Native BioData Consortium
@NativeBio
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First Indigenous and independent genomic biodata repository, health research, education, and training center on sovereign land. https://t.co/3DyvKhBl6S @Indigidata
South Dakota
Joined June 2019
Great #data #sovereignty READ! Thanks @samjscience @Nature featuring @NativeBio and cofounders @kstsosie @kfox @science_punx “How rapidly we can sequence. create data. commodify — I don’t think that the policy has caught up,” says Fox.
An ethical way forward for Indigenous microbiome research
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A bigger issue since 2003 and especially today ! Minerals! Water! Language! Agriculture! Plant medicines! Voting! Sales tax! Internet traffic! Human DNA! Surveillance and satellite data!
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Dear Tribal Leaders, Important! Do something before it’s Black Hills 2.0. "This environment demands strategic navigation through diverse legal terrains [] This will advance research initiatives while upholding the rights & protections of data subjects."
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This is from Jan 2024. Things have been bad for Tribal and African American data since 2003. For a time, the issue went "dark" after Havasupai. #IDSov revived it in 2014. It's now an issue of epic proportions. Please listen.
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2/2 Check out the AISES agenda for other great sessions Connect with the D4I team members presenting Kali Dale, Sakiah Perez Rivera, and Rebecca Dickinson! On Facebook, Linked In and Bluesky
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1/2 D4I is presenting at the AISES National Conference 2025 in MN! Our presentation titled “Not Like Us: Indigenous-Led Solutions for a Tribal Data Repository” will describe what D4I is doing for Indigenous data sovereignty through our work. Are you attending #AISESNC25?
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Hey! Did you know that NativeBio has funded students at Tribal Colleges and Universities (TCUs) to look at their major (no matter what it is) from the perspective of Tribal Sovereignty? We have and it's been great. Topics from Women's Rights to Language to Media production!
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Please read this article on #IDSov featuring one of our great colleagues, Mari Hulbutta, of the Chickasaw Nation. "While gaps remain, these data stories illustrate new ways tribes are leveraging data, on their own terms, o serve their communities."
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If you are a Tribally elected official. For your immediate attention.
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3 NativeBio staff were invited to Winnipeg to take part in the #IDSov movement in Manitoba. We had a great time at the "training" which was really a relation-based gathering for undergrads, graduate students & community to learn about epidemiology, Public Health & interventions.
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NativeBio is so happy to be participating & observing CHRIM and First Nations of Manitoba's first Indigenous Summer Research Institute! We expect it to be enlightening, empowering & deeply familial. Assuring Native Nation's INDEPENDENCE into the future!
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This is a big deal! A game changer for Indian Country. Thank you to @nativenews_net for reporting on it and thank you to @macfound for listeng to Tribal Leaders and Professionals in the creation of this new fund!
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Such a wonderful and relational response from ANU NCIG over on LINKED IN. We thank them for their allyship and reiteration of the principles we are all trying to hold ourselves to in this Globally sanctioned Wild West Data Landscape
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Native Bio's notoriety keeps skyrocketing upwards. We have always been part of Indigenous Data discussions & now we are colleagues with Indigenous organizations around the Globe! #IDSov is here to stay. It is spreading to African American, South African and European populations!
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What a great and co-learning week with Tribal students, faculty, staff, community members and Tribal leaders. Indigidata is designed to be an Indigenous Learning Space. Collectivizing knowledge, consensus building and going forward to face the dangers of Neocolonialism.
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RT @IndigiData: Day 2 @IndigiData .A talk from Dr. Leke Hutchins on Indigenous research methodologies and community capacity building https….
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7/7 How dare the NIH or the White House say anything about Tribes use of their own data when they move data (especially the Veterans Administration and Homeland Security's Immigrant Detention DNA program) in and out of consent all the time!
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6/7 This discusses Havasupai, Henrietta Lacks, and Golden State killer in terms of consent, Government oversteps and illegal research on Medical WASTE
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5/7 The TRIBES HAVE THE SAME RIGHT TO USE THEIR DATA TO PROTECT THEMSELVES! Most notably with blood spots & medical waste.
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4/7 Shockingly, this idea comes from our allies at the Federal level! Hypocritically, we know that the USA moves data between regulatory & legal silos all the time! Some transparent, but most not. They do this out of US Sovereignty, US National Security & for Corporate Donors.
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3/7 But they never consulted with Tribes about their data. But it gets worse. There's a horrid federal idea that has been put forward: "We support IDsov but if Tribes attempt to move data from consented to unconsented use, we will stop them, in defense of individual rights.".
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