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Lupus Foundation NE Profile
Lupus Foundation NE

@LupusNE

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Following
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To educate and support people with lupus, promote awareness and fund scientific research that will lead to better treatments and ultimately a cure.

New England
Joined November 2012
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@LAlupusLady
Amanda G
4 days
Going to @ACRheum ‘s #ACR25? Be sure to visit the RheumPAC Lounge, participate in the Scavenger Hunt to support @ACRheumDC and you could win a trip to #AdvocatesForArthritis
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@LADAOrg
Lupus Association
6 days
We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the Lupus Community Booth # 2121. #PatientVoice #LADAorg @Lupus_Chat @LupusMI @C_O_L_N @LupusIL @LupusNE @US_Pain @IAFaccess
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@LupusNE
Lupus Foundation NE
11 days
Dear Granite Staters, Corporate Greed = Patients' Suffer. The #NoUPCODE Act would help ensure every Medicare dollar goes where it belongs. NH #patients, NOT profits. #StopMedicareFraud. @RepGoodlander @RepChrisPappas @SenatorHassan @SenatorShaheen
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dcjournal.com
Republicans have found $124 billion in wasteful Medicare spending that enriches insurance companies at the expense of seniors and taxpayers. The only
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@LupusNE
Lupus Foundation NE
24 days
As flu season nears and vaccine access narrows, disruption isn’t hypothetical – it’s real. Protect you and your loved ones and talk to your doctor for trusted information on vaccine recommendations this season. #VaccineConfidence
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@LupusNE
Lupus Foundation NE
1 month
A great piece by Wall Street Journal’s E-Board, it never hurts to learn as much as you can, especially on a complicated issue like the #340B drug program. @RepGoodlander @RepChrisPappas @SenatorHassan @SenatorShaheen A Good Idea to Cut Drug Costs - WSJ
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wsj.com
Rich hospitals have been gaming a discount drug program for the poor.
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@LupusNE
Lupus Foundation NE
1 month
We hope @RepGoodlander @RepChrisPappas support the #340B ACCESS Act, which cracks down on program abuse. NERHA touches on many of these necessary reforms in its recent op-ed in the @ConMonitorNews https://t.co/GAPM2hBjVV
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concordmonitor.com
The 340B Drug Pricing Program is a vital lifeline for rural hospitals, but it needs responsible reform to preserve its original intent.
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@LupusNE
Lupus Foundation NE
2 months
People with lupus often rely on vaccines to stay safe. For immunocompromised people, access to vaccines isn’t just important, it’s lifesaving. Congress must protect vaccine access for the lupus community and all vulnerable patients. @SenWarren @RepAuchincloss @RepLoriTrahan
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@LupusNE
Lupus Foundation NE
2 months
Dear @SenatorHassan On the latest Morning Update Roundtable, NH health leaders & experts discussed the future of 340B, PBM practices, and how to strengthen care for rural patients & providers. These insights matter for NH communities:
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@LADAOrg
Lupus Association
5 months
Disease onset coincides with critical years for education and career advancement, #lupus profoundly disrupts working lives. We need treatments that will improve qol so people with lupus can achieve their hopes and dreams and be parents. #LupusAwarenessMonth #LupusAwareness
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@WWFH_MA
We Work for Health Massachusetts
5 months
"Imagine being told that the medication you or your child depends on is no longer available, not because it stopped working, but because Medicaid no longer covers it." This could be the reality if #MFN is implemented. Read more from @LupusNE:
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nhjournal.com
New Hampshire - GOODELL: Don’t Let 'Most Favored Nation' Policy Threaten Medicaid Patients in NH - NH Journal - Healthcare
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@LupusNE
Lupus Foundation NE
3 months
Lupus patients deserve cutting-edge care, not delays. MFN pricing threatens access to new therapies by discouraging innovation and slowing adoption. #Lupus #AccessToCare #MFNfail @SenatorHassan @HELPCmteDems
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@LupusNE
Lupus Foundation NE
3 months
Eliminating the NH PDAB was a win for patients. Bureaucratic price boards can delay access to life-saving medicines. New Hampshire chose patient access over red tape. #NHPolitics #Healthcare
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@LupusNE
Lupus Foundation NE
6 months
Thank you to our ED for saying what needs to be said: imposing government-mandated price controls #MFN could lead to delays/denials of access to medicines in the U.S. #lupus @RepGoodlander @RepChrisPappas @SenatorHassan @SenatorShaheen https://t.co/JAzrNNsyKC
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nhjournal.com
New Hampshire - GOODELL: Don’t Let 'Most Favored Nation' Policy Threaten Medicaid Patients in NH - NH Journal - Healthcare
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@LupusNE
Lupus Foundation NE
6 months
International pricing in Medicaid could force manufacturers to stop offering medicines in Medicaid, creating major access issues for the most vulnerable populations in the Granite State, including #lupus patients. @RepGoodlander @RepChrisPappas @SenatorHassan @SenatorShaheen
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@LupusNE
Lupus Foundation NE
6 months
With @RepStephenLynch and @RepMoulton’s leadership, Multi-Cancer Early Detection has crossed a critical threshold – majority support with 219 cosponsors, making it the most popular health care bill! Let’s pass the #MCED Act and expand access to early cancer detection for seniors
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@LupusNE
Lupus Foundation NE
6 months
The @WhiteHouse, @POTUS is stepping up to support patients’ access to the most innovative medications by advancing EPIC Act policy. Now it’s Congress’ turn. Eliminate the #PillPenalty, pass the #EPICAct.
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@LupusNE
Lupus Foundation NE
8 months
The #EPICAct will help patients access small molecule drugs and support New England's economy that depends on #biopharma investment and innovation. The #PillPenalty under the #InflationReductionAct continues to hurt patients. @RepGoodlander @RepChrisPappas
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@LupusNE
Lupus Foundation NE
8 months
Dear @SenatorHassan @SenatorShaheen “Rather than serving as a lifeline for vulnerable patients, 340B has become a profit-generating machine for large hospital systems.” ICYMI: 
nhbr.com
Rather than serving as a lifeline for vulnerable patients, 340B has become a profit-generating machine for large hospital systems, many of which are exploiting the program for financial gain
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