @PPCEducate: For Children's Hospice Week 2025, the Southeast PPI group are discussing perinatal palliative care. Join us for patient sto….
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RT @NCMD_England: Next month, we will publish a report on children with life-limiting conditions and palliative and end of life care needs.….
ncmd.info
Emily, a bereaved parent who has worked closely with NCMD explains how families can share their stories with us.
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In exploring the concept of parallel planning and navigating uncertainty in perinatal palliative care, this gentle video offers a brilliant analogy to navigating the London tube system. This video will help many parents and caregivers alike.
Excited to share this animated video exploring a relational approach to navigating uncertainty in perinatal palliative care. From our new blog: @Blisscharity @BAPM_Official @NNAUK1 @BCUNeonate.
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RT @drkathrynmannix: It's #DyingMattersWeek. We're all going to do it. Shouldn't we get our minds around what to expect?. Here's a 3 min gu….
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It was an honor of a lifetime to be invited to help moderate a Vatican conference on perinatal palliative care. Meeting Pope Francis personally was a joy. May his memory be not only a blessing but an inspiration for all of us to act on behalf of those who need help and care.
Pope Francis on perinatal hospice care: "Thank you to all of you who are working for this. Thank you in particular to the families, mothers and fathers, who have accepted fragile life who are now supporting and helping other families. Your witness of love is a gift to the world."
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RT @DrLuyirika: In 2018, I was privileged to be part of a team of experts by the Vatican through the Pontifical Academy for Life to develop….
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Researchers are looking for bereaved parents from minority groups who continued a pregnancy after diagnosis of a life-limiting fetal condition. They are hoping to learn information that could improve care.
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"When we met Dr. Weinman and her team the first time, she would say things like, 'So, what are we going to do when Zoey is here,' which changed my mindset completely," said Yvette Ngo, whose daughter was diagnosed prenatally with Trisomy 13.
North Texas doctor helps parents facing infant loss deal with the unimaginable .
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RT @CMBioethics: AAPs Section on Neonatal & Perinatal Med @NeoTECaN Advocacy, chaired by #Certificate alum Dr. Erin Rholl, webinar series f….
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RT @AAPneonatal: Dr. Kristen Leadbetter makes a strong case at #WNPPS2025 for perinatal palliative care. Learning more about this important….
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From the study: "Shortening the interval between diagnosis and palliative care consultation would allow for more effective professional support and more time to prepare the parents for losing a child."
pubmed.ncbi.nlm.nih.gov
System solutions should be considered, obliging the physician to refer the pregnant woman to a perinatal palliative care program. Shortening the interval between diagnosis and palliative care...
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An average delay of more than a month from diagnosis to a first consultation for perinatal palliative care is far too long. Referrals should be made at the time of diagnosis, to offer parents immediate support and information about their options.
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New in BMC Palliative Care: Outcomes of delivery in patients with diagnosed life-limiting fetal condition and evaluation of perinatal palliative care program: a retrospective review of palliative care service over 7 years
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RT @TheAPPMuk: This month we are highlighting the work of our Perinatal Special Interest Group. Recently they have collaborated with @bapm….
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RT @kiran_shriv: As a neonatologist hoping to advance perinatal and neonatal palliative care it is heartening to see the groundwork already….
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RT @CSPM_SCMP: .@RNeilsonCH in #Ottawa has a groundbreaking #Perinatal #PalliativeCare Program. From diagnosis to bereavement, families fac….
ottawacitizen.com
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Call for papers on neonatal-perinatal palliative care from BMC Palliative Care (Springer)
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New: "Recognising uncertainty: an integrated framework for palliative care in perinatal medicine" by @NeonatalEthics @SJBertaud @mancini_smith @BAPM_Official
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"Perinatal palliative care: a comprehensive approach" in Medicina y Ética, in English and Spanish.
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