PSC Support
@PSCSupportUK
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Patient organisation for primary sclerosing cholangitis. Info and support for patients | the PSC App | research towards a cure. #LetsBeatPSC #LetsBeatPSC
Oxford, United Kingdom
Joined January 2011
PSC Research progress is too slow. We need to do more, faster because people with PSC don't have the luxury of time. By 2030, we will fund and support PSC research offering over ยฃ1 million in grants to researchers. Consider making a donation https://t.co/GVfTgJsCbK
#Mission2030
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Christmas cards not your thing? Good news! You can send one of our eCards to friends and family and donate the postage costs to PSC Support instead. Spread cheer and help us improve the lives of people affected by PSC. ๐ https://t.co/qt2kfbwP3e
#LetsBeatPSC
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๐๐๐๐๐ข๐ฅ๐๐๐๐ฃ ๐๐ช๐ฅ๐ฅ๐ก๐ฎ ๐๐๐จ ๐๐ข๐ฅ๐ง๐ค๐ซ๐๐ The @dhscgovuk confirmed that the recent national shortage of rifampicin has improved. Normal prescribing has resumed and access to rifampicin for itch should now be more reliable. ๐ https://t.co/bu4IF2YkyY
#LetsBeatPSC
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Thank you everyone who supported our first ever @BigGive #ChristmasChallenge! Not only did we reach our goal, we exceeded it! Your support means we can increase our Research Seed Funding grants by 50% next year, helping accelerate #PSCresearch #LetsBeatPSC
https://t.co/4cX9TJHSQI
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Calum, a father, husband, former footballer, and manager in the SPFL, lives with AIH and PSC. Every penny donated to our @BigGive #ChristmasChallenge will go to PSC research to help people like Calum. Contribute if you can: https://t.co/eK63ufsVo9.
#LetsBeatPSC
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The only way to find effective treatments for PSC is through research. People with PSC, people like Gemma, need treatments and they need them now. Every penny donated to our @BigGive #ChristmasChallenge will fund PSC research. โก๏ธ https://t.co/eK63ufsVo9
#LetsBeatPSC
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We see you. We hear you. You matter. Our Helpline Nurse has appointments available for anyone affected by PSC - friends, family, colleagues and PSC patients. This is a free service that can be accessed by phone, email or zoom. โก๏ธ https://t.co/SUyfK6RNzY
@HelplinesUK #LetsBeatPSC
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We're working with researchers to develop a new study called TRANSFORM EMPOWER. If you have PSC or PBC (or have had a transplant) & are 18+ we'd love your input! Share your thoughts in our short, anonymous survey to help us design this study better. https://t.co/Tdf7Wq1jKx
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Thank you for donating to our @BigGiveOrg #ChristmasChallenge! We reached our goal of ยฃ15k made of ยฃ7,500 of your donations matched with ยฃ7,500 thanks to our generous pledge funders: Hospital Saturday Fund & a generous family who wish to remain anonymous https://t.co/eK63ufsVo9
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A liver transplant isnโt a cure for PSC. Recipients must manage lifelong meds, complications, or even PSC returning - like Tom, whoโs needed 3 transplants. Donate to our @BigGive #ChristmasChallenge to help accelerate #PSCresearch ๐ https://t.co/SHBjvqHhW4
#LetsBeatPSC
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#PSCresearch needs to move faster for people like Liyana and her mum, who's been on the transplant list for 15 months. Donate between 2-9 Dec donations and your ยฃ20 becomes ยฃ40, and with Gift Aid, #PSCSupport receives ยฃ45, directly aiding PSC research. ๐ https://t.co/SHBjvqHhW4
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Itโs #GivingTuesday AND Day 1 of our Big Give #ChristmasChallenge! You donate ยฃ20. Itโs matched to ยฃ40. Add Gift Aid, and it's ยฃ45! All going directly into vital PSC research. Your generosity today could spark the discoveries of tomorrow. ๐ https://t.co/SHBjvqHhW4
#LetsBeatPSC
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Photographer Kieran Metcalfe raised over ยฃ10k for PSC Support with his beautiful calendars. After a 2 year battle w/ bowel cancer, he sadly passed away this summer. To continue his legacy his wife Susie has created a 2026 calendar of his favourite images. https://t.co/fYk1yRa1T2
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Our analysis of 596 PSC patient responses shows major gaps in CCA communication and inconsistent monitoring. These findings make one thing clear: healthcare for PSC must change. โน๏ธ https://t.co/KjghgSfFMF
#LetsBeatPSC @PSCPartnersCa
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Dr Joshi will break down the latest PSC research from The Liver Meeting (AASLD) held in Washington, D.C. this month, where experts worldwide gathered to share new insights. Join us for this Ask the Expert session ๐ [ https://t.co/Je6fF7iEFt
#AASLD #LiverDisease #LetsBeatPSC
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โResearch gave me hope - thatโs why Iโm fundraising.โ Support Brian and help us find breakthrough treatments, and one day, a cure for PSC. ๐ https://t.co/9KOnlkLNnS
#LetsBeatPSC #PSC #LiverTransplant #Fundraiser
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๐ฑ Big breakthroughs often start small. Seed funding helps PSC researchers explore new ideas, like Professor Boulterโs grant that unlocked ยฃ1.5M in follow-on research. Help us fund more seed grants this #ChristmasChallenege: 2โ9 Dec 2025 ๐ https://t.co/MyIPW6CKFo
#LetsBeatPSC
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MORE Promising news for PSC research! New SPRING trial data shows Nebokitug remains safe and continues to improve inflammation & scarring after 48 weeks. Next step: Phase 3 trial ๐ โน๏ธ https://t.co/Xk4svoQ4di
#LetsBeatPSC #PSCSupport #Nebokitug #LiverResearch #ClinicalTrials
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โฐ Just one week until the @BigGive#ChristmasChallenge begins! From 2โ9 December, your donations will be matched, helping us support more researchers to do more projects, sooner! Together we can accelerate research ๐ https://t.co/nA7wgNiS34
#LetsBeatPSC #DoubleYourDonation
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Some studies hint that coffee might be linked to slower PSC progression, though we still need more research to be sure (Sources in thread). One thing we are sure of: we wonโt rest until we find effective PSC treatments. #PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity
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