Native BioData Consortium
@NativeBio
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First Indigenous and independent genomic biodata repository, health research, education, and training center on sovereign land. https://t.co/3DyvKhBl6S @Indigidata
South Dakota
Joined June 2019
Great #data #sovereignty READ! Thanks @samjscience @Nature featuring @NativeBio and cofounders @kstsosie @kfox @science_punx “How rapidly we can sequence.. create data... commodify — I don’t think that the policy has caught up,” says Fox.
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NativeBio ( https://t.co/B1hFAXDOj7) and Mass Design Group ( https://t.co/QNdfvAlG2I) will be at Abundant Futures ( https://t.co/I4RDeDWZaa) next week in Boston! Here's how we've worked together for Indian Country
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For now, it seems the 23 & Me "problem" has been solved but our own Co-founder & Board Member, Dr. Krystal Tsosie (Dine'-Navajo) weighed in on the controversy. This is only the beginning of the battle to protect Genomic privacy. Which side are you on?
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NativeBio is now part of the Crowd! Our own Dr. Kali Dale (Ojibwe) will be presenting at the GE3LS* Expert Focus Group Workshop August 21–23, 2025 Québec City. She will be helping Canada move forward DNA research that respects Indigenous Data Sovereignty
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Native Bio is honored and proud to long be part of the Summer Internship for Indigenous Peoples in Genomics (SING) and proud to co-sponsor the 2nd Annual SING Micronesia cohort! SING keeps going and growing. #SINGenomics
postguam.com
As biotechnology continues to advance rapidly, it is vital for communities in Micronesia to understand not only the uses and applications of these technologies, but also their broader social,...
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New Paper Alert: Indigenous Data Sovereignty in Genomics and Human Genetics: Genomic Equity and Justice for Indigenous Peoples
pubmed.ncbi.nlm.nih.gov
As the field of genomics and human genetics continues to push our understanding of disease and biodiversity through an ever-increasing pool of genomic data, it is critical to consider the social,...
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New Paper Alert: Native American Ancestry and Susceptibility to Mesoamerican Nephropathy
pubmed.ncbi.nlm.nih.gov
Native American Ancestry and Susceptibility to Mesoamerican Nephropathy
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New Paper Alert: Achieving inclusive healthcare through integrating education and research with AI and personalized curricula
nature.com
Communications Medicine - Bahmani, Cha, Alavi, Dixit et al. evaluate an AI-facilitated precision medicine learning platform they built, Stanford Data Ocean. The platform, which provided 3594...
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Registration is now OPEN for the 82nd NCAI Annual Convention & Marketplace, November 16–21, 2025, in Seattle! Join Tribal leaders, Native youth, and advocates from across Indian Country for a week of action, strategy, and community. Register today: https://t.co/r8rdPTx3ph
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2/2 It's altogether folks. One big problem between Settlers and Indigenous is the right to control what is ours by birthright: Children, Gravesites, Our Historical Narrative and OUR GENOMES!
nativenewsonline.net
Top officials from the University of California will be called to account Tuesday morning for their ongoing failure to return thousands of Native American human remains and hundreds of thousands of...
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1/2 Many folks don't understand NativeBio's mission when it come to DNA and healthcare, but for sure they understand right away when it comes to Language Data and Ancestors Remains.
cpreview.org
In 1990, Congress passed the Native American Graves Protection and Repatriation Act (NAGPRA), which outlines the process for museums, universities, and federal agencies to return Native American and...
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IF you are able....check this out....pre-register and get some of the truth and why Native communities are worried about the big data era and the threat of neocolonialism and resource extraction. ELSI and the Sale of Genetic Data: The Case of 23andMe
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Dear Tribal Leaders at @NCAI @NDNrights @lakotalaw and the Coalition of Large Tribes (COLT), Get in there and use your voice, Bayh-Dole 1980 forgot to consult with you. But you have rights too. This is $$billions you're leaving on the table.
statnews.com
A recent U.S. warning on use of 'march-in' rights against Harvard University seems like distant threat for pharma. Here's why.
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2/2 But that very powerful idea gave way to weak and non-sovereign MOU/MOAs. Here we reassert the Tribes' right to control their own resources.
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1/2 Back in 2007-2009, Alaska Tribes along with Dr. Gerald V. Mohatt recommended that Federal agencies sign contracts directly with Tribes, rather than 3rd parties like universities or Research Recruitment Nurse freelancers in or near Tribal Nations.
pmc.ncbi.nlm.nih.gov
Alaska Native (AN) and American Indian (AI) people are underrepresented in health research, yet many decline to participate in studies due to past researcher misconduct. Southcentral Foundation...
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Things are dark....but please read this aspirational description of some truly good work done by some truly good people.
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Thanks and good work D4I Tribal Data Repository !
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2/2 at long last, allow Indigenous Australians do the complex and vital work for their people without worrying about exploitation, data theft and Colonial weaponization of Tribal Data.
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1/2 If you don't know, Indigenous Data Sovereignty is on the move worldwide. We are definitely in Good Company! Here's Alex Brown from ANU NCIG (National Centre for Indigenous Genomics) talking about their many efforts and products that,
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3/3 the D4I Tribal Data Repository where we fight for all the Indigenous, their scientific, data and biological resources. Help us spread the word and fight for the next 7 generations. The beauty here is in the spirit, deeds and mutual love of the land and all it contains.
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