Inflamed Brain Alliance
@inflamedbrain_
Followers
443
Following
331
Media
524
Statuses
786
Canadian charity on a mission to restore brain health for everyone affected by PANS/PANDAS by improving health, delivering education, and accelerating research.
Calgary, Alberta
Joined March 2021
https://t.co/7eBVomoEnD Professor Marta Cohen told Sheffield Coroner's Court newly reviewed blood tests confirmed Mia Lucas had autoimmune encephalitis, an inflammatory condition of the brain known to cause severe psychiatric symptoms @1goodtern
itv.com
12-year-old Mia Lucas was suffering from psychosis caused by an inflammation of the brain before her death at Sheffield's Becton Centre. | ITV News Calendar
2
15
35
Caring for someone with PANS/PANDAS? You’re not alone. Join our caregiver session on Wed, Dec 3 (6:30–8:30 PM ET): Acknowledging Stress & Coping Tools. Hosted by Jessica, yoga therapist + PANS parent. Register: https://t.co/A1xl9weqAU
0
2
2
We’re halfway to our 2025 goal of 100 patients for the #CanadianPANSRegistry! The CPR is ethics-approved and collects info on PANS/PANDAS to support research, improve care, and strengthen advocacy. ➡️ Participate (10–20 min): https://t.co/d7mqh5p9e7
#ResearchForCures
0
0
1
Meet Daniela Burgoa, our new Work Integrated Learning student from York University! “IBA is of interest to me due to my passion for bringing health access and information to different communities. I’ll be working alongside Marnie and others to bring the 2027 conference to life!”
0
1
0
🌿 Join Our Peer Support Team! As Canada’s PANS/PANDAS community grows, so does the need for compassionate voices. Peer support can make a real difference: If you can listen, support, and create a safe space, we’d love to hear from you. 👉 Contact: nancy@inflamedbrain.org
0
2
2
For many, Halloween means costumes, lights & laughter. For children with PANS/PANDAS, it can feel out of reach. Tonight, let’s hold space for those who can’t join in. We see you, parents. We celebrate every step of your child’s progress. 🧡
0
4
5
🧡 Caring for someone with PANS or PANDAS? Join fellow caregivers Wed, Oct 22, 6:30–8 PM (PT) to share experiences, gain practical tools, and connect with a supportive community. Hosted by Moira. 🔗 Register: https://t.co/eC3oDeli1E
#PANS #PANDAS #CanadianCaregivers
0
0
0
Calgary Lights Up for PANS PANDAS! One week ago, Calgary joined families and advocates from across Canada — and the world — to #LightUp4PANS. Every light and voice shows the power of community, locally and globally. #WorldPANSDay #InflamedBrainAlliance #CalgaryCommunity
0
6
4
💚 Caring for someone with PANS or PANDAS in Canada? Join our next Hope Companions Caregivers Meeting — a virtual space to connect, share & find support. 🗓 Oct 22 | 6:30–8:00 PM (PT) 💬 Topic: Support & Resources Hosted by Moira. 🌿 🔗 https://t.co/GAlF0roa0k
0
1
0
Happy Thanksgiving from the Inflamed Brain Alliance! We’re grateful for our incredible PANS & PANDAS community — patients, families, caregivers, clinicians, researchers & advocates who keep hope alive every day. 🧡 Wishing you rest, warmth & gratitude this Thanksgiving. 🍂
0
3
4
💚 Alberta officially recognizes World PANS/PANDAS Awareness Day — forever! 💚 9 years strong thanks to the Inflamed Brain Alliance & families shining a light for kids with PANS/PANDAS. 📄 https://t.co/o5Ve682uhO
#LightUp4PANS
0
5
6
💚 Today, we’re lighting our York Ave lobby in green to support those affected by PANS and PANDAS on World PANS PANDAS Awareness Day. 📊 Affecting about 1 in 200 children, many go years without a diagnosis. Early recognition can change lives! #lightup4pans @inflamedbrain_
0
7
8
Very low water levels at Rutland Water allowing for some unusual views of Normanton Church which was flood lit green to raise awareness of PANS/PANDAS disorders #floodlit #rutlandwater
1
7
64
The world is lighting up for Oct 9 World PANS PANDAS Awareness Day! 💚 232 landmarks • 16 partners • 8 countries Full list: https://t.co/o5Ve682uhO Find one near you: https://t.co/cHHY2I4VTl Visit, snap a pic & share hope! 💡 Tag @inflamedbrain_
#LightUp4PANS
0
6
5
Today (Oct 9) is World PANS PANDAS Awareness Day 💚 These treatable brain–immune disorders can cause sudden changes in a child or adult's emotions, behaviour, or ability to function. 💡 Learn more → https://t.co/KC2TCeU80x
#PANS #PANDAS
#BrainInflammationAwareness
0
10
10
This global campaign is a huge effort from 15 organizations worldwide, and we’re so grateful to the amazing IBA volunteers who led this initiative to make it happen. We invited our global partners to join last year & it’s growing every year! Which landmark will you be visiting?
💚 On October 9 — World PANS PANDAS Awareness Day — 226 landmarks around the world are lighting up for #LightUp4PANS, including 73 right here in Canada! Which one will you be visiting and snapping a photo of? Drop a comment below and show your support! https://t.co/tKbCUW5rJB
0
5
5
@inflamedbrain_ 🟢🟢🟢🟢🟢 #LightUp4Pans
Our Chairperson, Councillor Philip Campbell, will light up Newry Town Hall and Down Leisure Centre green on Wednesday 8 October, in support of a campaign raising awareness of PANS and PANDAS 💚. These two neurological conditions can have devastating effects on children and young
0
3
4
💚 On October 9 — World PANS PANDAS Awareness Day — 226 landmarks around the world are lighting up for #LightUp4PANS, including 73 right here in Canada! Which one will you be visiting and snapping a photo of? Drop a comment below and show your support! https://t.co/tKbCUW5rJB
google.com
Global #LightUp4PANS landmarks for October 9 World PANS PANDAS Awareness Day
1
6
5
📍 Meet-up details: 🗓️ Calgary Tower – Wed, Oct 8, 8PM Meet: Parking lot at 1 St SE & 11 Ave SE (across from Starbucks) 🔗 https://t.co/Oej7FkD9q7 🗓️ Reconciliation Bridge – Thu, Oct 9, 7PM Meet: RiverWalk Lookout 🔗 https://t.co/3p68drn8Ae 💚 We’ll have signs for photos!
0
1
1
✨ Calgary families! Join us for TWO #LightUp4PANS meet-ups 💚 📍 Calgary Tower – Oct 8, 8PM 📍 Reconciliation Bridge – Oct 9, 7PM Both landmarks #LightUpGreen for World PANS PANDAS Awareness Day 🌍 Come snap a pic & share your support!
1
3
4