Irish Haemochromatosis Association
@IrishHaemAssoc
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A life-changing #health #advocacy support group for haemochromatosis #ironoverload patients/families. Raising awareness, promoting early diagnosis & treatment
Ireland
Joined January 2015
An amazing interview by @ArleneHarris11 @IrishTimes with Alice Kelly today. Thank you Alice for sharing your story of #haemochromatosis and being a great ambassador for raising awareness of Ireland’s most common genetic disorder.
In today's @IrishTimes this woman told me how the feelings of extreme tiredness she had for years turned out to be #haemochromatosis, one of the most common disorders in Ireland. She urges people to seek advice if any concerns. @IrishHaemAssoc .
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Thank you SO much to Bonita Rodrigues @svuh for doing amazing work to raise awareness of #haemochromatosis during #WHW2025 We love your posters too!.
This week is #Haemochromatosis Awareness Week . 1 in 83 people in Ireland may have this genetic condition causing iron overload. Early detection is key—awareness is the 1st step. Visit our stand & meet CNM2 Bonita Rodrigues.✔Know the signs.✔Talk to your GP.✔Get tested.#WHW2025
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Thank you to County Mayor Joe Carroll, Rose Gowan and all the staff @Corkcoco for helping us raise awareness of Ireland’s most common genetic disorder #haemochromatosis #WHW2025.
🔴 Cork County Hall will light up in red this evening for World Haemochromatosis Awareness Week which takes place from the 1st to the 7th of June. 🔴. Haemochromatosis or 'iron overload' is Ireland's most common genetic disorder. Ireland has the highest rates of this disorder in
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Today is the first day of World Haemochromatosis Awareness Week - and the official start of summer! Watch out for updates over this important week and help us spread the word. For more information and resources visit: #WHW2025 #ironoverload #gettested
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We were delighted to attend the recent @HCRireland forum on patient registries in Ireland #haemochromatosis #livingwithhaemochromatosis.
Our Head of Research & Analytics, Dr Theresa Redaniel attended the Irish Health Research Forum, which brought together patient registry and industry leaders to explore how we can shape a stronger registry landscape in Ireland. @HRCIreland
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RT @MichelleMur122: Really enjoyed facilitating this webinar on #fatiguemanagement with @IrishHaemAssoc . #spoontheory #fatigue.
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‘Managing Chronic Fatigue’ event for Haemochromatosis patients Tuesday 13th May @ 7pm. Places still available for this free event with Dr Michelle Murphy. Register here:
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RT @HaemAus: Are you the first in your family diagnosed with haemochromatosis?. Just one gene from each parent is enough to inherit it — ev….
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RT @svuh: This #DonorWeek25, we’re proud to support the call to “Don’t Leave Your Loved Ones in Doubt”.SVUH is home to Ireland’s National L….
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RT @museumofscience: Is there really a “Celtic curse” in Irish families? 🍀 . @AlexDainis breaks down the genetic condition hereditary hemoc….
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RT @HSE_West_NWest: HSE West and North West have introduced the first education programme of its kind in Ireland for GP Practices in partne….
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RT @NationalPDCGPN: Fantastic to see so many GP nurses from all over Connaght & Ulster attend this event @CNMESligo today. The first-of-its….
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Delighted to partner with the training & education HSE IHA team in the West & NW for a haemochromatosis & venesection nurse training day. What an amazing team! We are so grateful for the support of the Hospital Saturday Fund. Huge thanks to all the GP practice nurses who attended
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RT @HSFCharity: We are delighted to award a €13,500 grant to the @IrishHaemAssoc to fund a Venesection Training Programme for GP & practice….
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RT @michele_bourke: What a turnout for the #2ndILFStudyDay today in the RCSI. Thank you to the organising team John Ryan, Pauline Dillon, Z….
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So well deserved Noel. You and the ExWell team do such wonderful work!.
ExWell Medical's CEO Dr Noel McCaffrey was honoured December 4th with a Lifetime Achievement Award for Outstanding Contribution to Irish Medicine at the 2024 Irish Healthcare Awards. @HealthAwardsIrl
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We won! Delighted to be the winner of @HealthAwardsIrl Public Health Iniative of the Year for our education and awareness L.I.F.E campaign. Special thanks David Beggy, Brian Keenan, Phil Dunne, our amazing voluntary communications expert. Huge thanks to @harris_pr #IMTIHA24
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RT @IrishLiverNurse: Shout out to our amazing ANP’s Michèle Bourke, Anne Brennan, Dee Noone and cANP’s Edel Dolan, Laura O’Connell, Yvonne….
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Great talk by Dr Paul Grant on haemochromatosis in #Letterkenny! Over 120 people joined us on the night! Huge thanks to Paul and to our amazing volunteer and supporter, Brian Coyne and voluntary Board Member Philip Maree.
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