MNDA CARDIFF & VALE
@MNDACARDIFFVALE
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Working together in Cardiff & The Vale to raise awareness of & money for MNDA & support people with MND in the local area #aworldfreefrommnd
CARDIFF
Joined May 2014
Thank you so much for your support, Bambos!
I am proud to support @mndassoc and their #PrescribeLife campaign. Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.
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📢Calling all MND carers in Wales The @seneddhealth and social care committee are undertaking an enquiry into support for unpaid carers and would like to hear directly about your experiences. ✍️Please contact us if you would like to participate campaigns@mndassociation.org
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Thank you so much for your support towards the #MND community, @FJMcNally!
Today at Westminster I showed my support for @mndassoc in calling for equal access to Tofersen for all people with SOD1 MND. I was pleased to stop by their Day of Action event in Parliament Square and then raised the issue in Parliament this afternoon. #PrescribeLife
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Today, we joined colleagues in Westminster to demand equal access to tofersen for all people with SOD1 MND. Huge thanks to Ellis, who is living with SOD1 MND in Wales, and Darren for joining us and helping hand in the petition with over 21,000 signatures. #PrescribeLife
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Today @mndassoc are here in Westminster calling on the government to work with NHS England to make tofersen, a breakthrough drug, available to people with SOD1 #MND. We have written to @DHSCgovuk urging them to act. Read more here: https://t.co/OsWLAmn1UE
bbc.com
Seckin McGuirk is one of 12 people with a type of Motor Neurone Disease who do not have access to a game-changing new drug.
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In this episode of MND Matters, our Chief Executive Tanya Curry and Director of Engagement, Richard Evans, reflect on a transformative year for the MND Association. Tanya and Richard share how we're stepping up with urgency and ambition to focus on impact. 🎧 #MNDMatters
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Thank you everyone for helping our #PrescribeLife petition reach 20k signatures! Your support brings us closer to helping people living with SOD1 #MND access #tofersen. You still have time to sign 👇 https://t.co/K3cr7nV5oD
act.mndassociation.org
Join our Prescribe Life campaign to help people living with SOD1 MND access a life-changing treatment Add your name now to join our campaign to make this revolutionary SOD1 MND drug available to all
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Missed out on the #LondonMarathon? No worries! Your 26.2 mile moment is still waiting! Join #TeamMND in Leeds, Brighton, Paris or Manchester and run for a future free from MND. 💙 Bucket list ✅ Life-changing cause ✅ 🏃♂️#MND
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Very proud to read this post celebrating our remarkable founder, Euan MacDonald MBE. 🏆
From launching Euan's Guide to setting up the Euan MacDonald Centre for MND Research and helping people save their voices with SpeakUnique, Euan MacDonald MBE never stopped pushing boundaries after his diagnosis. This #MNDAwarenessDay we honour his legacy
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My silence isn’t a choice. If you had 21 seconds left to speak what would you say? 😶 Take 21 seconds of silence. 📱 Text '21SECONDSFORMND' to 70560 to donate & help 🫂 Nominate 3 friends to do their 21 second silence #GlobalMNDAwarenessDay
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Tonight, Roath Park Lighthouse will be illuminated in vibrant shades of blue and orange to mark #GlobalMNDAwarenessDay and to raise awareness for motor neurone disease. 💙 🧡 For more info, visit: https://t.co/kQmgOLzPX1
#MND @mndassocWALES @mndassoc
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Heno, bydd Goleudy Parc y Rhath yn cael ei oleuo’n las ac oren i nodi #DiwrnodYmwybyddiaethCNEBydEang ac i godi ymwybyddiaeth o’r clefyd niwronau echddygol. 💙 🧡 Am fwy o wybodaeth, ewch i: https://t.co/yskCTUCUeO
#CNE @mndassocWALES @mndassoc
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On #GlobalMNDAwarenessDay, we're thinking of every life touched by motor neurone disease - those we’ve lost, those still fighting, and those affected, every day. Drop a name or photo of someone you’re thinking of. Let’s turn the replies into a tribute wall 💙
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In June, we're holding an event in the Senedd for #GlobalMNDAwarenessDay to shine a light on the hidden realities of MND. Please use our tool to invite your local MS to the event: https://t.co/KyZmNx9hXw
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In June, @mndassocWALES are holding an event in the Senedd for #GlobalMNDAwarenessDay to shine a light on the hidden realities of MND. Please invite your local MS to the event using our e-action tool. https://t.co/leBO4S4G9C
act.mndassociation.org
This June, to mark Global MND Awareness Day, we’ll be holding an event in the Senedd. Your MS will be able to drop in at a time that’s convenient for them and hear more about our MND Manifesto for
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We're holding online workshops on 30th April 2pm and 1st May 2pm to feedback on the look & feel of our brand No need to prepare and you will get £25 voucher/charity donation as a thanks We're looking for a group of 6 people, so please email brandandmarketing@mndassociation.org
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Our Quarterly Political Snapshot includes an overview of the work happening for the MND community across Wales. Have a read here:
Catch up with our Political Snapshot - a round-up of some of our work from the first quarter of 2025! Have a read here:
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Over 100 tickets sold! Join us for our Walk to D'Feet MND on May 11th at Cosmeston Lakes, Penarth! Early bird price until 11th April! Cake sale and raffle! Donations greatly appreciated Sign up below 👇 @mndassoc @SEWalesMND
@SWWalesMNDA @mndvolunteering
https://t.co/eLHAufOnXO
ticketsource.co.uk
Tickets are now available for MND Association Walk To D’Feet MND 2025 at Cosmeston Lake Country Park Visitor Centre, on Sunday 11th May 2025. Click the link for further information and to secure your...
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We're pleased to contribute to this Senedd report outlining concerns around eligibility requirements and the need for more targeted energy support for people with MND in Wales who spend, on average, £10,000 per year on energy. Read more about our work 👇 https://t.co/inGGcO27X1
mndassociation.org
At the current rate of home adaptations, we heard that it could take a staggering 135 years to reach all fuel-poor households in Wales. Our new report provides Welsh Government with recommended actions to address challenges and pick up the pace. 👉 https://t.co/o8Ld3DpIXr
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