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Jenn Heater, Chief Oddity (she/her) Profile
Jenn Heater, Chief Oddity (she/her)

@Medical_Oddity

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Following
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Media
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Statuses
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I'm not sick, I'm medically complex. Chronic Migraine Warrior| Director of Resources & Policy @MyChronicBrain I 💜Advocacy

California, USA
Joined May 2016
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
10 years
Spiffing up my bio, looked for an emoticon to add.This is all I found: 🍴Much like me, no spoons. #spoonies #spooniesunite #invisibleillness
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
1 year
@ATT I truly can’t believe I posted about this in September and my internet has been on the fritz this long. Help!
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
1 year
And so it continues! @ATT doesn’t seem to care that I can’t access the internet. My household is two seniors and one disabled individual and no one will help us fix our internet access. Do better @ATT. #access #internet #TechSupport #senior #disabled
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@TheHillEvents
The Hill Events
1 year
Now on @TheHill’s ‘Closing the Women’s Health Gap’: Headliner Interview | Migraine: Gender & Health Lens w/ @joannakempner, Associate Professor – Sociology, @RutgersU; Author, Not Tonight: Migraine and the Politics of Gender and Health. #TheHillHealth
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@TheHillEvents
The Hill Events
1 year
Live on @TheHill’s ‘Closing the Women’s Health Gap’: Panel | Migraine Education & Patient Perspective w/ Lindsay Videnieks (@headachepolicy), Julienne Verdi (@AHDAorg), & Katie Moran (@miles4migraine). Share your opinion, tweet at #TheHillHealth
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@TheHillEvents
The Hill Events
1 year
First on @TheHill’s ‘Closing the Women’s Health Gap’ t: Headliner Interview | The Real Cost of Migraine w/ Dr. Jessica Ailani, Clinical Professor – Neurology, @MedStarGUH; Director, MedStar Georgetown Headache Center. Tweet your thoughts at #ThehillHealth
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@TheHillEvents
The Hill Events
1 year
WATCH LIVE: @TheHill’s ‘Closing the Women’s Health Gap’ is starting! Hear from Dr. Jessica Ailani (@MedStarGUH), @joannakempner, Lindsay Videnieks (@headachepolicy), Julienne Verdi (@AHDAorg), & Katie Moran (@miles4migraine). Tweet us at #TheHillHealth
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
1 year
I have been given the worst run-around of my life trying to upgrade my internet. @ATTHelp, do better.
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@shades4migraine
Shades for Migraine
2 years
Did you know that #healthcare costs for people with #migraine are about $6,575 higher per year than for people without migraine in the U.S.? Learn more about migraine: https://t.co/i5iahiRsoi
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@US_Pain
U.S. Pain Foundation
2 years
Between 28% and 61% of people experience the transition from acute to chronic pain after injuries or surgeries. But why? Our 2022 KNOWvember campaign explored these factors: https://t.co/TPBM3y9OAX #PainAwarenessMonth #PainTrials #AcutePain #ChronicPain
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@US_Pain
U.S. Pain Foundation
2 years
Between 28% and 61% of people with acute pain may develop chronic pain. The #A2CPS program seeks to predict why, so that targeted treatments can help prevent acute-to-chronic pain. Learn more: https://t.co/3kUwevramN #PainTrials #PainAwarenessMonth #NIHPainProgress #ChronicPain
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@US_Pain
U.S. Pain Foundation
2 years
BREAKING ADVOCACY NEWS! This afternoon, @SenBobCasey, @MarshaBlackburn, @timkaine and @kevincramer introduced legislation to support people living with #chronicpain. Senators, thank you for recognizing the 51.6+ million Americans who live with pain.
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@US_Pain
U.S. Pain Foundation
2 years
The Preclinical Screening Platform for Pain, part of the @NIH HEAL Initiative, is an efficient, rigorous, one-stop screening resource to accelerate discovery of effective, non-addictive pain therapies. https://t.co/vl81xGJOMq #NIHPainProgress #PainTrials #PainAwarenessMonth
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@MigraineDisordr
Association of Migraine DisordersÂŽ
2 years
Join us and IVPN Neuropsychiatry for a webinar on "Novel Approaches for the Management of #Migraine" on Thursday, August 31st at 12pm ET. Register now: https://t.co/h582EgQhrI
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@shades4migraine
Shades for Migraine
2 years
Curious about why #migraine disease affects people of various sexual orientations and gender identities at different rates? Yuri Cárdenas writes about why this may occur along with potential areas for future #research in this @MigraineDisordr blog! 🔗 https://t.co/5lmDcbfW8n
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
3 years
Went to my local @Target today. Zero seating for disabled shoppers. And when asked was told, we can pull out a chair for you.” Not acceptable. Do better Target. #AccessibilityMatters #DisabilityInclusion #disabledRights #accessibility
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
3 years
@CMAware
ChronicMigraineAware
3 years
One way you can take care of your mental health is to do something fun! Find us at the CMA Craft Room at Retreat Migraine May 5-7! 💜❤️💜 Get your tickets at https://t.co/sWFcRSK89F #RetreatMigraine #MINDyourMigraine⁠
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@NPAF_tweets
NPAF
3 years
Be a part of the best community event for people living with #migraine — Retreat Migraine! You’ll learn from experts, connect with others, and leave feeling empowered. Register now: https://t.co/V8sTbgKeCE #RetreatMigraine #MINDyourMigraine
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
3 years
“Not just a headache.” I would say louder for those in the back, but loud sounds and bright light are like kryptonite during an attack. Today we descend on Congress telling our stories, fighting stigma, changing hearts & minds. This is why we advocate! @AHDAorg #HOH2023
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@Medical_Oddity
Jenn Heater, Chief Oddity (she/her)
3 years
…to tell you what you are or aren’t feeling. You are the expert on your body and what it’s feeling, not them!" #nurses #patients #chronicillness #professionalpatient #advocate (2/2)
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