
Patients Association
@PatientsAssoc
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We are an independent charity campaigning for patient partnership. For our social media community guidelines, see: https://t.co/pwOtv4gikz
United Kingdom
Joined April 2009
Read our full statement welcoming @theHSSIB investigation into patient care in temporary care environments:
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📞 Our free helpline is open and ready to take your calls! We provide specialist health and social care information and guidance across all four UK nations. 👉 Call 0800 345 7115 or email helpline@patients-association.org.uk to speak to one of our team
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RT @ptsafetylearn: 🆕Raising awareness of normal pressure hydrocephalus: an often misdiagnosed condition🆕. A new blog by @SHINEUKCharity fea….
pslhub.org
Shine describes NPH and why it is often misdiagnosed
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By properly listening to people who use and care about services, the NHS can understand their diverse health needs better and focus on what matters. This new policy sets out how @NHSEngland meets its commitment to partnership with people and communities:
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We're working with @RCollEM to help inform a report outlining the prevalence and impact of corridor care in A&E departments, highlighting both patient and clinician experiences and setting out recommendations for the future. Share your views:
surveymonkey.com
Take this survey powered by surveymonkey.com. Create your own surveys for free.
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RT @covidinquiryuk: /1 Every Story Matters is the largest public listening exercise ever undertaken by a UK public inquiry. So far we h….
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RT @NHSuk: If you need urgent dental treatment over the bank holiday weekend, contact your usual dentist. If you cannot reach your dent….
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RT @SickleCellUK: Help shape sickle cell & infections research! 🧪We’re looking for people 18+ living with or caring for someone with sickle….
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RT @mentalhealth: Shift work poses unique challenges to your mental health. Find out how to look after your mental health while working sh….
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📱 @NHSEngland has launched a new NHS WhatsApp Channel! Join to receive trusted info on :.- public health campaigns (e.g. flu, COVID-19).- health alerts and seasonal advice.- key NHS updates and announcements.- myth-busting and fact-checking content . How to join 👇
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Patients tell us that getting vital tests, scans and checks at a time and location that works for them can make a huge difference. Read our full statement on this welcome announcement from @DHSCgovuk:
"5 minutes?! This is fantastic." . This is why we've opened 100 community diagnostic centres from 8am to 8pm, all week 👇. We’re reforming the health service so it’s built around patients. More:
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Would you like to make the most of your upcoming healthcare appointment? Our guide walks you through:.✔️ how to prepare before your visit.✔️ what to do during your appointment.✔️ steps to take afterward. This project was sponsored by GSK:
patients-association.org.uk
This guide is to help patients to prepare by sharing information to consider before, during and after health care appointments.
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🎧 New podcast: energising the 10-Year Health Plan through patient partnership.If the Plan is to deliver real change, patient partnership must be more than a buzzword, it must be the foundation. Listen back to this session from Patient Partnership Week
open.spotify.com
The Patients Association Podcast · Episode
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The @CPOC_News is recruiting for its next Patient Lead to join in December 2025 for a three year tenure on the CPOC Board.
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What does a rare cancer diagnosis feel like? Isolating? Confusing? Linda shares her 15-year journey of misdiagnosis, treatment, and advocacy in our blog:
patients-association.org.uk
What is it like to live with Granulosa Cell Tumour, a rare ovarian cancer? Linda shares her 15-year journey of misdiagnosis, treatment, and advocacy.
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RT @NHSEngland: Today is International Neonatal Nurses’ Day. Thank you to our neonatal nurses for supporting families and providing roun….
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🤔 Not sure where to turn to with health or social care questions? Get free, confidential guidance from our helpline. Give our team a ring on 0800 345 7115 (Mon-Fri, 9:30am-5pm) or email helpline@patients-association.org.uk.
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📊 Data plays a vital role in helping to understand inequalities in health. 🆕 The @NHS_RHO's new interactive Health Action Resource Platform displays NHS performance data broken down by ethnicity across regions, systems, or providers. Take a look:
rho-harp.org
Explore NHS Racial Equity Health Data. HARP visualizes disparities, allowing users to search and share data to drive racial equity in health.
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RT @NHSuk: Hay fever is a common allergy that causes sneezing, coughing and itchy eyes. You cannot cure it, but there are things you can d….
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