K-T Support Group
@KTSupportGroup
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Information, education and support for combined vascular malformation patients and families coping with Klippel-Trenaunay syndrome
Cincinnati, OH
Joined September 2016
Together We Change the Future | K-T Support Group
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We are K-T Support Group.We are approaching 40 years strong ...because of you.The knowledge gained since our start almost 40 years ago is impressive but our quest to improve quality of life for...
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RT @hevas_nl: Patient advocates unite at #ISSVA2023 🧬.@CLOVESSyndrome .@CMTCOVM.@LGDAlliance .@KTSupportGroup .@hevas_nl .@mcmdotnet https:….
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RT @hevas_nl: Panel discussion with patient advocates about the future role of patient advocates at ISSVA #ISSVA2023
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RT @castel_pau: There is a story that I have been wanting to tell for a while regarding a scientific journey that started more than 6 years….
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Registration is open for 2022 K-T Support Group Conference -
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RT @DrAnnaKerr: Proud to share the work @Sisk_MD & I did on parents’ advice for parents & clinicians caring for children with #vascularanom….
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RT @AdamCole10: Today is a day to celebrate RARE. What’s to celebrate?.- Accepting & embracing everything that is KT Syndrome. - Finding @K….
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RT @kanachan2020: I wish to start my tweet this year with CM-AVM, which is a vascular disease with autosomal dominant inheritance. Typicall….
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Great meeting organized by @CLOVESSyndrome with collaboration from advocates, scientists, and patients. Congrats @kristenpdavis, well done!.
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RT @AdamCole10: Enjoyed this 100%. I never saw myself taking part in a photo shoot. It’s been quite a journey. #EmbraceYourself. Stand out.….
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RT @ScienceTM: Using a new genetic mouse model and MRI imaging in 6 patients, the @CanaudLab at @Univ_Paris and @Inserm has discovered that….
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RT @CanaudLab: Today, I presented the EPIK-P1 results at #ESMO2021. These data from real life experience in adult and pediatric patients (n….
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RT @HevasNederland: Reminder: registration closes on October 15th! Don’t miss the first international scientific meeting for PIK3ca related….
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RT @CanaudLab: What a crazy news! Extremely proud and honored to receive the unsolicited triennial international "Gagna A. & Ch. Van Heck p….
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RT @CLOVESSyndrome: Join Dr. Bryan Sisk & Dr. Anna Kerr for an info session Sat 6/26th at 1pm EST to learn about the VACOM research study.….
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RT @CLOVESSyndrome: Early bird registration and abstract submissions close in one week - on June 15th. ⏰ . #PIK3CAISM21 #PIK3CARelatedOver….
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