J Roberts
@JonRob08
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Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brotherš©ø, opinions my own
Illinois, USA
Joined December 2019
Happy to share our study of recombinant VWF real-world treatment patterns and outcomes at 11 centers in the U.S. We demonstrate that routine rVWF prophylaxis reduced bleed rate and healthcare resource utilization compared to prior VWD treatments. #VWD #VWF
tandfonline.com
People with von Willebrand disease (VWD) experience increased bleeding and decreased quality of life; those with a severe bleeding phenotype may benefit from prophylactic treatment. This retrospect...
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Proud to work with esteemed colleagues to improve future research priorities. The patient voice, through lived experience experts, must be incorporated into cutting-edge research programs from start to finish.
ashpublications.org
Abstract. Clinical trial design for classical hematologic diseases is difficult because samples sizes are often small and not representative of the disease
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RT @docrishabhsingh: Honored to receive the Mary Draeger Schultz scholarship 2024 @OSFHealthCare!. Grateful for the opportunity to promoteā¦.
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RT @MSkinnerDC: Contrasting Approaches in the Implementation of GRADE Methodology in Guidelines for Haemophilia and VWD. .
onlinelibrary.wiley.com
New guidelines for the management of haemophilia have recently been released by the ISTH, generating numerous reactions throughout the global community. These guidelines were developed by strictly...
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RT @Brianhemophilia: A critique of the ISTH Haemophilia Guidelines was published in #Haemophilia Journal today with 49 eminent authors reprā¦.
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RT @DrSamelsonJones: Here is our just published review in #Blood focusing on how new biological insights into #FVIII .are setting the stageā¦.
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RT @nbd_foundation: With 70% of bleeding events linked to identified or suspected causes, this study highlights the pressing need for betteā¦.
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RT @Brianhemophilia: Centessa have discontinued development of their rebalancing agent, Serpin PC despite encouraging Phase 2 PREScent cliā¦.
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RT @ProfMakris: I strongly disagree with this commentary in the journal Blood Transfusion. The authors try to justify the decision of the @ā¦.
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ATIII deficiency requires prospective studies to optimize management for these patients @DrDeSancho @BloodExpertsIL @JTHjournal @UICOMPeoria @UICOMPeoriaPeds.
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ATIII deficiency can significantly increase thrombosis risk, particularly VTE. Recurrent thrombosis in 58.6% of patients (44.8%) despite AC. 35% of patients received ATIII concentrate and 84% of these for prophylaxis.
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Individuals with multiple bleeding disorders can be challenging to manage. We describe HemA+VWD managed successfully with Emi when F8 prophylaxis alone was insufficient. Emi may treat some #VWD @BloodExpertsIL @kanstea #hemophilia
journals.lww.com
ted prevalence of von Willebrand disease (VWD) of up to 1% of the general population, the co-existence of HA and VWD occurs, but is likely less recognized. Prophylactic FVIII replacement may or may...
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Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. Iām thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!
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