MTSSC Foundation
@MyThreeSicklers
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Led by Mapillar Dahn, MTS Sickle Cell Foundation is passionate about raising awareness of sickle cell disease as well as supporting families affected by SCD.
Atlanta GA
Joined November 2015
This #WorldSickleCellDay, @GSUGHPC highlights the Georgia Sickle Cell Data Collection Program—advancing science to inform policy, improve care, and enhance life for those with #SickleCell. Learn more: https://t.co/tT56wx8ruR
@MyThreeSicklers @GASickleCell @SCCConsortium
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The AVERAGE out-of-pocket prescription costs per person have only risen from $135 in 1980 to $170 in 2022. We’re not concerned with averages, but the sickest patients with complicated diseases are being taken advantage of by the PBMs. #USAFacts #PBMReform
https://t.co/ROh8BgLobk
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The time is running out! Many thanks to @RepBuddyCarter for his efforts! The GA sickle cell community is calling on @lucymcbath @SenatorWarnock @ossoff @repdavidscott @RepHankJohnson @RepNikema to please support the Kidney Patient Act. #healthygeorgia
It’s critical that ESRD patients have access to oral-only drugs to maintain their health. I led a letter with my colleagues to @CMSGov asking for guidance on how they plan to incorporate these drugs into their ESRD Bundle & how this will impact patients.
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We look forward to seeing you soon 💙💚 #MarrowMates #DiversityMatters #MarrowRegistrty #EFDS #SickleCell #SickleCellDisease @MyThreeSicklers
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The lack of awareness surrounding #SickleCellDisease has led to myths, misconceptions, and stigmas surrounding SCD that manifest as life-threatening barriers for patients seeking care and caregivers navigating life with their warriors. #IamBIO
In the recent #IamBIO episode, Mapillar Dahn of @MyThreeSicklers discusses the barriers and discrimination many sickle cell patients and caregivers receive when seeking care. 🎧Listen Now - https://t.co/nLByMeuggK
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A new season of the #IamBIO podcast is here! In the season’s first episode, we talk to the company behind the CRISPR-based therapy for sickle cell patients, and speak with two advocates for the disease. 🧬 🎧Listen now: https://t.co/nLByMeuggK
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We asked: What do you know now that you wish someone had told you? “I wish doctors would have told us the same pills they been giving us for pain would later on in life be the reason they call us drug seekers and drug addicts 😡” ~ @hef_back
#WarriorStrong #SickleCell
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Sickle Cell Awareness Grant Thrilled to announce that library systems all across Georgia can now apply for a Sickle Cell Awareness Grant as part of the MTS Sickle Cell Foundation's partnership with the @georgialibs. https://t.co/FEdDSk9I40.
#SickleCell #fundingopportunity
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The proposed #SMARTPricesAct is harmful to seniors and patients with disabilities. This legislation would rob vulnerable patient groups of essential access to care and the development of new, lifesaving medications. We need Congress to reject this harmful proposal!
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People living with chronic illnesses like #SickleCellDisease need quick & affordable access to innovative treatments. We must prioritize patient choice and reject the #SMARTPricesAct.
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Foundation Serving Sickle Cell Families Awards $10,000 in Scholarships - https://t.co/k9GbUAkwAB
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Thank you @SecBecerra for your commitment to #SickleCell. As someone who has twice had a seat at your roundtables on SCD, I recognize the spotlight that your bully pulpit shines on this global health issue. Reminder: June 19th is #WorldSickleCellDay.
This morning, I convened federal partners, agencies, and leaders outside of government for a conversation about Sickle Cell Disease. By focusing on data quality and collaboration, we can truly make a difference in tackling this complex disease.
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May is Double Donations Month! All purchases have doubled rates to help MTS Sickle Cell Foundation, Inc.. https://t.co/9p7vGNKai4
#iGiveDoYou
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Help MTS Sickle Cell Foundation, Inc. every time you shop: https://t.co/9p7vGNKai4
#iGiveDoYou
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Help MTS Sickle Cell Foundation, Inc. every time you shop: https://t.co/9p7vGNKai4
#iGiveDoYou
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$5 New Member Shopping Bonus! Join now, when you make your first purchase within 30 days, we'll give you an extra $15 bonus for MTS Sickle Cell Foundation, Inc.. https://t.co/9p7vGNKai4
#iGiveDoYou
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$5 New Member Shopping Bonus! Join now, when you make your first purchase within 30 days, we'll give you an extra $15 bonus for MTS Sickle Cell Foundation, Inc.. https://t.co/9p7vGNKai4
#iGiveDoYou
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$5 New Member Shopping Bonus! Join now, when you make your first purchase within 30 days, we'll give you an extra $15 bonus for MTS Sickle Cell Foundation, Inc.. https://t.co/9p7vGNKI7C
#iGiveDoYou
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$5 New Member Shopping Bonus! Join now, when you make your first purchase within 30 days, we'll give you an extra $15 bonus for MTS Sickle Cell Foundation, Inc.. https://t.co/9p7vGNKai4
#iGiveDoYou
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