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International PCD Physio Network Profile
International PCD Physio Network

@PcdPhysio

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A network for physiotherapists, physical therapists and respiratory therapists working with people with Primary Ciliary Dyskinesia. #IPCDPN

Joined May 2021
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@PcdPhysio
International PCD Physio Network
1 year
One week to go until our webinar. Hot topics in PCD research for our super physio community. We're looking forward to seeing you! .Tue 5th March 13:00-15:00 GMT.Full details and register here 👇.
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@PcdPhysio
International PCD Physio Network
2 years
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@PcdPhysio
International PCD Physio Network
2 years
It's time to sign up for our webinar on current research projects. It's on Tue 5th March, 1-3pm GMT. Here's the all important link to sign up:.
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@PcdPhysio
International PCD Physio Network
2 years
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@PcdPhysio
International PCD Physio Network
2 years
Time to save a date in your new calendar. the next IPCDPN webinar will be on Tuesday 5th March 13:00-15:00 GMT focussing on hot research topics. Watch this space for more info!
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@PcdPhysio
International PCD Physio Network
2 years
RT @PCRSUK: We have published our updated position statement - 'Inhaler Switching: Making safe and clinically appropriate changes for patie….
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@PcdPhysio
International PCD Physio Network
2 years
RT @ProfJDChalmers: Abstract submission is now open for the World Bronchiectasis Conference being held in Scotland in 2024. Please join us….
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@PcdPhysio
International PCD Physio Network
2 years
Can you help raise awareness of PCD this month? Follow and retweet @PCD_UK.
@PCD_UK
PCD Support UK
2 years
It's PCD Awareness month! . We'll be celebrating all month long with regular updates and sharing LOADS of information about PCD. Join us by retweeting our posts and spreading the word! . #PrimaryCiliaryDyskinesia #PCDAwarenessmonth2023 #PCD #GetInvolved #Raredisease
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@PcdPhysio
International PCD Physio Network
2 years
Hyperpolarised 129Xe MRI can be used to visualise changes following airway clearance.
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@PcdPhysio
International PCD Physio Network
2 years
Hyperpolarised 129 Xe MRI is feasible in pediatric PCD and looks at different disease aspects compared to FEV1
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@PcdPhysio
International PCD Physio Network
2 years
#ERS2023 may be over but we have one last flurry of posters from the final session still to share with you. inspiratory muscle strength is associated with 6MWT distance in PCD.
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@PcdPhysio
International PCD Physio Network
2 years
Night time cough frequency is higher in adults with CF than PCD, but higher in childre with PCD than those with CF.
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@PcdPhysio
International PCD Physio Network
2 years
The genetics of haemophilus influenza in PCD.
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@PcdPhysio
International PCD Physio Network
2 years
Time to share a few more posters from ERS. E-cigarette use in young people with PCD is higher those with CF.
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@PcdPhysio
International PCD Physio Network
2 years
RT @beatpcd: Our @EuroRespSoc Clinical Research Collaboration Management meeting is under way in Milan at #ERSCongress .Exciting plans for….
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@PcdPhysio
International PCD Physio Network
2 years
Genotype phenotype links in PCD
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@PcdPhysio
International PCD Physio Network
2 years
A preview of the English adult pcd physiotherapy standards of care, recommendations here. More evidence is needed across all areas.
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@PcdPhysio
International PCD Physio Network
2 years
What outcomes should be reported in PCD studies? 👇 a consensus statement from @beatpcd
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@PcdPhysio
International PCD Physio Network
2 years
Lower FEV1 is associated with pseudomonas growth in PCD
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@PcdPhysio
International PCD Physio Network
2 years
Genotype phenotype links in PCD
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