Mary Fiance
@MaryFiance
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VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn
Manhattan, NY
Joined July 2012
Proud to receive this recognition from @marquiswhoswho for my work in #communications 🎉 https://t.co/uGkBzHe8Qf
24-7pressrelease.com
June 4, 2025 -- Mary E. Fiance celebrated for more than two decades of professional success
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A historic year. Real progress. A community moving #ForwardTogether 💙💛 In her first End of Year message, MDA President & CEO Sharon Hesterlee, PhD reflects on MDA’s 75th anniversary and how 2025 set the stage for what’s next. Read more: https://t.co/5iErgiZGRG
#MDA75
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🎥 From Sharon Hesterlee, PhD: Don’t miss your final chance to join the global #neuromuscular research community at the 2026 #MDAconference, March 8–11 in Orlando! ⏰ Early-bird registration closes December 31 — secure your spot now ➡️ https://t.co/WB7Utcpcya
#RareDisease
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Cutting NIH funding stalls life-changing progress. As Congress debates NIH and medical research, remind them who they fight for—families like Katie’s. Take action with MDA Ambassador Katie Brooks. Join us: #SupportNIH 👉 https://t.co/ILc4ebos93
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Duchenne’s addition to the Recommended Uniform Screening Panel is a defining moment for the community and a major step forward for newborn screening nationwide. 💙💛💪 👉 https://t.co/NqEeAM7TpR
#Duchenne #NewbornScreening
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#FDA approves @Amgen's UPLIZNA for adults with #gMG—offering more treatment options and potential long-term control with just 2 doses a year. 🙌 #MDA honors everyone who made this possible and remains committed to care and research. 💙💛💪 More: https://t.co/NWjriA2HlT
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(1/3) We’re excited to share that John F. Crowley, President & CEO of @IAmBiotech, will keynote the 2026 @MDAorg Clinical & Scientific Conference this March. More info: https://t.co/cEZDfDnvck
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👏👏👏❤️❤️❤️let’s do this! Watch. Laugh. Donate!
musculardystrophy.donorsupport.co
Your generosity today goes TWICE as far to accelerate research, care, and advocacy for families living with neuromuscular diseases. Make your gift by midnight on December 31 to double your impact and...
My dad and I turned Christmas carols into a fundraising competition with my mom conducting! Donate to support @mdaorg’s work for people living with #ALS Donate 👉 https://t.co/VHbAJQN9R0
#GiveStrength #ForwardTogether #EndALSwithMDA #MDA75 #MDApartner
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Big news for the spinal muscular atrophy (SMA) community! The FDA has approved @Novartis' Itvisma — a new treatment option for everyone ages 2+ living with SMA. A major step forward for families. 💙💛💪 👉 https://t.co/cNM2NhdHdY
#SMA #GeneTherapy #MDA #Neuromuscular
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Proud to be chosen by @NFL players for #MyCauseMyCleats and grateful for their support of our mission to empower people living with #MuscularDystrophy, #ALS, and other #neuromuscular conditions. 💙💛💪 Learn more: https://t.co/PskoO2HDPX
#MDA75 #ForwardTogether #MDAstrong 🏈
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Thank you @SenCapito for meeting with us this week! 💪 #MDAontheHill25
Appreciated meeting West Virginians on Capitol Hill today with @MDAorg! Your work and advocacy is vital to ensure all West Virginians have the care and resources they need.
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💙💛🔥 @MDAorg advocates visited #CapitolHill this week to meet with lawmakers and promote research, funding, and caregiver support, with #IAFF members playing a key role in making it happen.
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Appreciated meeting West Virginians on Capitol Hill today with @MDAorg! Your work and advocacy is vital to ensure all West Virginians have the care and resources they need.
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Welcome to Washington, DC! MDA advocates are beginning #MDAonTheHill25 by celebrating with their fellow advocates and #MDA staff from across the country at an opening reception. We are so excited to have you with us! #Advocacy #MuscularDystrophy #ALS #Neuromuscular
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When the next 75 years start with the impact you’ve already made 🙏 Families got answers. Kids built independence. Caregivers felt supported. Research & advocacy moved forward. We can’t thank you enough. 💙💛 #ForwardTogether #MDA75
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Inspired by his uncle and cousin who lived with muscular dystrophy, Zack has volunteered at MDA Summer Camp for the last 14 years. He says the community gives him strength, but it’s his commitment that makes us stronger. Thank you, Zack! #ForwardTogether #MDA75 #MDAVolunteer
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The Muscular Dystrophy Association's agenda at its 2026 MDA Clinical & Scientific Conference in March will focus on groundbreaking research. https://t.co/o1mYXud3UV
#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
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💡 The @MDAorg drives research, care & advocacy for 300+ neuromuscular conditions Learn more: https://t.co/8Eu9q8sxGj
#RareAdvocacySpotlight #RareDisease #PatientAdvocacy #MDAStrong
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🌟 The Gold Standard in Care 🌟 The @MDAorg is widely considered the benchmark for multidisciplinary care in neuromuscular conditions. Discover how MDA continues to lead the way. 👉 Explore here: https://t.co/8Eu9q8sxGj
#RareAdvocacySpotlight #MDAStrong
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🔎 Explore @MDAorg Advocacy From national policy to local community efforts, MDA is improving access to care and opening doors for involvement. See how you can advocate: https://t.co/8Eu9q8sxGj
#RareAdvocacySpotlight #MDAStrong #MuscularDystrophyAssociation
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💙 What does it mean to be #MDAStrong? Strength is resilience. Strength is progress. Strength is community. Learn more about @MDAorg: https://t.co/8Eu9q8sxGj
#RareAdvocacySpotlight #RareDisease #RareAdvocacy #MuscularDystrophyAssociation
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