So many startups are going to lose opportunity for funding/ grants, coz who would want to invest in a business located in a country with this much political instability & insecurity. Heck no room for innovation or growth!
Being strong and healthy;being able to go through each day without a worry of whether you’ll still be okay the next minute! Being able to plan for anything without worry that your body will fail you!
Hey all, it's been a minute! Hope you're ready for another episode of
#SickConversations
Join us in a heartfelt conversation with
@don_magezi
, who courageously shares his hospitalization experience. In this segment, he opens up about the challenges, fears, and profound insights
How to show you care about a
#SickleCell
warrior in this weather!!
1. Cute but warm sweaters, jackets and jumpers.
2. Hot water bottles
3. Socks
4. Tea mugs.
5. Banange call and remind us to stay warm,we know it but we are big headed.
6. If things go south BE THERE!
#ValentinesDay
presents for a
#Sicklecellwarrior
1. Hot Water Bottle ( To manage pain)
2. A cute Water bottle ( to encourage rehydration)
3. Nice sweaters, Jackets, Jackets ( to keep him/her warm)
4. Painkillers ( the good kind, like Gofen, Dynaper)
5. MONEY
@perolajanice
@rachel___ayg
Ahhh, I feel so seen, I'm constantly asking questions to understand, to analyse perspectives but somehow that's misunderstood!
Those close to me have seen how
#SickleCell
interferes with my life. And those who aren't can see how passionate I am when it comes to improving the lives of those living with
#SickleCell
. Help me make that possible this month through the
#30in30
campaign.
Ok people when someone tells you they have
#SickleCell
disease they are not looking for data on how many people have lost their lives due to
#SickleCell
This "I had a friend that died coz of
#SickleCell
" needs to stop! It's not encouraging, we do not like to hear it!
My dad stepped out of his comfort zone and started something new. His farm produces these sweet watermelons and paw paws, ready to buy.
Please retweet,he could be a supplier to someone on your TL
September has been one humbling month. For starters I'd like to thank everyone that contributed to our
#30in30
campaign,and much as we didn't reach our goal, the money raised is only the beginning to number of things we'll be doing to ease the life of a
#Sicklecellwarrior
#TheResident
season 4 episode 7 did a great job representing patients with
#Sicklecelldisease
. If you ever want a simple way to understand our pain and what we go through, watch it!
As someone with the same condition, this right here is where it's at, the physical support is very important and she'll never take it for granted. Every warrior needs someone like you in their corner.
My girl had a sickle cell crisis yesterday, it was hella late when she decided to go to the ER.. she kept apologizing bc she knew I had to be up at 6 for work, I told her I knew what I signed up for when I met her and I’m not going any mfn where
@ImaniMulungi
I was kind of an overachiever this week, completed a course in fostering change in health systems, recognised as a woman making impact in sicklecell advocacy on a global scale, interviewed by the nextmedia team! I survived the week too!!
We should all fear for the next generation of doctors! This constant need to shame their patients on social media as opposed to treating them, is only going to hurt the patients in the long run... What happened to patient - doctor confidentiality , more so empathy!
What they don't tell you is that running a company involves asking yourself on a daily " Who asked you to do it? " You were fine under employment, but you thought ohh I can start something & be great at it 🤣. Emotional damage!!
I admire people who can sleep through the rain, rain for me, means my anxiety is going up! I start worrying about how I'm most likely going to get a pain crisis. I start thinking about the right clothes to put on, to keep the pain away, then it just becomes a cycle.
Let's not get started on what happens when you disclose to someone you like that you have
#SickleCell
. But there are those out there willing to go the long way
@don_magezi
&
@NicoleMagabo
share what dating & sickle cell is like!
When dealing with SCD the patient’s voice is the most important one, no one understands what the patient is feeling but the patient! It’s important for medical practitioners to listen to understand not to listen to respond!
Humbled, I made it to this list!! Me to be recognised amongst these bountiful women from across the globe for something I'm very passionate about.. 😭❤️
Happy International Women’s Day
Today, we celebrate all women across the globe but most especially, the trailblazing women who are making significant impact in sickle cell advocacy.
We are delighted to announce our partnership with
@BanzMedCare
. We'll be working with Banz Medcare to provide home care health services tailored to the needs of warriors.
I am excited to speak at the
@HA_Summit
second International Virtual Summit for young adults with chronic and rare conditions about Sickle Cell Disease. This event is hosted on August 7-8, 2021 Register here:
If your friend is a
#SickleCellWarrior
and you see him /her not as active as usual, he /she is not a buzz kill, he/she is battling with unseen pain and they are taking it easy so as not to make it worse !
The number one treatment for
#Sicklecelldisease
is a great support system. One that hears you, cares for you, and understands you. I'm so glad I get to experience this, in this lifetime!
I could caption this with an inspirational quote like "When Women come together with a collective intention, magic happens" by Phylicia Rashad, but I won't do that coz you can follow
@UgWomen4Women
to find out what this picture represents! 😊
The worst part after a great night out for a
#sicklecellwarrior
is the anxiety & fear that comes after; wondering what's going to come next, or rather when does the crisis kick in!
Nwe it's public health week perhaps add an act of kindness to a warrior near you.
Sickle cell fatigue is so horrible, heart palpitations, headache, body ache, extreme tiredness, small small walking and its like I've been running, then the high temperature!
Heh and napping doesn't help !
"Men never apologize for success, and women should learn not to. You’re not bossy; you’re the boss. You’re not arrogant; you’re in charge. It’s okay to be successful; you don’t need to say “I’m sorry” about anything."
But you people who keep questioning us on why we don't want children? Mbu, how can you live without seeing little you 🙄 why you can't you live without seeing little you? Do we question you on your choice, why is ours the one that's off the scale. Y'all just like scripted lives🤷🏽♀️
The
#SaveElijah
drive has officially ended..
Thank you so much for standing with us. Let's wait for his surgery which is scheduled for April.
May God bless you 💜🙏
Bringing this back coz it's my friends birthday 🤩 watch this episode coz it's on
#SickleCell
& friendships. Also
@Bwomono
's only wish this year is that you help me reach my
#30in30
goal.
Caregiving is a significant public health issue affecting millions of individuals' quality of life. Caregivers play a crucial role in a person’s social or health needs.
In this upcoming episode of
#SickConversations
, we explore what it's like to be a warrior's friend.
#WTS
I started a
#SickleCellAwareness
platform, that got positive feedback, and grew at a rate I didn't expect. Most of all it's gotten support from places and people I never expected...
cc
@WarriorsClub5