Most Premature Babies Priority Setting Partnership
@MostPremBabies
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This is your chance to influence research into the Most Premature Babies born before 25 weeks of gestation (around 4 months early)
Australia and the UK
Joined July 2022
Thank you to our many wonderful supporters, workshop participants & collaborators involved in this important work.
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#MostPremBabies Research Priority No #10 Our last priority rounding out our Top 10! How can families be best supported during their baby's neonatal intensive care admission? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #9 ❓How can antenatal counselling be improved for families facing the possible delivery of a baby before 25 weeks' gestation? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #8 ❓What is the best way for families to be more involved in the care of their baby during their hospital admission? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #7 ❓What is the most effective postnatal steroid treatment regimen to improve outcomes? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #6 ❓What is the best way to manage pai and distress in babies? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #5 ❓What are the long-term outcomes and how are they best predicted? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #4 ❓What interventions or treatments during pregnancy and labour can improve outcomes? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #3 ❓What is the best way to prevent brain injury, including intraventricular haemorrhages (bleeding in the brain)? @NPEU_CTU
@MCRI_for_kids
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#MostPremBabies Top 10 Research Priority; No. #2 ❓How can we improve the care of babies at delivery and in the hours after birth to improve outcomes? @NPEU_CTU
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📢This is what people with lived experience, parents/carers & HCPs want to know about premature babies born <25wks gestation📢 #MostPremBabies Research Priority #1⃣: What can be done in the neonatal intensive care unit to improve long-term health & developmental outcomes?
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📢Our #TOP10📢 Read what people with lived experience, parents & Healthcare Professionals want to know about the most vulnerable babies born <25wks gestation. Check back over the coming weeks for more deep dives into what consumers/PPI believe researchers should be focusing on.
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Learn more about how the @LindAlliance process was used to identify and select the #Top10 research priorities in babies born <25wks gestation. Read about it here: https://t.co/JBXxkO6iNs Visit our website: https://t.co/gm9JE5vdOn
@MCRI_for_kids @NPEU_CTU
@LindAlliance
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❌Results are in & publication is out!❌ Our manuscript, "Research Priorities for the Most Premature Babies born <25wks gestation: results of an international PSP," now avail in @BMJ_Open ADC Fetal & Neonatal Ed. Learn how we established the #TOP10 here https://t.co/JBXxkO6iNs
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❌COMING SOON❌ The #Top10 unanswered research questions in the #MostPrematureBabies born <25wks gestation will be announced soon! Hear of future research directions & the #Top10 identified priorities as informed by parents, people with lived experience & HCPs. SPREAD THE WORD
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So cool 😎 to have @Stacey_H_84 at #CoolTopics2024 presenting the background and results of the @MostPremBabies priority setting partnership for babies born before 25 weeks’ gestation! #neoTwitter
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On our way to defining the #Top10 research priorities for the @MostPremBabies Priorities Setting Partnership! Watch this space! #togetherwecan improve outcomes for the tiniest babies and their families.
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