Michael Rynne
@MichaelRynne1
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CLL advocate in CLL Ireland and globally in CLL Advocates Network. Working for the unmet needs of the CLL community in Ireland. Chronic lymphocytic leukaemia
Dublin City, Ireland
Joined September 2017
RT @DeasyPamela: Day 2 of @dice_europe Masterclass. Looking forward to another day of learning and networking . @dice_europe #DiceMastercla….
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Great patient advocate who is doing so much for the cancer community. Well done @DeasyPamela 👏👏.
#Day182 of #200daysofwalking . #Tuesday walking around airports today . Schooldays again for the next 3 days 😊📝👩🏼💻
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RT @MichaelRynne1: @mccarthymt7 @rtenews @HSELive Prof Barry is using the art of distraction from the real issues that impact patients whi….
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RT @UCANIRELAND: Please read UCAN statement in response to comments attributed to Prof Michael Barry @INFO_NCPE . We as patients and advoc….
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RT @donalb5: Great to see these in print - trying to support clinical trial activity in Ireland. Thanks to all involved.
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RT @Eimears_Wish: Please join the bone marrow donor register. Anyone aged 16-30, who is in good health can join @AnthonyNolan aged 17-55 @D….
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RT @HorganRoberta: This is so wonderful! Very emotional hearing this young lady speak about the impact of being diagnosed with a rare genet….
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A teenager from Norfolk has become the first patient in Europe to be given a newly licensed treatment which could potentially cure her life-threatening, inherited disorder.
Drug for rare disease brings 'joy and hope'
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RT @HorganRoberta: "This study aimed to understand these patients’ experiences and needs, including their information needs, their views on….
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RT @Liz_ORiordan: ON @BBCPanorama tonight - the story of Paloma Shemirani, a young woman with an 8cm lymphoma inside her chest, and an 85%….
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RT @ABC: A newer COVID-19 variant may be causing a severe sore throat in some people who contract the infection. The variant, known as NB.….
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Cancer in Ireland:.We manufacture and export €250 billion in pharmaceutical products here in Ireland but when it's come to access cutting edge cancer treatments we have the lowest access in the EU.Germany approved 54 new cancer meds to Irelands 14. @ColmBurkeTD .@PaulMcauliffe
Thank you @ColmBurkeTD for raising this issue. To correct you slightly, there is already rapid and comprehensive access to new cancer drugs in Ireland for those with private healthcare insurance. I understand that the VHI are the most efficient, but other major insurers are not.
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RT @UCANIRELAND: Few understand the challenges faced more than those experiencing them. Great patient-led #research survey on impact of #….
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RT @Lynchsyndromirl: Improving Cancer Outcomes with Better Lynch Syndrome Testing: A Cost-Benefit Study via @lynchs….
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Lymphoma patients need timely access to treatments. This family live one hour from a CAR T centre in Dublin but had to travel to London. Do our governments discuss cross border access?.@CarrollJennifer @wesstreeting.@SorchaEastwood.@knowyournodes
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RT @HorganRoberta: At @UCANIRELAND it's our mission to highlight inequalities in access to cancer treatments & fight for patients. This is….
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RT @Pavlovsky_Mig: FLAIR phase 3 trial results: !! .Amazing results with an unprecedented 5 year PFS > 90% for I +….
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RT @Pavlovsky_Mig: @MichaelRynne1 Are we ready to adopt MRD guided schedule ? Amazing results.
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RT @CLLAdvocates: Presented at #EHA2025:.Among patients with CLL undetectable MRD and progression-free survival were more common with ibrut….
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More from the Flair trial results at #EHA2025 .Ibrutinib plus venetoclax significantly improved responses, progression free survival and overall survival in CLL.
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