Irish Haemochromatosis Association
@IrishHaemAssoc
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A life-changing #health #advocacy support group for haemochromatosis #ironoverload patients/families. Raising awareness, promoting early diagnosis & treatment
Ireland
Joined January 2015
A fabulous day of learning and one of the few opportunities for further education and CPD for Nurses caring for people with liver cancer in Ireland! Huge congratulations to all involved 👏🏻 Well done 💚 #LiverCancerAwarenessMonth
A day of collaboration & learning at #SVUH as nurses from across Ireland attended the Liver Cancer Nurse’s Study Day led by HCC ANP @michele_bourke “These events ultimately benefit our patients & the care we provide.” Pauline McGrath, CEO SVUH https://t.co/17ydBVpUTF
#livercancer
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This is always a great event and one of the few CPD opportunities for further education about Liver Cancer and HCC in Ireland! Details in the post below. Well done to all involved 👏🏻 @NurMidONMSD @NMBI_ie
Not long to go until the @svuh 2nd Annual Liver Cancer Nurses Study Day! All info in the post below. Places are filling up fast, so make sure to register early to avoid disappointment 👇🏻 @IANOCancerNurse @IrishCancerSoc @hseNCCP @IrelandLiver @IrishLiverNurse
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The final leg of the LISN to your Liver campaign is back in Dublin this weekend, Saturday 27th Sept in Parthalán Place, D 24. All info in the flyers 👇🏻 Spread the word with family and friends to support liver health 💚 @IrelandLiver @HSELive @med_indonews @rtenews
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Such an important initiative 👏🏻 Liver disease is silent until advanced stages when symptoms start to show. Screening allows for early detection and intervention, aiming to prevent cirrhosis and liver cancer 💚 @HSELive @IrishHaemAssoc @PBCIreland @AlcoholIreland
We are delighted to announce that we are providing free liver health screens across Ireland, starting this Saturday in Dublin! In collaboration with LISN patient group @LiverTrust @EASLnews @Independent_ie @IrishTimes @rtenews @IrishLiverNurse @LiverBeaumont
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An amazing interview by @ArleneHarris11 @IrishTimes with Alice Kelly today. Thank you Alice for sharing your story of #haemochromatosis and being a great ambassador for raising awareness of Ireland’s most common genetic disorder
In today's @IrishTimes this woman told me how the feelings of extreme tiredness she had for years turned out to be #haemochromatosis, one of the most common disorders in Ireland. She urges people to seek advice if any concerns. @IrishHaemAssoc
https://t.co/x4A7sU549Z
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Thank you SO much to Bonita Rodrigues @svuh for doing amazing work to raise awareness of #haemochromatosis during #WHW2025 We love your posters too!
This week is #Haemochromatosis Awareness Week 1 in 83 people in Ireland may have this genetic condition causing iron overload. Early detection is key—awareness is the 1st step Visit our stand & meet CNM2 Bonita Rodrigues ✔Know the signs ✔Talk to your GP ✔Get tested #WHW2025
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Thank you to County Mayor Joe Carroll, Rose Gowan and all the staff @Corkcoco for helping us raise awareness of Ireland’s most common genetic disorder #haemochromatosis #WHW2025
🔴 Cork County Hall will light up in red this evening for World Haemochromatosis Awareness Week which takes place from the 1st to the 7th of June. 🔴 Haemochromatosis or 'iron overload' is Ireland's most common genetic disorder. Ireland has the highest rates of this disorder in
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Today is the first day of World Haemochromatosis Awareness Week - and the official start of summer! Watch out for updates over this important week and help us spread the word. For more information and resources visit: https://t.co/hVDz9Ti3B8
#WHW2025 #ironoverload #gettested
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We were delighted to attend the recent @HCRireland forum on patient registries in Ireland #haemochromatosis #livingwithhaemochromatosis
Our Head of Research & Analytics, Dr Theresa Redaniel attended the Irish Health Research Forum, which brought together patient registry and industry leaders to explore how we can shape a stronger registry landscape in Ireland. @HRCIreland
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Really enjoyed facilitating this webinar on #fatiguemanagement with @IrishHaemAssoc
#spoontheory #fatigue
‘Managing Chronic Fatigue’ event for Haemochromatosis patients Tuesday 13th May @ 7pm. Places still available for this free event with Dr Michelle Murphy. Register here: https://t.co/TP5lwm0tgy
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‘Managing Chronic Fatigue’ event for Haemochromatosis patients Tuesday 13th May @ 7pm. Places still available for this free event with Dr Michelle Murphy. Register here: https://t.co/TP5lwm0tgy
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Are you the first in your family diagnosed with haemochromatosis? Just one gene from each parent is enough to inherit it — even if they don’t have it. 🔗 https://t.co/1JHwTU7Xp6
#Haemochromatosis #IronOverload #GeneticDisorder #KnowYourGenes #HealthAwareness
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This #DonorWeek25, we’re proud to support the call to “Don’t Leave Your Loved Ones in Doubt” SVUH is home to Ireland’s National Liver & Pancreas Transplant Programmes—where lives are changed every day. ➡️ https://t.co/YQEyP1vwje
#LeaveNoDoubt #OrganDonation #ShareYourWishes #SVUH
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Is there really a “Celtic curse” in Irish families? 🍀 @AlexDainis breaks down the genetic condition hereditary hemochromatosis, a gene mutation causes the body to absorb too much iron, leading to joint pain, liver issues, and heart problems. Luckily, early screening can catch
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HSE West and North West have introduced the first education programme of its kind in Ireland for GP Practices in partnership with @IrishHaemAssoc focusing on Hereditary Haemochromatosis (HH) Further details at https://t.co/AR0ABvBWn3
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Fantastic to see so many GP nurses from all over Connaght & Ulster attend this event @CNMESligo today. The first-of-its-kind Venesection & Haemochromatosis Study Day—a true collaboration with CNME Sligo, Sligo acute sector doctors & nurses, The IHS and PDCGPNs. #CPD #GPNs
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Delighted to partner with the training & education HSE IHA team in the West & NW for a haemochromatosis & venesection nurse training day. What an amazing team! We are so grateful for the support of the Hospital Saturday Fund. Huge thanks to all the GP practice nurses who attended
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We are delighted to award a €13,500 grant to the @IrishHaemAssoc to fund a Venesection Training Programme for GP & practice nurses & webinars for patients. We are proud to contribute to improving care and support for those affected by haemochromatosis." #grants #Charity
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What a turnout for the #2ndILFStudyDay today in the RCSI. Thank you to the organising team John Ryan, Pauline Dillon, Zita Galvin, Stephen Stewart, Clare Foley, Michèle Bourke and all those who helped to make it such a success👏🏻💚 @IrelandLiver
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