Bleeding and Clotting Disorders Institute
@BloodExpertsIL
Followers
132
Following
91
Media
75
Statuses
124
The Bleeding and Clotting Disorders Institute provides integrated, family-oriented care, treatment and education for persons with blood disorders.
427 W Northmoor Rd. Peoria
Joined January 2020
RT @JonRob08: Happy to share our study of recombinant VWF real-world treatment patterns and outcomes at 11 centers in the U.S. We demonstra….
tandfonline.com
People with von Willebrand disease (VWD) experience increased bleeding and decreased quality of life; those with a severe bleeding phenotype may benefit from prophylactic treatment. This retrospect...
0
3
0
RT @JonRob08: Proud to work with esteemed colleagues to improve future research priorities. The patient voice, through lived experience exp….
ashpublications.org
Abstract. Clinical trial design for classical hematologic diseases is difficult because samples sizes are often small and not representative of the disease
0
2
0
We are excited to showcase the BCDI 2024 Annual Report! This is our longest newsletter yet, with 24 pages devoted strictly to everything surrounding BCDI and our incredible community in 2024. Our 2024 Annual Report can be read in full right here:
0
0
1
From all of us at BCDI- We wish you a Merry Christmas and Happy Holidays!!
0
0
2
RT @JonRob08: ATIII deficiency can significantly increase thrombosis risk, particularly VTE. Recurrent thrombosis in 58.6% of patients (44.….
0
1
0
RT @JonRob08: Individuals with multiple bleeding disorders can be challenging to manage. We describe HemA+VWD managed successfully with Emi….
journals.lww.com
ted prevalence of von Willebrand disease (VWD) of up to 1% of the general population, the co-existence of HA and VWD occurs, but is likely less recognized. Prophylactic FVIII replacement may or may...
0
2
0
RT @JonRob08: Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched coun….
0
1
0
Today is #WorldThrombosisDay! 1 in 4 people worldwide die of conditions caused by thrombosis, otherwise known as blood clots. BCDI is raising awareness about blood clot risk factors, signs and symptoms. Learn more by visiting #TheBloodExperts
0
2
4
At @nbd_foundation's #BDC2024, Dr. Tarantino earned the distinguished honor of NBDF’s Lifetime Achievement award! Please join us in congratulating Dr. T for this well-deserved award!. To learn more about the NBDF Lifetime Achievement Award, visit:
2
1
9
RT @JonRob08: Patient-reported outcomes are essential to optimize care in #sicklecelldisease Happy to share our pilot study. Much more work….
ashpublications.org
Key PointsIt is feasible to collect patient-reported data and extract health care utilization data via medical chart review in adults with SCD.The economic
0
3
0
✨BCDI Family Day is in full swing!! ✨.Our patients and their families are joining us for a day full of carnival fun, education from our expert staff, and delicious food from local vendors!
0
1
5
RT @JonRob08: Happy to share! Our article received enough citations to be a #TopCitedArticle @haemophilia_jnl Great working with a dedicate….
onlinelibrary.wiley.com
Objective We assessed sociodemographic and clinical characteristics associated with depression and anxiety in individuals with Von Willebrand disease (VWD) aged ≥12 years. Methods The study collec...
0
4
0
The inaugural BCDI Golf Outing is coming up on August 29 at Mt. Hawley Country Club! You won't want to miss this event, which is a four-person scramble format and will tee-off at 10 a.m. For more information & to register, please visit
0
0
1
RT @docrishabhsingh: Insightful master class at @WashUHeme grand rounds by Dr. Tarantino, leading expert in #ITP. Covered the history, trea….
0
3
0
RT @JonRob08: @BloodExpertsIL Founder and ITP expert giving @WashUHeme Grand Rounds tomorrow! Mike is an international thought leader in IT….
0
3
0
RT @JonRob08: Congrats @mariaespanolm for such a thorough and easy-to-understand review of decades of therapeutic advancements in #hemophil….
rpthjournal.org
Hemophilia is a rare genetic bleeding disorder historically associated with high morbidity and mortality. Some individuals with hemophilia suffer associated chronic joint disease, chronic pain, and...
0
5
0
RT @mariaespanolm: Happy to share @JonRob08 @BloodExpertsIL . The Evolution of Hemophilia Therapeutics: An Illustrated Review https://t.c….
0
2
0
RT @JonRob08: Congrats to Dr. Jessica Mistretta @mariaespanolm and colleagues @BloodExpertsIL for our recent report explaining unique chall….
0
2
0
The May 2024 edition of The BCDI Beacon newsletter is here! To read The BCDI Beacon and sign up to have each edition sent directly to your email, please visit:
0
0
0
Today is World Hemophilia Day! Devoted each year on April 17 to those who have hemophilia- a rare condition in which blood cannot clot properly because it lacks adequate blood-clotting proteins. Help spread the world about #WHD2024 and learn more at
0
1
3