Lisa Ward
@LisaWardspeakup
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Mom to Blake, Brooke and Jace (in heaven), grandma to Asher Business/Estate Plan Lawyer, DIPG/DMG Brain Cancer Advocate, Co-Founder Tough2gether Against DIPG
Manhattan, KS
Joined October 2016
Very proud to join DDRFA. ‘Powered by families, because lives depend on it’, is more than a tagline fueling grants for DIPG/DMG research, trial access and data use. If you would like to help, please contact us #DDRFA #Goldstrong
#DIPGWontWait
https://t.co/vxrD3bGHb7
canva.com
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Always exciting to see the great work of @cm35c @michelle_monje @chadtough and many others supporting this work. (and a photo of @JaceWard3 does a momma's heart good! https://t.co/m5E56VzNqA
$20M Committed to Research Worldwide Announcing our latest round of research funding. Nearly $4M dedicated to 8 new projects aimed at getting us closer to a cure. Our grand total is over $20M in funds committed to 48 researchers across 31 institutions! https://t.co/X3zVratw78
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Register to add a lantern to be launched for your loved one or fighter. Register here before noon tomorrow or through Venmo. https://t.co/mPFVB1jfkk
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All Reps are up for re-election in Nov. Now would be a good time to see how they feel about kids with cancer. Check this list & if your Rep isn't on the #ChildhoodCancer Caucus, ask them to join & be a part of the mission. @cac2org @HappyQuailPress
https://t.co/fXfsIasNgm
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Still time to grab a shirt $15 shipped, join us in Wamego or donate to Tough2gether Against DIPG to end kids brain cancer. July 2 we celebrate Living Every day given in memory of Jace Ward 2-18-99 — 7-3-21. 💛
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Last July 3rd Jace planned his welcome home party in Wamego- but spent his first night in Heaven. We knew Jace wasn’t one to miss a party! Sat July 2 Wamego - come play, food, kids games, inflatables, adult drinks, fireworks! Support pediatric brain cancer research.
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In love with the 1st anniversary in Heaven collection for Tough2gether Against DIPG! $25 if you need one!! 💛 just wish @JaceWard3 was drinking some whiskey here with us!
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Looking forward to this @PNOCFoundation
Learn about the immune system in children with a CNS tumor and the promising developments of immunotherapy in clinical trials for children with high grade tumors including #DMG / #DIPG, #medulloblastoma, #ATRT, #ependymoma and other tumor types. Register: https://t.co/uKL0jWFzRo
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Ten years ago our family received a true miracle when Emily fought to survive after receiving #CARTcell therapy. Today, we feel incredibly blessed to see Emily CURED and thriving in life! https://t.co/Vodpc7n1qa
#WeBelieve
#ActivateTheCURE
#10YearsofCART
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You and @JaceWard3 really are kindred spirits!! The best thing Jace taught us was you can hang on to life too tightly and while doing so fail to really live. 💔
Dare. To. Really. Really. Live. Please. Good night moon.
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I cannot think of a better person! @catgyoung your advocacy for rare disease will be a shining light in #CancerMoonshot @POTUS @FLOTUS who know our pain of losing a son to brain cancer. Building a great team to take down the cancer monster.
I am deeply honored to announce that I have joined the White House #CancerMoonshot team - @POTUS and @FLOTUS mission to decrease the number of cancer deaths by 50% over the next 25 years, led by @DCarnival46 at @WHOSTP.
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“Mom- what happens if you can’t help other families when I get bad?” Then let’s build a better model - challenge accepted by ChadTough and their navigation partners!! One year later Welcome My DIPG Navigator to help DIPG families https://t.co/EgfsDLIIhQ via @YouTube
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Awareness — its free! Spread it like wildfire I’m so sick of watching children suffer from DIPG … let’s stop this killer!!
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Yes!! Exactly 100% Jace had wonderful teams who allowed him to ask questions and consider options, but this is not always the norm. It requires patients to also assume responsibility to seek options and learn from others. Tough2gether fighting brain cancer.
We asked patients and family members how they would like to be treated in the cancer care system, and the roles they can play in their own cancer journeys. https://t.co/LgrcrPVzSA
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Thanks for shining light on lack of updated standard treatments. @PBTF
"#Clinicaltrials aren't a last resort - They need to be part of the discussion early in treatment"👈So true in the pediatric brain tumor community where current "gold standard" treatments are 40+ years old, toxic & largely ineffective in young patients. #PatientsasPartners2022
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Learn about promising developments of #immunotherapy in clinical trials for children with high grade tumors including DMG, medulloblastoma, AT/RT, ependymoma and other tumor types. Register: https://t.co/DyPEsLCbsP
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Mommas we see you too 💪🏼💔 thank you @sickkids Tough2gether!
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THIS ARTICLE!! @michelle_monje Before Go Gray In May for Brain Cancer and May 17 DIPG Awareness Day, may we take a moment to applaud the life work of Dr Monje — always brave, compassionate, committed and mentor to many. https://t.co/VsyHy08VVo
@chadtough @AmericanCancer
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