International Meeting on Laminopathies
@IMLaminopathies
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Bringing together experts in #rarediseases caused by mutations in genes encoding proteins of the nuclear envelope 👩🔬 New therapies 💉 Knowledge 🔬 Patients
Paris
Joined December 2022
📣 We need your help! 💙 Download our flyer & spread the word about LMNA-related heart disease: ✅ Share online ✅ Hang in clinics & waiting rooms ✅ Send to your network Will you help us grow? 🌍 👉 https://t.co/AibixoV7uY
#LMNA #RareDisease #HeartHealth
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Thank you for an inspiring @IMLaminopathies meeting in Paris! On behalf of LMNAcardiac and all LMNA patients ❤️, we’re grateful for the strong interest and meaningful interaction between experts and patients. Hopeful for the future! 🙏 #LMNA #RareDisease #Cardio #PatientAdvocacy
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Laminopathies Meeting 2025 wrapped up with two powerful sessions: “Towards Patients” & the Patient Session. The exchange between experts & patients was incredibly valuable. Thanks to everyone who joined us! #Laminopathies #RareDisease #PatientVoices #lmna
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Day 3 of the #Laminopathies2025 meeting is underway — our final day! We’re closing strong with sessions focused on patients and patient organizations, followed by a powerful round table discussion. Let’s keep the momentum going 💪🧬 #RareDisease #Patient #laminopathies
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Day 2 of the #Laminopathies conference is underway! 💡 Dive into today’s sessions and connect with the global community driving progress in laminopathy research. Full program available at https://t.co/Cu8JnKBwI6
#RareDisease #Laminopathy #Laminopathies
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An unforgettable evening at the #Laminopathies conference gala dinner/cocktail party - great conversations, inspiring connections, and a stunning venue. Huge thanks to the organisers and @LmnaCardiac for bringing this community together! 💙 #RareDisease #Laminopathy #lmnacardiac
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The #Laminopathies Meeting is LIVE! Experts, researchers & advocates are gathering to push forward breakthroughs in LMNA & lamin-related diseases. Follow the latest updates, science, and community highlights 👉 https://t.co/jUo8opZ6DH
#Laminopathies2025 #RareDisease #LMNA
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We start tomorrow! 🧬 The Laminopathies Meeting begins with registration at 14:00 — we’re looking forward to seeing you all there! More info: https://t.co/AhpHGF2F9y
#Laminopathies #RareDisease #LMNA #Genetics #PatientCommunity
laminopathies.net
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🚨 The Laminopathies Meeting will also be available online! Join virtually via Zoom webinar: 👉 https://t.co/r0YwMQaPFx Don’t miss this key event for the laminopathies community - whether you're a researcher, clinician, patient, or advocate. https://t.co/jUo8opZ6DH
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📢 5th Laminopathies Meeting in Paris! 🧬 The poster abstracts are now available! Scan the QR code below or visit https://t.co/jUo8opZ6DH to explore the latest research from the community. #Laminopathies2025 #LMNA #RareDiseaseResearch #laminopathies
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📢 The Laminopathies 2025 meeting is around the corner! 📄 Abstracts are now available — scan the QR code to access them instantly and explore the latest research in the field. 🔗 Learn more at https://t.co/jUo8opZ6DH
#Laminopathies2025 #RareDisease #LMNA #lmnacardiac
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We’re excited to see many of you in Paris next week! If you can’t make it in person, don’t worry—follow us here and on our website for access to the live stream. #laminopathies #lmna #paris #livestream
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Welcome to the official account for the 5th Laminopathies Conference! 🧬 Join us for cutting-edge research, inspiring talks, and live updates from the Laminopathies meeting in Paris. Follow for the latest news! #Laminopathies2025 #laminopathies #lmna #lmnacardiac
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🚨Registration before 14 January 2024 to join us in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases ℹ️Registration & more information: https://t.co/LNp98UBcwy
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Future directions in neuromuscular research @CNMDOttawa #OttawaNMD: @emmcnally @oligogirl & me speak, @RobinJParks & Jodi Warman Chardon chair. I present work by @NedaAliMohamma @drelliechilcott @jamunanithy Sherif Ahmed & cols @BowermanNMD @HeidiRFuller @Scattyowen @ProfSimonWad
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Mariko Okubo (@Inst_Myologie) presenting gene therapy approaches using AAVs and LMNA mouse model (K32del) – able to express human laminin A, but not to suppress the mutant LMNA expression #WMS2023
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There is still time to sign up to join this informative webinar on lamin disease, its often associated LMNA cardiomyopathy and need for defibrillator placement: the who, what and when. #lamindisease #nuclearlamins #nuclearenvelopathies
@DCM_Foundation
@IMLaminopathies
Webinar: The who, what and when of implantable cardioverter defibrillators in LMNA Cardiomyopathy with LMNA Cardiomyopathy Expert, Dr. Neal Lakdawala. Date: Tuesday July 18th 2023 Time: 9:00AM ET Free registration on: https://t.co/6RYX4mcRK9
#lmna #laminopathies #laminopathy
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Have you already found yourself? 😉
📸 The album of the @IMLaminopathies is now available! Take a look to the congress and experience the fantastic atmosphere that we enjoyed! 👬👫👭 📲 https://t.co/Dqiogk7Urv
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📸 The album of the @IMLaminopathies is now available! Take a look to the congress and experience the fantastic atmosphere that we enjoyed! 👬👫👭 📲 https://t.co/Dqiogk7Urv
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📸 The album of the @IMLaminopathies is now available! Take a look to the congress and experience the fantastic atmosphere that we enjoyed! 👬👫👭 📲 https://t.co/Dqiogk7Urv
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