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Help4HD Profile
Help4HD

@Help4HDI

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Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.

California
Joined June 2013
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@Help4HDI
Help4HD
23 hours
Listen in TOMORROW as Courtney Barker jumps on with Leah to discuss the difficulties of transitioning into a #caregiver role when a loved one with #HD isn't ready to give up their independence. Find out more on Facebook at 9am PST on #Help4HDTV!
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@Help4HDI
Help4HD
2 days
Thank you #LEEP #sponsors! We are so grateful for your invaluable support for our mission to provide guidance to officers about how to approach individuals who may be cognitively impaired through our Law Enforcement Education Program. #Help4HD
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@Help4HDI
Help4HD
4 days
Support looks different for everyone! Share experiences, unload your frustrations, listen in & observe. Find the support that you need during this HD journey. #Help4HD #HuntingtonsDisease #SupportGroup Support Group Details: https://t.co/G6VZXwkHrv
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@Help4HDI
Help4HD
5 days
Times for Monday Mixer! Join us tomorrow for the company of HD community members on Zoom! Contact jamie@help4hd.org for more details. See you there! #help4HD #MondayMixer #HuntingtonsDisease
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@Help4HDI
Help4HD
5 days
πŸ—£πŸ“’STAND UP SPEAK UP 4 HD How to contact #FDA about AMT-130?! You asked & we listened! #Help4HD has launched "Stand Up #SpeakUp4HD" to provide letter templates, contact info, etc. for YOU to advocate for yourself & your loved ones. https://t.co/bPQW1jc4Ew
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@Help4HDI
Help4HD
5 days
Thanks to everyone who joined us for our final #Help4HDHIPE2025! We appreciate our amazing #sponsors that make these events possible throughout the year! Thank you for your continuous support of the #HD community as we press forward & #LooktotheFuture!
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@Help4HDI
Help4HD
6 days
Watch NOW on Facebook LIVE! Help 4 HD HIPE includes #HD Q&A, AMT-130 update analysis with #HDExperts, pharma representatives, community stories, and so much more. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease https://t.co/xHrICeQpan
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@Help4HDI
Help4HD
7 days
Connect LIVE TOMORROW at 8am PST! We can't wait to see you there! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease
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@Help4HDI
Help4HD
7 days
"We are committed to providing access to necessary #healthcare & long-term supports & services for people with disabilities..." ~#DisabilityRights #LouisianaπŸ’™πŸ’œπŸ’™ Find more resources like this on the #Help4HD #Resource Database: https://t.co/3P0eBHn6i9
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@Help4HDI
Help4HD
7 days
*Giveaways* Join the HIPE! Once the event is live, you can find #giveaways at the bottom of each session page. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease #Help4HD App: https://t.co/064Dq45NTA Event Zoom link: https://t.co/AbeZZcJZes Passcode: 431440
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@Help4HDI
Help4HD
7 days
"I feel helpless, because it's like... what can WE do?" Listen NOW on #Help4HDTV as Laura & Leah react to the AMT-130 update & discuss moving forward from here as a community! #HuntingtonsDisease #HDResearch #uniqure Full episode: https://t.co/PW3s37HD4q
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@Help4HDI
Help4HD
8 days
Laura Vazac-Muoio & #Help4HDTV host Leah reveal how they heard about the AMT-130 update & their different reactions to the news! Listen in Tomorrow at 9am PST to find out more. #Help4HD #HuntingtonsDisease #HDResearch AMT-130 update: https://t.co/SxIf37SVzI
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@Help4HDI
Help4HD
8 days
We are THRILLED to have Dr. Beth Borowsky, Senior Global Program Clinical Head in Neuroscience at @Novartis, speaking at #Help4HDHIPE2025 on Saturday! Listen to this special guest at our FREE #virtual #HD event as we #LooktotheFuture starting @ 8am PST!
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@laurencurehd
Lauren Holder
9 days
Make sure to tune in TOMORROW at 4 pm EST to hear Katie Jackson and I talk about the recent UniQure update, what we as a community can do, and the upcoming @Help4HDI HIPE event. #HuntingtonsDisease #raredisease #Voice4HD #DyingToLive #HDWarrior #patientadvocate #careaboutrare
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@Help4HDI
Help4HD
9 days
Together, we will continue to fight for youπŸ’™πŸ’œπŸ’™ @HDSA @HDReach @HDYOFeed @hdfcures
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@Help4HDI
Help4HD
9 days
Tessy Rossignol, Sr. Manager Patient Support Services for Neurocrine Biosciences, will be coming virtually to HIPE this weekend! Listen in Saturday @ 8am PST as we Look to the Future! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease https://t.co/Y65O0NsLzN
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@Help4HDI
Help4HD
10 days
THIS WEEKEND! Come online to hear more about HD Pace (#HD Patients Accelerating Clinical Endeavors) with Christy & Lauren at Virtual HIPE! Tune in at 8am PST on Saturday! #Help4HDHIPE2025 #Virtual #huntingtonsdisease https://t.co/Aiv9wlwrE1
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@Help4HDI
Help4HD
10 days
We wish to thank our #Help4HD Resource Database #sponsors for helping us provide access to resources for the #HD community. Thank you for your generous support!πŸ’™πŸ’œπŸ’™ Check out the Help4HD Resource Database here: https://t.co/Sve4T6TIgp
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@Help4HDI
Help4HD
10 days
Listen in on this session as Mei-Lise Nguyen representing Genentech/Roche shares #HDResearch updates coming up on Saturday! Join us virtually starting at 8am PST! #Help4HDHIPE2025 #Virtual #huntingtonsdisease https://t.co/Aiv9wlwrE1
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@Help4HDI
Help4HD
11 days
πŸ‚APPLY NOW!πŸ‚ #Help4theHolidays is pleased to be giving qualifying #HD/ #JHD families relief towards a #holiday meal. #Help4HD's #HolidayRelief meal program portal is now OPEN! (First-Come, First-serve) Details: https://t.co/gaT7UyVOMm
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