PCPLD Network
@PCPLDnetwork
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Palliative Care for People with Learning Disabilities Network. UK based charity raising awareness and sharing best practice. Shortlisted for NDA Awards 2021.
United Kingdom
Joined February 2013
‘Learning disability nurses save lives. Without urgent intervention, this profession will disappear, leaving people with a learning disability at even greater risk’ https://t.co/mPdMsfYGoP
learningdisabilitytoday.co.uk
Health organisations and charities have written to Wes Streeting calling for the government to recommit to training targets promised in the NHS Workforce Plan for learning disability nursing and to...
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The sad reality that a worrying number of people with learning disabilities are missing out on an early cancer diagnosis which could have saved their lives https://t.co/QmLYDItIsl
channel4.com
A worrying number of people with learning disabilities are missing out on an early cancer diagnosis which could have saved their lives. The NHS Confederation said today that healthcare providers...
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Healthcare professionals in palliative and end-of-life care: help shape the new Impact Centre at King’s College London. Share your insights in our short, anonymous survey (15 mins). Take part:
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📢 The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities. Access here: https://t.co/4cu1VsaOv8
#LeDeR @KingsIoPPN
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The LeDeR report has been published! https://t.co/bCjg7Y4H8p
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⭐️MAIN CALL FOR ABSTRACTS NOW OPEN ⭐️ Online abstract submissions are invited for original research relevant to palliative care and in consideration of the conference theme #PCC2026 More info 👇 🔗 https://t.co/2sUvTfMJ9K
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Talking about dying with people with learning disabilities: webinar details below from the Victoria & Stuart Programme, together with @KingstonUni in partnership with @mariecurieuk
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We're excited to exhibit at this years Nursing Live in Birmingham for the third consecutive year running . We look forward to sharing our Palliative and End of Life expertise and resources and celebrating the best in Nursing care. Sign up for your free place
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Learning disability and palliative care conference coming up at @StChrisHospice! Find out more below 🙌 https://t.co/775duzK52M
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‘A person with a learning disability may need more than one conversation to fully understand and accept what has happened’ - important to remember this when discussing that somebody has died 🫶🏼
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Calling our colleagues in general practice ⬇️
There’s still time to apply for this year’s Daffodil Standards Awards I know colleagues in general practice are making an enormous difference in palliative and end of life care - please consider applying!
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The #NHS should make #ReasonableAdjustments to make it easy for #disabled people to use services. Hear what works for Kareem to find out about the support you could ask for https://t.co/zjeMASXZMg
#LearningDisability
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Have you heard about the DAPPLE project? It’s a 3 year research study that aims to find the best ways to make sure that people with a learning disability get the right care and support at the end of their lives. https://t.co/Ixm2d6PX6j
dappleproject.com
DAPPLE means: Developing effective service models for Adult Palliative and end of life care for People with a LEarning disability. It is a three year research project run by Kingston University,...
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Did you know that #DisabilityPrideMonth is celebrated every July in honour of the anniversary of the signing of the Americans with Disabilities Act (ADA) in July 1990? Happy #DisabilityPride Month from all of us at the BC Epilepsy Society! #Epilepsy #EpilepsyAwareness
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Are you a carer supporting someone with a learning disability? The @unisouthampton are looking for #carers with a variety of experiences, ages, genders, and ethnicities. Find out more here!👇 https://t.co/MAImAn2WvS
#VoiceOpportunity
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A little preview of our amazing conference yesterday! Lots of dancing and brilliant discussions. Who knew talking about palliative care could be so much fun!
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As we close for the day, a brilliant afternoon here at #pcpld2025 conference: the Dapple Project, communicating grief in young people with severe and profound learning disabilities and our ‘soap box session’ . A huge thank you to all our speakers, presenters and attendees!
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Our last ever Linda McEnhill Award presented to Prof Irene Tuffrey-Wijne - our previous @PCPLDnetwork chair, academic and researcher in palliative care for people with a LD, for her incredible contribution to the field . A huge congratulations and thank you!!!
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A truly fabulous performance at #pcpld2025 conference from the inspirational Baked Beans Choir!
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A fantastic morning at #pcpld2025 conference - overview of research so far, the READY project, a hospice/CPCT LD audit, the importance of relational care and ‘on the sofa’ with some of brilliant poster presenters! Looking forward to this afternoon’s session!
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