To My Family,. I'm writing to explain what nearly four years of long COVID has done to my body, backed by clinical evidence, and why I’m likely facing a cardiovascular event. This is the raw truth about my condition, MCAS, dysautonomia, and vascular damage, and you need to.

RT @DebHolloway: Links to the article and the NIH - Nature piece in second post. #LongCovid.

RT @AlbaDocherty: Dr Avi Nath, NIH. "All of your cells are within a millimieter of a blood vessel. If you cause vascular compromise, you c….

"Seles first noticed symptoms of the condition, which can affect most parts of the body - including the muscles that control the eyes, around five years ago".

RT @elisaperego78: At the most basic, #LongCovid indicates SARS-CoV-2 infection is start of a prolonged disease process, which sometimes ca….

RT @DebHolloway: Gentle reminder. Depending on what country you live in, your access to specialists, therapies, blood and other tests, and….

RT @elisaperego78: #LongCovid is a patient-driven concept. LC research builds on unpaid advocacy-research from patients, especially first w….

RT @acrossthemersey: South Carolina Republican Senator Roger Nutt announced his resignation after seeking medical care for LongCOVID and th….

Spend enough time on this platform, and you'd think the US is the whole world.

RT @chrissieburgess: @CounsellingSam We have got COVID. Caught in hospital where my partner was having surgery for brain haemorrhage. https….

RT @LauraMiers: Note the date. We are COMPLETELY ignoring this. “Patients who had COVID were 60% more likely to suffer from mental health….

In January 2025, Dr. David Strain at the Royal Devon and Exeter Hospital recommended palliative care for my severe long COVID, signalling a shift to symptom management rather than recovery-focused treatment. In June 2025, Exeter Central and East Community Health and Social Care.

Boothby said the lack of medical knowledge about ME combines with risk-averse social work to terrible effect. “It’s like the whole thing is built to kill people.”.

RT @acrossthemersey: Legendary guitarist (Dire Straits) Mark Knopfler says that 3 bouts with COVID have stunted his ability to play acousti….

Is it Sunday already?.

"They’re not sure what happened, and the only thing they said was it could have been a possible complication from a bad case of COVID I had a couple of weeks ago. ThEy SaId wE mAy NeVer kNow tHe eXaCt rEaSon.".

Chronic illness discussion groups often see less severely affected individuals getting more attention because they tend to have more energy, time, and capacity to participate actively. Those with milder symptoms can engage more frequently, share detailed experiences, and.

RT @JasonS1269: Some people bristle at being called "privileged," insisting their struggles erase any advantage. Yet, their actions often….

RT @elizaclove: This was me in 2023. The first picture was in Wales on a coastal hike. The second picture is a month later after my first C….