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PCPLD Network

@PCPLDnetwork

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Palliative Care for People with Learning Disabilities Network. UK based charity raising awareness and sharing best practice. Shortlisted for NDA Awards 2021.

United Kingdom
Joined February 2013
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@PCPLDnetwork
PCPLD Network
4 hours
RT @CSI_KCL: Healthcare professionals in palliative and end-of-life care: help shape the new Impact Centre at King’s College London. Share….
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@PCPLDnetwork
PCPLD Network
2 days
RT @AliveLeder: 📢 The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disabil….
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@grok
Grok
10 days
Join millions who have switched to Grok.
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@PCPLDnetwork
PCPLD Network
4 days
The LeDeR report has been published! .
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@PCPLDnetwork
PCPLD Network
5 days
RT @PCCongress: ⭐️MAIN CALL FOR ABSTRACTS NOW OPEN ⭐️. Online abstract submissions are invited for original research relevant to palliative….
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@PCPLDnetwork
PCPLD Network
9 days
Talking about dying with people with learning disabilities: webinar details below from the Victoria & Stuart Programme, together with @KingstonUni in partnership with @mariecurieuk
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@PCPLDnetwork
PCPLD Network
14 days
RT @MarieCurieEOLC: We're excited to exhibit at this years Nursing Live in Birmingham for the third consecutive year running . We look forw….
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@PCPLDnetwork
PCPLD Network
20 days
‘A person with a learning disability may need more than one conversation to fully understand and accept what has happened’ - important to remember this when discussing that somebody has died 🫶🏼.
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@PCPLDnetwork
PCPLD Network
26 days
Calling our colleagues in general practice ⬇️.
@holmes74sarah
Sarah Holmes
30 days
There’s still time to apply for this year’s Daffodil Standards Awards.I know colleagues in general practice are making an enormous difference in palliative and end of life care - please consider applying!.
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@PCPLDnetwork
PCPLD Network
26 days
RT @NHSAbility: The #NHS should make #ReasonableAdjustments to make it easy for #disabled people to use services. Hear what works for Karee….
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@PCPLDnetwork
PCPLD Network
1 month
Have you heard about the DAPPLE project? It’s a 3 year research study that aims to find the best ways to make sure that people with a learning disability get the right care and support at the end of their lives.
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dappleproject.com
​DAPPLE means: Developing effective service models for Adult Palliative and end of life care for People with a LEarning disability. It is a three year research project run by Kingston University,...
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@PCPLDnetwork
PCPLD Network
2 months
RT @BCEpilepsy: Did you know that #DisabilityPrideMonth is celebrated every July in honour of the anniversary of the signing of the America….
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@PCPLDnetwork
PCPLD Network
2 months
RT @UKNICAofficial: Are you a carer supporting someone with a learning disability? . The @unisouthampton are looking for #carers with a va….
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@PCPLDnetwork
PCPLD Network
3 months
A little preview of our amazing conference yesterday! Lots of dancing and brilliant discussions. Who knew talking about palliative care could be so much fun!
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@PCPLDnetwork
PCPLD Network
3 months
As we close for the day, a brilliant afternoon here at #pcpld2025 conference: the Dapple Project, communicating grief in young people with severe and profound learning disabilities and our ‘soap box session’ . A huge thank you to all our speakers, presenters and attendees!.
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@PCPLDnetwork
PCPLD Network
3 months
Our last ever Linda McEnhill Award presented to Prof Irene Tuffrey-Wijne - our previous @PCPLDnetwork chair, academic and researcher in palliative care for people with a LD, for her incredible contribution to the field . A huge congratulations and thank you!!!
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@PCPLDnetwork
PCPLD Network
3 months
A truly fabulous performance at #pcpld2025 conference from the inspirational Baked Beans Choir!
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@PCPLDnetwork
PCPLD Network
3 months
A fantastic morning at #pcpld2025 conference - overview of research so far, the READY project, a hospice/CPCT LD audit, the importance of relational care and ‘on the sofa’ with some of brilliant poster presenters! Looking forward to this afternoon’s session!.
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@PCPLDnetwork
PCPLD Network
3 months
RT @ElversonJo: Great to be at the Palliative care for people with learning disabilities conference today @PCPLDnetwork. Diane showcasing h….
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@PCPLDnetwork
PCPLD Network
3 months
We’re very excited about our #pcpldconference2025 tomorrow! We have a fantastic line up and look forward to seeing you there!.
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