Marnie Deschenes
@MarnieDeschenes
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Passionate PANS PANDAS AE Advocate
Calgary, Alberta
Joined November 2017
Canadian PANS PANDAS caregivers, you’re invited to join Jessica in two weeks for a supportive peer meeting. Details in the post!
Caring for someone with PANS/PANDAS? You’re not alone. Join our caregiver session on Wed, Dec 3 (6:30–8:30 PM ET): Acknowledging Stress & Coping Tools. Hosted by Jessica, yoga therapist + PANS parent. Register: https://t.co/A1xl9weqAU
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Add your voice to the Canadian PANS Registry. Together, we can strengthen understanding and improve care for Canadians affected by PANS and PANDAS.
We’re halfway to our 2025 goal of 100 patients for the #CanadianPANSRegistry! The CPR is ethics-approved and collects info on PANS/PANDAS to support research, improve care, and strengthen advocacy. ➡️ Participate (10–20 min): https://t.co/d7mqh5p9e7
#ResearchForCures
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🌿 Join Our Peer Support Team! As Canada’s PANS/PANDAS community grows, so does the need for compassionate voices. Peer support can make a real difference: If you can listen, support, and create a safe space, we’d love to hear from you. 👉 Contact: nancy@inflamedbrain.org
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Meet Daniela Burgoa, our new Work Integrated Learning student from York University! “IBA is of interest to me due to my passion for bringing health access and information to different communities. I’ll be working alongside Marnie and others to bring the 2027 conference to life!”
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For many, Halloween means costumes, lights & laughter. For children with PANS/PANDAS, it can feel out of reach. Tonight, let’s hold space for those who can’t join in. We see you, parents. We celebrate every step of your child’s progress. 🧡
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Calgary Lights Up for PANS PANDAS! One week ago, Calgary joined families and advocates from across Canada — and the world — to #LightUp4PANS. Every light and voice shows the power of community, locally and globally. #WorldPANSDay #InflamedBrainAlliance #CalgaryCommunity
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💚 Caring for someone with PANS or PANDAS in Canada? Join our next Hope Companions Caregivers Meeting — a virtual space to connect, share & find support. 🗓 Oct 22 | 6:30–8:00 PM (PT) 💬 Topic: Support & Resources Hosted by Moira. 🌿 🔗 https://t.co/GAlF0roa0k
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Happy Thanksgiving from the Inflamed Brain Alliance! We’re grateful for our incredible PANS & PANDAS community — patients, families, caregivers, clinicians, researchers & advocates who keep hope alive every day. 🧡 Wishing you rest, warmth & gratitude this Thanksgiving. 🍂
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💚 Alberta officially recognizes World PANS/PANDAS Awareness Day — forever! 💚 9 years strong thanks to the Inflamed Brain Alliance & families shining a light for kids with PANS/PANDAS. 📄 https://t.co/o5Ve682uhO
#LightUp4PANS
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The world is lighting up for Oct 9 World PANS PANDAS Awareness Day! 💚 232 landmarks • 16 partners • 8 countries Full list: https://t.co/o5Ve682uhO Find one near you: https://t.co/cHHY2I4VTl Visit, snap a pic & share hope! 💡 Tag @inflamedbrain_
#LightUp4PANS
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Today (Oct 9) is World PANS PANDAS Awareness Day 💚 These treatable brain–immune disorders can cause sudden changes in a child or adult's emotions, behaviour, or ability to function. 💡 Learn more → https://t.co/KC2TCeU80x
#PANS #PANDAS
#BrainInflammationAwareness
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We have 73 Canadian landmarks lighting up across the country! 🇨🇦 💚 Click the Google Maps link to find one near you and visit in person. Let’s light up social media this Thursday, Oct 9 for World PANS PANDAS Awareness Day! 💡 #LightUp4PANS
🌍 This Thurs, World PANS PANDAS Awareness Day lights up 225+ landmarks 💚 Green = mental health awareness & PANS/PANDAS care. 📄 Poster: https://t.co/VAFZSNfBA6 🗺️ Find a landmark: https://t.co/cHHY2I4VTl 📸 Snap & share #LightUp4PANS
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We’ve already surpassed last year‘s total! Don’t forget to add your #LightUp4PANS profile frame. (Canva link in post.)
The glow is growing! On Oct 9 – World PANS PANDAS Awareness Day – 219 landmarks will shine green worldwide. Surpassing last year’s 206, each one is a beacon of hope. Next update Oct 6: interactive map Upload profile frame: https://t.co/iA969qVDmo
#LightUp4PANS
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Thanks to the collaboration of these 15 organizations, awareness will shine even brighter this October 9!
🌍 This Oct 9 – World PANS PANDAS Awareness Day – 186+ landmarks will glow green, shining hope for families facing PANS/PANDAS. Join the #LightUp4PANS global campaign & show your support! Add a profile frame: https://t.co/iA969qVDmo
#Green4PANS #GlobalPartnership
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I’m amazed at the support for IBA’s 3rd annual walk. If you’re not doing anything tomorrow between noon and 3 PM drop in at one of the in-person locations or step out virtually to honor children and families battling PANS PANDAS. You will not be disappointed!
Change begins with one person’s commitment to take that first step. Your decision can spark a ripple effect that impacts every child and loved one living with PANS/PANDAS. Be that person. Join us tomorrow! 🌱 https://t.co/36MJNZkclW
#SteppinOut25
#BeTheChange
#OneStepAtATime
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Calgary friends, I’d love to have you join me at this years Steppin’ Out for PANS PANDAS 2 & 5 km walk at Bowness Park. Check-in starts at noon, and the walk begins at 1. Hope to see you there!
International groups are walking too. Together, we tell the world: Our children matter. Our families matter. We won’t stop until PANS/PANDAS is understood and treated. Let’s walk in solidarity. 🌎 https://t.co/36MJNZjEwo
#SteppinOut25
#GlobalSolidarity
#PANSawareness
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Just 4 more sleeps! There’s still time to join us. Every step shows our kids hope in action and gives them strength.
When children see people walking for them, they feel pride and belonging. They know their struggles matter—and that people care. Walk to lift them up. 🌟 https://t.co/36MJNZkclW
#SteppinOut25
#EmpowerChildren
#PANShope
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Did you know a large part of IBA’s walk funds went to hosting Canada’s 1st national medically accredited PANS PANDAS conference + creating the ethics-approved Canadian PANS Registry? 🙌 Help IBA keep building—support the 2027 conference, registry upkeep + more.
Every dollar raised supports research, medical education, and advocacy—bringing us closer to faster diagnoses and better treatments. Be part of the progress, step by step. 🔬 https://t.co/VxjulyRxK1
#SteppinOut25
#PANStreatment
#HopeThroughResearch
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Many PANS PANDAS families have never met in person. Kids feel seen and understood when they do, stigma fades and hope grows. 💕 Join our Canadian community this Saturday!
Walking is a reminder—for your child and for yourself—that you are not alone. It’s a powerful way to stand shoulder to shoulder with families who truly understand. Let’s walk this together. 👨👩👧👦 https://t.co/36MJNZkclW
#SteppinOut25
#PANSsupport
#UnitedForChildren
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Every step counts! 👟 The more families and supporters walking together, the stronger our voice for PANS/PANDAS awareness. There’s still time to join. See u there!
Numbers matter. A bigger turnout shows policymakers and healthcare leaders that PANS/PANDAS families deserve attention. 📣 Change starts with parents—your presence amplifies our voice. Walk with us: https://t.co/36MJNZkclW
#SteppinOut25
#PANSadvocacy
#FamiliesForChange
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