#LongCovid #TeamClots - check this message to my hematologist from JULY 2020! I was asking about MICROCLOTS that weren’t detectable via DDimer (which I had deduced w lots of HyperPOTS-fueled PubMed research) cc ⁦@PutrinoLab⁩ ⁦@VirusesImmunity⁩ ⁦@resiapretorius⁩

Anyway now I suspect that whenever my autoimmune disease flares (such as with vaccines), it by definition increases my MAS1 autoantibody activity which worsens my asthma! Fun!

I have been in a low grade autoimmune flare which my daily HCQ has mostly managed classic symptoms for (mouth sores, fatigue) but which hasn't touched my asthma which is ANGRY, nor did it prevent my COVID toes from coming back.

Okay why did I just find the 2021 paper linking MAS1 receptors to asthma therapy. I have been in STRUGGLE CITY w my asthma since my inaugural Novavax vaccine. https://t.co/OvEF8N4p96

Does anyone w Long Covid get covid toes after their vaccines?

Whitney & many of you rely on Medicaid. Congress is voting now to resolve to cut it by over a billion so they can reduce taxes on the https://t.co/YX7pB4wVr3 your congressperson NOW to object! Medicaid hotline: (866) 426-2631 You enter your zipcode. It connects to YOUR rep.

Anyone else getting NEW dose limits for #Xolair from @OptumRx or @UHC ?!

Housing stock is already low in cities like Los Angeles. Just think of how accessible housing will be even more scarce after the wildfires not to mention rents will be price gouged due to high demand Everything is connected #LAFirestorm2025 #LAFires

I am enraged that mutual aid groups are doing more than the govt. Disability justice teaches us that we are all interdependent and no one gets left behind. We really are all we have. The govt will not save us. #LAFires #LAFirestorm2025

I'm inventing a new term: medical ZEBRAFYING It's when doctors treat something as a rare condition that's not actually rare & it is then used as a way to provide inadequate treatment/Accommodations

The COVID-19 Longhauler Advocacy Project is proud to announce V2 of our Comprehensive Guide to Long COVID! #CGLC #C19LAPCGLC https://t.co/rVLAr8IFVN 1/

Capitalism is stupid

Well I start sub q IG today and I’m supposed to get a bag of saline w my Benadryl IV as pre treatment but that’s not happening bc of the saline shortage from the hurricane destroying the ONE plant that provides the majority of saline products for the whole ass country.

Can someone tell me why every BP reading for RECOVER has been with my arm hanging at my side #LongCovid #NIHRecover

*deep breath* This is the most revealing, personal & vulnerable essays I have ever written about my body, desire & pain for Archer Magazine's resistance issue Disability, pleasure and aging: The pleasure principle https://t.co/t6STkpoRJz Photo credit: María del Río

1/ I've seen the "comment section," and many are saying that COVID-19 is just a mild cold and no big deal for athletes. But here's the truth: having any viral infection, including #COVID19, can significantly impact athletic performance and pose serious health risks. 🧵

For those doing LC research… around you having trouble finding controls? We are experiencing that most of our “HC” volunteers, when further assessed, end up having post COVID symptoms😩