Pediatric Brain Tumor Foundation
@PBTF
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The Pediatric Brain Tumor Foundation leads the way in funding research, supporting families and advocating for policies to end childhood brain cancer.
Winston-Salem, NC
Joined April 2010
As part of PBTF’s continued commitment to make children w/brain tumors, survivors & their families a national priority, we're excited to start #BrainTumorAwarenessMonth by welcoming neurosurgeon & @CNN chief medical correspondent @drsanjaygupta to our Board of Directors. (1/3)
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In this clip, Dr. Sharon Castellino highlights a critical truth: Medicaid is a lifeline for families navigating childhood brain cancer, providing essential coverage when families need it most. Watch the full webinar:
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When a child is diagnosed with a brain tumor, seeking the best possible treatment can sometimes mean traveling far from home. These 5 tips are designed to guide families through out-of-state or international treatment journeys. Read the full article:
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Mark your calendars for Tuesday, 9/9 at 6:30 PM ET/3:30 PM PT, and join us for 30 minutes of fun and connection with top Broadway performers. Whether you’re singing along, dancing in your seat, or simply enjoying the music, you won't want to miss this:
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For 8+ years, Broadway Hearts has brought the magic of Broadway and the healing power of music to children and families in over 50 children’s hospitals nationwide. We’re thrilled to announce that we're partnering with them again to bring this experience to kids with brain cancer!
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Navigating the education system can be overwhelming, especially if your child faces learning challenges after treatment for a brain tumor. Join us on Thursday, August 14 at 1 PM ET / 10 AM PT for our next webinar:
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Alex passed away, surrounded by the love that defined his life, but his light continues to shine through the legacy his family honors each day. Read more about Alex and his family's journey at
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Alex’s family & community rallied behind him. From reverse parades organized by his school to an unforgettable Make-A-Wish trip to Disney World, Alex felt the love an&d support of those who cared for him. His mom says, “He felt so much love, & that’s all I ever wanted for him.”
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At just 11 years old, Alex was diagnosed with ependymoma, an aggressive brain tumor. With relentless determination, he tackled every challenge—emergency surgery, intensive rehabilitation, and rigorous treatments—with strength and humor that inspired his family.
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Learn more about supporting siblings during the pediatric brain tumor journey at
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When a child learns their sibling has a brain tumor, their emotions can be overwhelming. Open, honest conversations and support are key. While these discussions can be challenging, PBTF is here with five tips to help families navigate this difficult conversation.
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PBTF's virtual Survivor Support Group begins this August with 8 sessions over 16 weeks for survivors aged 17-25, providing a safe space to connect with fellow survivors who understand the journey. To register for these sessions or learn more, visit
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Be prepared for back to school season by joining the PBTF on Thursday, August 14 at 1 PM ET / 10 AM PT for a free webinar designed to help parents and caregivers advocate for their child’s educational rights and support systems in school. Register now:
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Here are four important terms that you may hear when discussing changes your child's doctor may find. Visit to learn more about clinical trial navigation, community support programs and other resources to help navigate life after treatment.
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After a child is diagnosed with a brain tumor, regular tests and scans are important to monitor the tumor's response to treatment. These results assist doctors in determining whether additional or different treatments are needed so your child receives the most effective care.
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If your child relies on Medicaid for brain tumor care, or if you work with patients who do, this session is a must-attend. Hosted by the PBTF & @cac2org, this webinar features a live Q&A w/ policy experts, healthcare professionals, & more. Register now at
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Urge your legislators to support the Give Kids a Chance Act—a vital bill that could provide children with access to life-saving treatments. Your voice can make a difference. Send your message today:
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The PBTF'S Peer-to-Peer Mentor Program connects parents, caregivers, siblings, & survivors with trained mentors who have been in your shoes. Learn more about our Peer-to-Peer Mentoring program at:
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"Everyone gets scared, what you have to remember is you're stronger than you think!" Take these words of wisdom from Pico de Gallo, a salsa-loving, roller-coaster-riding imaginary friend from the PBTF's Imaginary Friend Society. Learn more about the at
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If you care for a child with a brain tumor, don’t miss this important – and FREE – webinar on how nutrition can support immunity, healing, and recovery during every stage of treatment. Register now now at There’s still time to save your spot!
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His mom, Kayleigh, found strength and connection through the Pediatric Brain Tumor Foundation, which provided her with a supportive community of families who understand the challenges that come with this journey. Read Sutton's story:
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