Help4HD
@Help4HDI
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Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.
California
Joined June 2013
Listen in TOMORROW as Courtney Barker jumps on with Leah to discuss the difficulties of transitioning into a #caregiver role when a loved one with #HD isn't ready to give up their independence. Find out more on Facebook at 9am PST on #Help4HDTV!
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Support looks different for everyone! Share experiences, unload your frustrations, listen in & observe. Find the support that you need during this HD journey. #Help4HD #HuntingtonsDisease #SupportGroup Support Group Details: https://t.co/G6VZXwkHrv
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Times for Monday Mixer! Join us tomorrow for the company of HD community members on Zoom! Contact jamie@help4hd.org for more details. See you there! #help4HD #MondayMixer #HuntingtonsDisease
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π£π’STAND UP SPEAK UP 4 HD How to contact #FDA about AMT-130?! You asked & we listened! #Help4HD has launched "Stand Up #SpeakUp4HD" to provide letter templates, contact info, etc. for YOU to advocate for yourself & your loved ones. https://t.co/bPQW1jc4Ew
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Thanks to everyone who joined us for our final #Help4HDHIPE2025! We appreciate our amazing #sponsors that make these events possible throughout the year! Thank you for your continuous support of the #HD community as we press forward & #LooktotheFuture!
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Watch NOW on Facebook LIVE! Help 4 HD HIPE includes #HD Q&A, AMT-130 update analysis with #HDExperts, pharma representatives, community stories, and so much more. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease
https://t.co/xHrICeQpan
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Connect LIVE TOMORROW at 8am PST! We can't wait to see you there! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease
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"We are committed to providing access to necessary #healthcare & long-term supports & services for people with disabilities..." ~#DisabilityRights #Louisianaπππ Find more resources like this on the #Help4HD #Resource Database: https://t.co/3P0eBHn6i9
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*Giveaways* Join the HIPE! Once the event is live, you can find #giveaways at the bottom of each session page. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease
#Help4HD App: https://t.co/064Dq45NTA Event Zoom link: https://t.co/AbeZZcJZes Passcode: 431440
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"I feel helpless, because it's like... what can WE do?" Listen NOW on #Help4HDTV as Laura & Leah react to the AMT-130 update & discuss moving forward from here as a community! #HuntingtonsDisease #HDResearch #uniqure Full episode: https://t.co/PW3s37HD4q
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Laura Vazac-Muoio & #Help4HDTV host Leah reveal how they heard about the AMT-130 update & their different reactions to the news! Listen in Tomorrow at 9am PST to find out more. #Help4HD #HuntingtonsDisease #HDResearch AMT-130 update: https://t.co/SxIf37SVzI
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We are THRILLED to have Dr. Beth Borowsky, Senior Global Program Clinical Head in Neuroscience at @Novartis, speaking at #Help4HDHIPE2025 on Saturday! Listen to this special guest at our FREE #virtual #HD event as we #LooktotheFuture starting @ 8am PST!
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Make sure to tune in TOMORROW at 4 pm EST to hear Katie Jackson and I talk about the recent UniQure update, what we as a community can do, and the upcoming @Help4HDI HIPE event. #HuntingtonsDisease #raredisease #Voice4HD #DyingToLive #HDWarrior #patientadvocate #careaboutrare
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Tessy Rossignol, Sr. Manager Patient Support Services for Neurocrine Biosciences, will be coming virtually to HIPE this weekend! Listen in Saturday @ 8am PST as we Look to the Future! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease
https://t.co/Y65O0NsLzN
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THIS WEEKEND! Come online to hear more about HD Pace (#HD Patients Accelerating Clinical Endeavors) with Christy & Lauren at Virtual HIPE! Tune in at 8am PST on Saturday! #Help4HDHIPE2025 #Virtual #huntingtonsdisease
https://t.co/Aiv9wlwrE1
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We wish to thank our #Help4HD Resource Database #sponsors for helping us provide access to resources for the #HD community. Thank you for your generous support!πππ Check out the Help4HD Resource Database here: https://t.co/Sve4T6TIgp
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Listen in on this session as Mei-Lise Nguyen representing Genentech/Roche shares #HDResearch updates coming up on Saturday! Join us virtually starting at 8am PST! #Help4HDHIPE2025 #Virtual #huntingtonsdisease
https://t.co/Aiv9wlwrE1
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πAPPLY NOW!π #Help4theHolidays is pleased to be giving qualifying #HD/ #JHD families relief towards a #holiday meal. #Help4HD's #HolidayRelief meal program portal is now OPEN! (First-Come, First-serve) Details: https://t.co/gaT7UyVOMm
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