Jo D 😷💙
@JoD66
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Trustee of Long Covid Support @long_covid, Mason Bee Guardian, #FBLC #LongCovid #TreatLongCovid
London, England
Joined August 2011
Delighted we’re launching an in-person Long Covid Support Group in West Cheshire, creating a safe, supportive space for people to connect, share experiences, & feel less alone. Free to anyone living with Long Covid. Please retweet & help us reach those who may need this support
1/ Join us for our new In-Person Long Covid Support Group in West Cheshire 📅 Thursday 8 January 2026 ⏰ 10.30 - 12.30 📍 Blacon Enterprise Centre, CH1 5HN Free monthly sessions for people with Long Covid to connect and support each other.
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1/ Season’s greetings from the team at Long Covid Support 🎄 Thank you for being part of our community in 2025. We know it’s been another challenging year for many, and we’re truly grateful for your continued support.
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1/ Join us for our new In-Person Long Covid Support Group in West Cheshire 📅 Thursday 8 January 2026 ⏰ 10.30 - 12.30 📍 Blacon Enterprise Centre, CH1 5HN Free monthly sessions for people with Long Covid to connect and support each other.
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Hey you super people. Please share far and wide the video below from some other super people at Long Covid Support. And listen to the message ❤️❤️🙏
An important message from @NJLR, our Chair of Trustees, who has been in attendance at the Covid Inquiry today. We wanted to take this moment to sincerely thank you for the support you have shown over the past few weeks, particularly in relation to our work with the Inquiry (1/)
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Standing outside the Covid-19 Inquiry, we want to say thank you to all our supporters. People living with #LongCovid still need urgent support — please donate if you can to help us continue our work.
An important message from @NJLR, our Chair of Trustees, who has been in attendance at the Covid Inquiry today. We wanted to take this moment to sincerely thank you for the support you have shown over the past few weeks, particularly in relation to our work with the Inquiry (1/)
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An important message from @NJLR, our Chair of Trustees, who has been in attendance at the Covid Inquiry today. We wanted to take this moment to sincerely thank you for the support you have shown over the past few weeks, particularly in relation to our work with the Inquiry (1/)
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I just nominated LONG COVID SUPPORT @long_covid. Please nominate them too so they can continue their incredible work supporting people with Long Covid and their carers.
movementforgood.com
I just nominated a charity to win £1,000. You can nominate your favourite too.
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Great energy at this week’s APPG meeting for @long_covid — constructive discussion, powerful lived experience, and real commitment to driving change. Grateful to everyone pushing for better care, research, and recognition particularly @JoPlattLeigh. #LongCovid #APPG
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Did you catch Mike Ormerod’s powerful testimony at @covidinquiryuk last week? Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”. Standout quotes (there are many!) Part 1 🧵👇
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1/ We were thrilled to see 50+ MPs and Peers at the Overlapping Illness Alliance drop-in last week. Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference ⭐️
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Thank you to our Chair @NJLR & Founding Trustee @JoD66 for attending @covidinquiryuk on this important day. And an even bigger thanks to our Member Mike Ormorod for all his work and for all the effort it will take in giving evidence this afternoon. 🙏 #LongCovid
#CovidInquiry
At the #Covid19Inquiry supporting Mike Ormerod, who is giving evidence on behalf of @long_covid, highlighting the devastating impact on individuals and families. #LongCovid.
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Representing our community and supporting Mike who gives evidence shortly @covidinquiryuk. With @NJLR @long_covid
#LongCovid #CovidInquiry
At the #Covid19Inquiry supporting Mike Ormerod, who is giving evidence on behalf of @long_covid, highlighting the devastating impact on individuals and families. #LongCovid.
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Happening this afternoon. Please watch via the @covidinquiryuk YouTube channel. Thank you Mike 🙏 #LongCovid #CovidInquiry
On Wed 26 Nov (tomorrow!) our volunteer Mike Ormerod will give evidence to @covidinquiryuk’s Module 9 on the economic response, describing how Long Covid is affecting people’s work and finances. You can watch on the livestream in the link below 👇 #LongCovid #UKCovidInquiry
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📣 1/4. Today we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions. Find out more below! ⬇️ #OIA #OverlappingIllnesses #JoinedUpAction
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We’re thrilled to welcome Fleur Roberts as our new In-Person Peer Support Network Lead. Formerly an NHS Wellbeing Coordinator in Cheshire & Merseyside, Fleur brings deep #LongCovid expertise. Huge thank you to @assuraplc for making this role possible.💛
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1/3. 🔥Next Fireside Chat from @BinitaKane and Long Covid Support’s @Helen_Oakleigh🔥 ‘Updates from the Santa Fe #LongCovid Symposium’ with guest Prof Danny Altmann. YouTube Live: Wednesday 8th October 2025, 6pm UK time. More details and link below ⬇️ #BinitaKane
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Looking forward to this chat.
✨ Fireside Chat Ep 24 ✨ 📅 Wed 17 Sept | 18:00 BST | YouTube Live 'Muscle & Movement: Rethinking Long Covid & ME/CFS' @RobWust and @BinitaKane on why PEM is nothing like deconditioning and what research reveals about muscle changes in these conditons. Link👇
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1/4 This morning, the @covidinquiryuk opened Module 9: Economic Response, looking at how government decisions in the early years of the pandemic affected people’s lives. Dr Lucy Moore and @NJLR , Chairs of @LongCovidSOS and Long Covid Support, were present. 🧵👇
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📢We are proud to announce the LCK Poster Design Competition winners 2025! 🏆 Overall Winner: Michael J, Age 17 “I’m Not Fine,” immediately caught the attention of our judges- a bold visual style and powerful message, showing that even when someone looks fine, they may not be
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✨ New: Long Covid Body Mapping Toolkit ✨ We’re so pleased to share this new resource, co-created with people living with #LongCovid, Long Covid Support and @UniofOxford. It’s designed to help people express and share their experiences. 🧵👇
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