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BEAT-PCD (ERS CRC) Profile
BEAT-PCD (ERS CRC)

@beatpcd

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@EuroRespSoc Clinical Research Collaboration - Multidisciplinary network coordinating research & improving clinical care of Primary Ciliary Dyskinesia (PCD)

Joined September 2015
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@beatpcd
BEAT-PCD (ERS CRC)
23 days
Registration for the PCD annual meeting is now open
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@beatpcd
BEAT-PCD (ERS CRC)
4 days
RT @EuroRespSoc: There is still time to join the @EuropeanLung’s #WorldBronchiectasisDay Question Time this afternoon! This free webinar we….
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@beatpcd
BEAT-PCD (ERS CRC)
4 days
RT @lifearc1: 🌍 Today on #WorldBronchiectasisDay, join us in raising awareness about this chronic lung condition affecting over 200,000 peo….
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@beatpcd
BEAT-PCD (ERS CRC)
4 days
RT @atscommunity: Tomorrow, July 1, is World Bronchiectasis Day! This day would not have been possible without the work of a global plannin….
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@beatpcd
BEAT-PCD (ERS CRC)
5 days
In collaboration with @EuropeanLung , @EMBARCnetwork is launching a multilingual survey to explore real-life experiences of people with bronchiectasis focusing on often overlooked areas of care. Available in 8 languages. Get involved & repost!
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@beatpcd
BEAT-PCD (ERS CRC)
9 days
It was indeed 3 months until September 26th… Can’t wait to see everyone.
@mgoutaki
Myrona Goutaki
9 days
We are too eager to welcome everyone to the annual PCD meeting in Amsterdam in 3 months! #primaryciliarydyskinesia.
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@beatpcd
BEAT-PCD (ERS CRC)
9 days
Only two months remain until the annual PCD research conference takes place in Amsterdam on September 26th. You can now sign up on our website at .The agenda will be available soon, and you can look forward to an impressive lineup of speakers and topics.
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@beatpcd
BEAT-PCD (ERS CRC)
23 days
Sessions will include:.- Clinical trial results.- Keynote speakers.- The new ERS/ATS diagnostic guideline.- PCD management consensus statement.- The best of PCD in the ERJ.- Patient perspectives.- Early career member talks.- And more. .
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@beatpcd
BEAT-PCD (ERS CRC)
24 days
We’re pleased to announce the launch of the BEAT-PCD LinkedIn page. Follow us for updates on collaborative research, diagnostics, and clinical advances in Primary Ciliary Dyskinesia (PCD).
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@beatpcd
BEAT-PCD (ERS CRC)
26 days
RT @ProfJDChalmers: Join me on tuesday for a webinar on the ERS Respiratory Channel!.Science Communication including.- Writing a paper for….
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@beatpcd
BEAT-PCD (ERS CRC)
29 days
RT @mgoutaki: You may find lay summaries of this and all our publications on the Living with PCD study website in English, French, German,….
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@beatpcd
BEAT-PCD (ERS CRC)
29 days
We are pleased to announce the publication of a new article exploring the fertility experiences of people with Primary Ciliary Dyskinesia (PCD) and their family caregivers: ‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: @ISPMBern @mgoutaki.
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@beatpcd
BEAT-PCD (ERS CRC)
1 month
To celebrate World Bronchiectasis Day 2025, @EMBARCnetwork and the @EuropeanLung are hosting another Bronchiectasis Question Time event - a free 1-hour Q&A webinar aimed at patients, their families and caregivers.
Tweet media one
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@beatpcd
BEAT-PCD (ERS CRC)
1 month
RT @mathieu_bottier: Excited to receive a fellowship from @MedResFdn to develop AI tools for diagnosing primary ciliary dyskinesia using mi….
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@beatpcd
BEAT-PCD (ERS CRC)
2 months
RT @Lena_Group4Resp: #EBROW25.📊 The stats are in! Thank you to everyone who contributed to this year's success. Looking ahead, we're excite….
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@beatpcd
BEAT-PCD (ERS CRC)
2 months
RT @mathieu_bottier: Very exciting to see @ReCodeTx preclinical data published! .Inhaled DNAI1 mRNA therapy for treatment of primary ciliar….
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@beatpcd
BEAT-PCD (ERS CRC)
2 months
RT @Lena_Group4Resp: Glad to help @PCD_UK bring together respiratory UK experts for their annual Medical Board meeting.🔹Sessions exploring….
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@beatpcd
BEAT-PCD (ERS CRC)
2 months
RT @hayoungcc: Many thanks to @journal_CHEST @accpchest for highlighting our study on the clinical utility of serum antiglycopeptidolipid c….
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@beatpcd
BEAT-PCD (ERS CRC)
2 months
RT @PCDFoundation: Join Us: ATS PAR 'Patients and Experts Forum' May 16, San Francisco, CA - .
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@beatpcd
BEAT-PCD (ERS CRC)
2 months
RT @ProfJDChalmers: Donna Heilwell from the EMBARC/@EuropeanLung patient advisory group speaking at #acprc about living with bronchiectasis….
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